User involvement in research: power and compromise

Carrick, Rachael; Mitchell, Annie; Lloyd, Keith

doi:10.1002/casp.623

Cited by 28 publications

(19 citation statements)

References 19 publications

(21 reference statements)

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“…Evidence is emerging of ways in which service users have influenced the course and process of research in a productive manner (Carrick, Mitchell, & Lloyd, 2001;Oliver et al, 2001;Trivedi & Wykes, 2002). In particular, service user interviewers are said to have strengthened the validity of responses from other service users (Clark, Scott, Boydell, Goering, 1999;Polowczyk, Brutus, Orvieto, Vidal, & Cipriani, 1993).…”

Section: Motives and Incentives For Collaborative Researchmentioning

confidence: 98%

“…In contrast, research led and funded by institutions may well invite service users to become involved in that research but may propose their research in terms of professionally-defined qualities and outcomes. Research approaches differ in the way in which they allow greater or lesser distance, and/or power sharing between researchers and service users (Carrick et al, 2001;Trivedi & Wykes, 2002).…”

Section: The Barriers To Involvementmentioning

confidence: 99%

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Learning about service user involvement in mental health research

Telford

Faulkner

2004

Journal of Mental Health

106

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Service user involvement in mental health research is a relatively new concept for health professionals. The aims of this paper were to investigate: how far service user involvement in mental health research appears to have been understood, how far it is happening, reasons why service users get involved in research, and barriers to closer involvement from both service user and researcher perspectives. The literature was examined to explore the extent of service user involvement in mental health research, and ways in which service users are carrying out research. It was concluded that while there is little empirical research in this area, increasingly service user involvement in mental health research can be found in the peer-reviewed domain, and at all levels of the research process. The alternative literature (including what is commonly called the grey literature) offers a rich source to learn from. Consideration of the barriers to closer service user involvement highlights likely challenges to traditional researcher-led ideologies and processes. Declaration of interest: None.

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Section: Motives and Incentives For Collaborative Researchmentioning

confidence: 98%

Section: The Barriers To Involvementmentioning

confidence: 99%

Learning about service user involvement in mental health research

Telford

Faulkner

2004

Journal of Mental Health

106

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“…Instead, an inductive approach was undertaken to allow themes to emerge from the study (Thomas, 2006). A qualitative approach was preferred as it provides greater opportunity for the participants to highlight issues of perceived importance from their perspective for their recovery (Carrick, Mitchell, & Lloyd, 2001). …”

Section: Introductionmentioning

confidence: 99%

Case management in early psychosis intervention programme: Perspectives of clients and caregivers

Wong

Yong

Shahwan

et al. 2017

Early Intervention Psych

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Aim: This qualitative study explored the perspectives of clients and caregivers on case management provided by the Singapore Early Psychosis Intervention Programme (EPIP), with the intent to understand the salient aspects of case management from their perspective.Methods: Clients and their caregivers were recruited from the EPIP outpatient clinics. Focus group discussions (FGDs) were conducted at a community centre outside the hospital with 47 clients and 19 caregivers. Facilitators were experienced researchers who were not involved in the care of the clients and trained in qualitative research methodologies. All FGDs were audio recorded and transcribed verbatim with all participants' identifiers omitted to protect confidentiality. Qualitative data analysis was conducted using thematic analysis.Results: There were 11 themes that emerged from the FGDs: therapeutic alliance, holistic monitoring, collaborative role with other care providers, counselling and guidance, crisis management, bridging role, client-centred care, client empowerment and strength building, psychoeducation/education on illness, support and problem solving. "Problem solving" surfaced only from the client FGDs; the remaining themes were common to both groups. Conclusions:The voices of clients and caregivers are important to EPIP case management service. This study has provided insights into their perspectives, understandings and lived experiences of case management and its impact on clients and caregivers. K E Y W O R D Scaregiver perspective, case management, client perspective, early intervention, psychosis

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“…When planning consultations with stakeholders, some relevant questions to ask are (a) who should be included, (b) what are their roles, (c) which diverse groups do they represent, and (d) how do the power differences between participants influence the consultation process? (Carrick et al 2001). Two promising stakeholder consultation strategies include the use of an expert panel (Obrecht 1999) or the Delphi technique (Christie and Barela 2005), which incorporates a consensus-building process with a panel of experts.…”

Section: Infusing Diversity and Social Justice Values In Evaluationmentioning

confidence: 99%

Diversity and Social Justice Implications for Outcome Approaches to Evaluation

Arthur

Lalande

2008

Int J Adv Counselling

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It is important that counsellors provide evidence regarding the efficacy of their services. Although there has been an increased focus on generic outcome measurement of counselling programs and services, little attention has been paid to accountability issues for meeting the needs of diverse populations. This article highlights the increasing relevance of cultural diversity for evaluation practices, using examples from the Canadian context. An overview is provided of the key issues for evaluation of programs and services involving culturally diverse individuals and how evaluation must incorporate social justice issues within service provision. Evaluation strategies are elaborated along with suggestions for enhancing the intercultural competence of evaluation personnel.

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User involvement in research: power and compromise

Cited by 28 publications

References 19 publications

Learning about service user involvement in mental health research

Learning about service user involvement in mental health research

Case management in early psychosis intervention programme: Perspectives of clients and caregivers

Diversity and Social Justice Implications for Outcome Approaches to Evaluation

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