Using community-based geographical information system (GIS) to recruit older Asian Americans in an Alzheimer’s disease study

Abstract

ObjectiveThis study aims to show the usefulness of incorporating a community-based geographical information system (GIS) in recruiting research participants for the Asian Cohort for Alzheimer’s Disease (ACAD) study for using the subgroup of Korean American (KA) older adults. The ACAD study is the first large study in the USA and Canada focusing on the recruitment of Chinese, Korean and Vietnamese older adults to address the issues of under-representation of Asian Americans in clinical research.MethodsTo promote clinical research participation of racial/ethnic minority older adults with and without dementia, we used GIS by collaborating with community members to delineate boundaries for geographical clusters and enclaves of church and senior networks, and KA serving ethnic clinics. In addition, we used socioeconomic data identified as recruitment factors unique to KA older adults which was analysed for developing recruitment strategies.ResultsGIS maps show a visualisation of the heterogeneity of the sociodemographic characteristics and the resources of faith-based organisations and KA serving local clinics. We addressed these factors that disproportionately affect participation in clinical research and successfully recruited the intended participants (N=60) in the proposed period.DiscussionUsing GIS maps to locate KA provided innovative inroads to successful research outreach efforts for a pilot study that may be expanded to other underserved populations across the USA in the future. We will use this tool subsequently on a large-scale clinical genetic epidemiology study.Policy implicationThis approach responds to the call from the National Institute on Aging to develop strategies to improve the health status of older adults in diverse populations. Our study will offer a practical guidance to health researchers and policymakers in identifying understudied and hard-to-reach specific Asian American populations for clinical studies or initiatives. This would further contribute in reducing the health and research disparity gaps among older minority populations.

Asian Cohort for Alzheimer's Disease (ACAD) pilot study on genetic and non‐genetic risk factors for Alzheimer's disease among Asian Americans and Canadians

“…For example, one site discussed using a community‐based geographical information system for recruitment of older Asian Americans. 25 …”

“…This is an ongoing, collaborative process between communities and researchers that recognizes respective strengths and assets and maintains sustainable collaborations. 25 , 26 , 27 , 28 CBPR approaches have been previously used in ADRD research recruitment 29 , 30 and ASAC research in other health conditions, 31 and have helped improve trial/research awareness and reduce language barriers in underrepresented populations—two substantial barriers for ASAC participation. 32 …”

“…This is an ongoing, collaborative process between communities and researchers that recognizes respective strengths and assets and maintains sustainable collaborations. [25][26][27][28] CBPR approaches have been previously…”