Learning about service user involvement in mental health research

Telford, Rosemary; Faulkner, Alison

doi:10.1080/09638230400017137

Cited by 106 publications

(105 citation statements)

References 29 publications

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“…2 Readers should be aware that we have not addressed the complex relationship between research controlled by service users/survivors and collaborative research involving service user researchers. While some of the barriers are shared by both kinds of research, there are also significant differences, which we are unable to discuss further here (see Telford & Faulkner, 2004).…”

Section: What Is Needed To Promote Service User Leadership In Research?mentioning

confidence: 76%

The mental health strategy for Europe: Why service user leadership in research is indispensable

Callard

Rose

2012

Journal of Mental Health

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Section: What Is Needed To Promote Service User Leadership In Research?mentioning

confidence: 76%

The mental health strategy for Europe: Why service user leadership in research is indispensable

Callard

Rose

2012

Journal of Mental Health

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“…Feedback from service users is required to help clarify the amount of guidance needed to make use of such material. The importance of service user involvement in research in the NHS has been advocated in policy guidelines since 1999 (Department of Health, 1999) and there is increasing evidence of such involvement in mental health research (Telford and Faulkner, 2004). This can involve various roles, ranging from advisory roles, providing their views as research participants and as primary researchers (e.g.…”

Section: Introductionmentioning

confidence: 99%

Service users' views of self-help strategies and research in the UK

Lucock

Barber

Jones

et al. 2007

Journal of Mental Health

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Background -Despite some evidence for the effectiveness of self-help approaches and their recommended use in recent NICE guidance for anxiety and depression, more research is needed into service users' views of self-help materials and their effectiveness in different service settings, including self-help groups.Aim -To obtain the views of a group of mental health service users who attended a self-help organisation of a) a self-help anxiety pack, b) the impact it had on their coping and c) the impact on them of the user consultation exercise.Method -The views were obtained through focus groups using a semi-structured interview schedule and were then subject to qualitative template analysis.Results -The emergent themes included recommendations for improving the pack by making it briefer, more readable and less technical. Other clear themes were the value of working with the pack as a group and concerns about individuals being able to make use of the pack without support and guidance. The implications of these findings for the development and implementation of self-help approaches for mental health problems and research with community based self-help groups are discussed.Conclusions -Service user views of self-help approaches can inform the development of effective and acceptable materials and clarify the support required to make effective use of the material.Declaration of Interest -This study was funded by the University of Huddersfield. Service users' views of self-help anxiety pack

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“…107,108 As recognised by Barber and colleagues, 108 this is partly due to the evaluated projects being undertaken at an early stage in the development of policies on service-user involvement. Nevertheless, although principles for successfully involving service users in health research have been clarified by Telford and Faulkner,107 there is less reported evidence of actual user involvement in NHS research, 107,108 although this deficiency has been partly addressed in a formal evaluation of patient and public involvement in the UK Clinical Research Collaboration. 102 The lack of reported evidence may be due to the fact that service-user involvement in research is patchy and inconsistent.…”

Section: Lay Stakeholdersmentioning

confidence: 99%

Development and evaluation by a cluster randomised trial of a psychosocial intervention in children and teenagers experiencing diabetes: the DEPICTED study

Gregory

Robling²,

Bennert³

et al. 2011

Health Technol Assess

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How to obtain copies of this and other HTA programme reports An electronic version of this title, in Adobe Acrobat format, is available for downloading free of charge for personal use from the HTA website (www.hta.ac.uk). A fully searchable DVD is also available (see below).Printed copies of HTA journal series issues cost £20 each (post and packing free in the UK) to both public and private sector purchasers from our despatch agents.Non-UK purchasers will have to pay a small fee for post and packing. For European countries the cost is £2 per issue and for the rest of the world £3 per issue. How to order:-fax (with credit card details) -post (with credit card details or cheque) -phone during office hours (credit card only).Additionally the HTA website allows you to either print out your order or download a blank order form. Contact details are as follows:Synergie UK (HTA Department) Digital House, The Loddon Centre Wade Road Basingstoke Hants RG24 8QW Email: orders@hta.ac.uk Tel: 0845 812 4000 -ask for 'HTA Payment Services' (out-of-hours answer-phone service) Fax: 0845 812 4001 -put 'HTA Order' on the fax header Payment methods Paying by chequeIf you pay by cheque, the cheque must be in pounds sterling, made payable to University of Southampton and drawn on a bank with a UK address.Paying by credit card You can order using your credit card by phone, fax or post. SubscriptionsNHS libraries can subscribe free of charge. Public libraries can subscribe at a reduced cost of £100 for each volume (normally comprising 40-50 titles). The commercial subscription rate is £400 per volume (addresses within the UK) and £600 per volume (addresses outside the UK). Please see our website for details. Subscriptions can be purchased only for the current or forthcoming volume.How do I get a copy of HTA on DVD?Please use the form on the HTA website (www.hta.ac.uk/htacd/index.shtml). HTA on DVD is currently free of charge worldwide.The website also provides information about the HTA programme and lists the membership of the various committees. HTADevelopment and evaluation by a cluster randomised trial of a psychosocial intervention in children and teenagers experiencing diabetes: the DEPICTED study NIHR Health Technology Assessment programmeThe Health Technology Assessment (HTA) programme, part of the National Institute for Health Research (NIHR), was set up in 1993. It produces high-quality research information on the effectiveness, costs and broader impact of health technologies for those who use, manage and provide care in the NHS. 'Health technologies' are broadly defined as all interventions used to promote health, prevent and treat disease, and improve rehabilitation and long-term care. The research findings from the HTA programme directly influence decision-making bodies such as the National Institute for Health and Clinical Excellence (NICE) and the National Screening Committee (NSC). HTA findings also help to improve the quality of clinical practice in the NHS indirectly in that they form a key component of the 'National K...

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Learning about service user involvement in mental health research

Cited by 106 publications

References 29 publications

The mental health strategy for Europe: Why service user leadership in research is indispensable

The mental health strategy for Europe: Why service user leadership in research is indispensable

Service users' views of self-help strategies and research in the UK

Development and evaluation by a cluster randomised trial of a psychosocial intervention in children and teenagers experiencing diabetes: the DEPICTED study

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