Framework for patient, family-centred care within an Australian Community Hospital: development and description

Frakking, Thuy; Michaels, Suzanne; Orbell‐Smith, Jane; Ray, Lance Le

doi:10.1136/bmjoq-2019-000823

Cited by 21 publications

(43 citation statements)

References 79 publications

(59 reference statements)

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“…Studies were included if they were published between 2010–2020 with the underpinning clinical rationale that partnership and partnering with patients and their families has become a central focus over this time (Frakking et al, 2020). Only qualitative studies that were published in English were included.…”

Section: Methodsmentioning

confidence: 99%

Children living with long‐term conditions: A meta‐aggregation of parental experiences of partnership nursing

Barratt

Bail

Paterson

2021

Journal of Clinical Nursing

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Aim To explore how parents of children with long‐term conditions experience partnership in paediatric and neonatal nursing care and to identify existing partnership barriers and facilitators. Background Parent–nurse partnership is fundamental to paediatric and neonatal nursing. Partnership is characterised by five attributes: parental participation, negotiation, mutual trust and respect, shared roles and decision‐making, and communication. Little is known about the parental experiences of partnership nursing specific to children living with a long‐term condition. Design A qualitative meta‐aggregation review following Joanna Briggs Institute meta‐aggregation approach. Methods A comprehensive search was conducted in six electronic databases. Studies were assessed according to the inclusion and exclusion criteria. Qualitative findings with illustrative quotes from included studies were extracted and grouped into categories which informed the synthesised findings. This review has been reported according to the PRISMA guidelines. Findings A total of 4,404 studies were screened, 162 full‐text studies were assessed against the inclusion and exclusion criteria, and a total of six studies were included. The meta‐aggregation developed three overarching synthesised findings which were as follows: (a) empowering parents to become involved, (b) effective communication to recognise mutual expertise and (c) collaborative nurse–family relationships. Conclusion Parents valued collaboration where both parents and nurses are recognised equally for their skills and expertise. A power struggle existed between parents and nurses when expertise was not recognised. Parents appreciated nurses who empowered them to develop new skills and knowledge in the care of their own child. Relevance to clinical practice Nurses need to recognise the skills and knowledge that parents have surrounding the care requirements of their own children. Collaboration and negotiation are key to successful partnership between nurses and parents. Nurses need to frequently reflect on how they are successfully partnering with both parents and children and ensure all parties in the nurse/parent/child triad feel supported and empowered.

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Section: Methodsmentioning

confidence: 99%

Children living with long‐term conditions: A meta‐aggregation of parental experiences of partnership nursing

Barratt

Bail

Paterson

2021

Journal of Clinical Nursing

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“…Among the competencies are the acknowledgment of family members as full partners in care, communicating with them in an honest and compassionate manner and supporting them in participating in clinical decision‐making. These competencies are mainly focused on one of the key components to facilitate FCC, namely the collaboration between family members and health care professionals to define care plans where family contexts are taken into account (Kokorelias et al., 2019), and highlights the fundamental values of being heard, respected, valued and supported by nurses (Frakking et al., 2020). This urges the importance of a strong relationship between nurses and family members to ensure consistency and continuity of care.…”

Section: Discussionmentioning

confidence: 99%

“…Our results suggest that among our participants the concept of FCC evokes different ideas about needed competencies between different nursing professionals and these differences were also present in the separate groups of participants. (Kokorelias et al, 2019), and highlights the fundamental values of being heard, respected, valued and supported by nurses (Frakking et al, 2020). This urges the importance of a strong relationship be- The cross product of the two highest loadings of the factor should exceed twice the standard error of 0.118.…”

Section: Main Findingsmentioning

confidence: 99%

Nursing competencies for family‐centred care in the hospital setting: A multinational Q‐methodology study

Hengeveld¹,

Maaskant

Lindeboom

et al. 2020

Journal of Advanced Nursing

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Aim to identify: (1) nursing competencies for FCC in a hospital setting; and (2) to explore perspectives on these competencies among Dutch and Australian professionals including lecturers, researchers, Registered Nurses and policy makers. Design A multinational cross‐sectional study using Q‐methodology. Methods First, an integrative review was carried out to identify known competencies regarding FCC and to develop the Q‐set (search up to July 2018). Second, purposive sampling was used to ensure stakeholder involvement. Third, participants sorted the Q‐set using a web‐based system between May and August 2019. Lastly, the data were analysed using a by‐person factor analysis. The commentaries on the five highest and lowest ranked competencies were thematically analysed. Results The integrative review identified 43 articles from which 72 competencies were identified. In total 69 participants completed the Q‐sorting. We extracted two factors with an explained variance of 24%. The low explained variance hampered labelling. Based on a post‐hoc qualitative analysis, four themes emerged from the competencies that were considered most important, namely: (a) believed preconditions for FCC; (b) promote a partnership between nurses, patients and families; (c) be a basic element of nursing; and (d) represent a necessary positive attitude and strong beliefs of the added value of FCC. Three themes appeared from the competencies that were considered least important because they: (a) were not considered a specific nursing competency; (b) demand a multidisciplinary approach; or (c) require that patients and families take own responsibility. Conclusions Among healthcare professionals, there is substantial disagreement on which nursing competencies are deemed most important for FCC. Impact Our set of competencies can be used to guide education and evaluate practicing nurses in hospitals. These findings are valuable to consider different views on FCC before implementation of new FCC interventions into nursing practice.

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“…Healthcare professionals' view families as active participants in planning care and the ensuring well-being of patients [10]. As a result, the patients and their families are empowered to take responsibility for their care decisions [11].…”

Section: Introductionmentioning

confidence: 99%

Comparison of Intensive Care Unit Nurses’ and Family Members’ Priorities of Patient and Family-centered Care in Ghana

Mohammed

Tak²

2022

J Korean Crit Care Nurs

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Purpose : Life-threatening illnesses represent a crisis for individual patients and their families. Little has been made to understand the priorities or perspectives in developing a care plan. This results in poor outcomes, and patients and families return home without being satisfied with the care provided. This study aimed to address nurses’ and families’ care priorities on patient and family-centered care principles and compare those priorities.Methods : A quantitative comparative descriptive research was conducted. The data were part of a study that was carried out to elicit and compare nurses’ and families’ perceptions of complying with patient and family-centered care (PFCC) principles in intensive care units (ICU) in Ghana. The respondents were ICU nurses (n=123) and family members of hospitalized patients in the ICU (n=111). The tool for the study was a “modernized version of a hospital self-assessment inventory on PFCC,” and data analyses were performed using SPSS version 20.0.Results : Nurses and families differed significantly in their priorities of care based on the principles of PFCC. The means and <i>p</i>-values were significantly different for the definition, pattern of care and access to information/education, and the overall total scores of the patient and family-centered care principles (PFCCP)Conclusion : To render care that aligns with the care priority of families and patients in the ICU, nurses must plan care in consultation with their families.

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Framework for patient, family-centred care within an Australian Community Hospital: development and description

Cited by 21 publications

References 79 publications

Children living with long‐term conditions: A meta‐aggregation of parental experiences of partnership nursing

Children living with long‐term conditions: A meta‐aggregation of parental experiences of partnership nursing

Nursing competencies for family‐centred care in the hospital setting: A multinational Q‐methodology study

Comparison of Intensive Care Unit Nurses’ and Family Members’ Priorities of Patient and Family-centered Care in Ghana

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