Using Action Research to Design Bereavement Software: Engaging People with Intellectual Disabilities for Effective Development

Abstract

This tool has the capacity to enable individuals to capture experiences in a storyboard format; that can be stored; is easily retrievable; can be printed out; and could feasibly be personalised by the insertion of photographs.

Perspectives of US Direct Care Workers on the Grief Process of Persons with Intellectual and Developmental Disabilities: Implications for Practice

“…Resources, such as employing software and storyboard formats, have been developed to help PWIDDs talk about loss (Read et al . ). Other interventions, such as reminiscence and life review, are beginning to be explored to help PWIDDs process loss (Puyenbroeck & Maes ).…”

Direct care workers’ experiences of grief and needs for support

“…Although an important body of research continues to expand on people with I/DD's experience with death and other losses, and how staff can serve as supports (Brickell & Munir, ; Clute, ; Read, Nte, Corcoran, & Stephens, ; Tuffrey‐Winje, ; Wiese, Dew, Stancliffe, Howarth, & Baladin, ; Wiese, Stancliffe, Baladin, Howarth, & Dew, ; Wiese, Stancliffe, Dew, Baladin, & Howarth, ), only a fraction of this research has focused on staff's personal experience with grief and bereavement in the intellectual and developmental disability (I/DD) field (Handley & Hutchinson, ; MacDermott & Keenan, ; McEvoy et al., ; Ryan, Guerin, Dodd, & McEvoy, ). Staff often experience loss when people with I/DD they care for die.…”

Duelo en discapacidad intelectual: los avances de una década

“…Dado que los problemas y las limitaciones en la comunicación impiden en muchas ocasiones que las personas con DI reciban los apoyos necesarios, en los últimos años se está trabajando en el desarrollo de nuevas formas de actuación que potencien su bienestar emocional y psicológico. Para ello, se han desarrollado herramientas de facilitación emocional como la 'memory box' y softwares que permiten desbloquear ciertos temas conversacionales y expresar y manifestar a la persona el dolor con su cuidador (Read et al, 2013;Young y Garrard, 2015).…”