Service users' views of self-help strategies and research in the UK

Lucock, Mike; Barber, Rosemary; Jones, Anthony; Lovell, Jacqui

doi:10.1080/09638230701526521

Cited by 24 publications

(24 citation statements)

References 17 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This review also uncovered a need for the development of a user guide to locating pain self-management materials. Our findings resonate with those of Lucock et al study in 2007 [25] who also found a desire for choice of format and a guide to accessing self-help resources amongst mental health service users. It is envisaged that a guide enabling users to search and review material for themselves will be developed as a result of this study.…”

Section: Discussionsupporting

confidence: 90%

“…Another study identified that older people often had their choices made by others on their behalf and the choices made were actually influenced by financial resources instead of consumer opinions [23]. Nevertheless, numerous benefits and successes of engaging service users’ experiences in setting research agendas and assisting with the conduction of research, specifically systematic reviews and the development of self-help approaches, have been described previously [24,25,20]. …”

Section: Introductionmentioning

confidence: 99%

“…As service users are central to self-management, feedback from service users about current self-management materials is as important to improving materials as the development of new approaches [25]. Service users also bring specialist experience and can play active roles in defining the scope, locating and appraising the literature, interpreting findings and writing up of reports [24,20].…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Systematically searching for and assessing the literature for self-management of chronic pain: a lay users’ perspective

et al. 2014

View full text Add to dashboard Cite

BackgroundThe Engaging with older adults in the development of strategies for the self management of chronic pain (EOPIC) study aims to design and develop self management strategies to enable older adults to manage their own pain. Involving older adults in research into chronic pain management will better enable the identification and development of strategies that are more appropriate for their use, but how can perspectives really be utilised to the best possible outcomes?MethodSeven older adults were recruited through a local advertising campaign to take part. We also invited participants from the local pain services, individuals who had been involved in earlier phase of the EOPIC study and a previous ESRC funded project. The group undertook library training and research skills training to facilitate searching of the literature and identified sources of material. A grading tool was developed using perceived essential criteria identified by the older adults and material was graded according to the criteria within this scale.ResultsFifty-seven resources from over twenty-eight sources were identified. These materials were identified as being easily accessible, readable and relevant. Many of the web based materials were not always easy to find or readily available so they were excluded by the participants. All but one were UK based. Forty-four items were identified as meeting the key criteria for inclusion in the study. This included five key categories as follows; books, internet, magazines, leaflets, CD’s/Tapes.ConclusionThis project was able to identify a number of exemplars of self management material along with some general rules regarding the categories identified. We must point out that the materials identified were not age specific, were often locally developed and would need to be adapted to older adults with chronic pain. For copyright issues we have not included them in this paper. The key message is really related to the format rather than the content. However, the group acknowledge that these may vary according to the requirements of each individual older adult and therefore recommend the development of a leaflet to help others in their search for resources. This leaflet has been developed as part of Phase IV of the EOPIC study.

show abstract

Section: Discussionsupporting

confidence: 90%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Systematically searching for and assessing the literature for self-management of chronic pain: a lay users’ perspective

et al. 2014

View full text Add to dashboard Cite

show abstract

“…However, the models upon which this practice is based are mentioned only in a minority of those same studies 22,32,42,43,54 . Similarly to what is observed in models, there is also a greater need for consensus regarding the goals of peer support, which, although becoming more and more associated with concepts like recovery and empowerment, are not yet fully defined.…”

Section: Discussionmentioning

confidence: 99%

Peer support for people with mental illness

Campos¹,

Sousa²,

Rodrigues³

et al. 2014

Rev. psiquiatr. clín.

View full text Add to dashboard Cite

Background: Peer support is a mutual aid system based on the belief that someone who faced/overcome adversity can provide support, encouragement and guidance to those who experience similar situations. Objective: To conduct a systematic review that describes this concept and characterizes peer supporters, its practice and efficacy. Method: Research on ISI Web of Science, EBSCO Psychology and Behavioral Sciences Collection and Medline databases (from 2001 to December 2013) was conducted using as keywords "mental illness", "mental health", "psychiatric disability", "mental health services", combined with "peer support", "mutual support", "self-help groups", "consumers as providers", "peer-run services", "peer-run programs" and "social support". Results: We found 1,566 articles and the application of both the exclusion (studies with children, teenagers and elderly people; disease in comorbidity; peer support associated to physical illnesses or family members/caregivers) and the inclusion criteria (full text scientific papers, peer support or similar groups directed for schizophrenia, depression, bipolar or psychotic disorders) lead to 165 documents, where 22 were excluded due to repetition and 31 to incomplete text. We analyzed 112 documents, identifying as main peer support categories: characterization, peer supporter, practices and efficacy. Discussion: Despite an increasing interest about this topic, there is no consensus, suggesting realizing more studies.

show abstract

“…Most studies used individual interviews to elicit data (exceptionally, Lucock et al. (2007) used focus groups, Martyn (2003) used interviews, discussion groups and writing, Khan et al.…”

Section: Appraisal Of Studiesmentioning

confidence: 99%

Self-care in mental health services: a narrative review

Lucock

Gillard

Adams

et al. 2011

Health &Amp; Social Care in the Community

Self Cite

View full text Add to dashboard Cite

What is known about the topic d Self-care is an important principle underpinning services for people with long-term health problems. dFor people with mental health problems, there is currently limited empirical research to help us understand what constitutes self-care. What this paper adds dThe review identifies a range of self-care behaviours and processes that support the management of and recovery from mental health problems. A combination of 'experts by experience' and professional expertise should be considered when developing services to support self-care. AbstractSelf-care is an important approach to the management of long-term health conditions and in preventing ill-health by living a healthy lifestyle. The concept has been used to a limited extent in relation to mental health, but it overlaps with the related concepts of recovery, self-management and self-help. These related concepts all entail individuals having more choice and control over treatment and a greater role in recovery and maintaining their health and well-being. This paper reviews qualitative empirical research that provides information on the nature of selfcare in mental health from the perspective of people experiencing mental health problems. Twenty qualitative studies were identified from a systematic search of the literature. The methods used in these studies were critically appraised and key themes across studies identified selfcare behaviours and processes supporting self-care. The paper also highlights challenges to this approach in mental health and provides a conceptual framework of the relationships between self-care support, self-care behaviours and strategies, and well-being for the individual. It also highlights limitations in the current evidence base and identifies areas for future research.

show abstract

Service users' views of self-help strategies and research in the UK

Cited by 24 publications

References 17 publications

Systematically searching for and assessing the literature for self-management of chronic pain: a lay users’ perspective

Systematically searching for and assessing the literature for self-management of chronic pain: a lay users’ perspective

Peer support for people with mental illness

Self-care in mental health services: a narrative review

Contact Info

Product

Resources

About