User-Centered Design of the consideRATE Questions, a Measure of People's Experiences When They Are Seriously Ill

Saunders, Catherine; Durand, Marie-Anne; Scalia, Peter; Kirkland, Kathryn B.; MacMartin, Meredith A.; Barnato, Amber E.; Milne, David Wilson; Collison, Joan; Jaggars, Ashleigh; Butt, Tanya; Wasp, Garrett; Nelson, Eugene C.; Elwyn, Glyn

doi:10.1016/j.jpainsymman.2020.08.002

Cited by 8 publications

(28 citation statements)

References 30 publications

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“…Indeed, responsiveness -along with cross-cultural validation -was the property that was least tested among PREMs. Of the 44 PREMs, most were generated in the USA (n = 18) 50,55,58,62,64,66,72,[75][76][77]79,81,82,84,[86][87][88] with smaller numbers emerging from Japan (n = 4) 68,70,83,85 ; Australia (n = 4) 51,54,63,89 ; the UK (n = 3) 57,69,71 ; and the Netherlands (n = 2). 60,90 The remainder were from other high-income Satisfaction with Doctors Questionnaire, 2011 61 Turkey A self-administered questionnaire to determine the expectations and satisfaction levels of Turkish patients receiving palliative care with their doctors and their preferences about death.…”

Section: Quality Appraisalmentioning

confidence: 99%

“…In two PREMs all items 77,88 scored above grade eight, whilst another two contained no items that scored above grade 8. 50,70 Included PREMs were developed for administration to patients (n = 15), 47,52,53,[55][56][57][58][59][60][61][62][63][64][65]84 families (n = 26) 47,60,62,[66][67][68][69][70][71][72][73][74][75][76][77][79][80][81][82][83][85][86][87][88][89] or both (n = 3). 50,51,54 From the 44 PREMs, 827 items assessing patient or family experience of care were available for analysis.…”

Section: Table 3 (Continued)mentioning

confidence: 99%

“…50,70 Included PREMs were developed for administration to patients (n = 15), 47,52,53,[55][56][57][58][59][60][61][62][63][64][65]84 families (n = 26) 47,60,62,[66][67][68][69][70][71][72][73][74][75][76][77][79][80][81][82][83][85][86][87][88][89] or both (n = 3). 50,51,54 From the 44 PREMs, 827 items assessing patient or family experience of care were available for analysis. More than half of the items were designed for use with families compared to patients (n = 534; 65% vs n = 283; 34%).…”

Section: Table 3 (Continued)mentioning

confidence: 99%

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Description of patient reported experience measures (PREMs) for hospitalised patients with palliative care needs and their families, and how these map to noted areas of importance for quality care: A systematic review

et al. 2023

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Background: The global need for focused improvements in palliative care within the acute hospital setting is well noted. A large volume of evidence exists detailing what hospitalised patients with palliative care needs and their families note as important for high quality care. Patient Reported Experience Measures (PREMs) are one mechanism that hospitals could use to inform improvement work. To date there has not been a review of PREMs available for hospitalised patients with palliative care needs and/or their family, nor how they align with noted priorities for high quality care. Aim: To identify and describe PREMs designed for hospitalised patients with palliative care needs and their families; and their alignment with patient and family identified domains for high quality care. Design: A systematic review. Data sources: A systematic search of CINAHL, Medline and PsycInfo was conducted up to September 23, 2022 and supplemented by handsearching article reference lists and internet searches. PREMs written in English and designed for patients with palliative care needs in acute hospitals were eligible for inclusion. Included PREMs were described by: summarising key characteristics; and mapping their items to domains noted to be important to hospitalised patients with palliative care needs and their families informed by outcomes from a published study completed in 2021. Evidence for psychometric properties were reviewed. Results: Forty-four PREMs with 827 items were included. Items per PREM varied from 2 to 85 (median 25, IQR 13–42). Two-thirds ( n = 534, 65%) of the items were designed for families and a third ( n = 283, 34%) for hospitalised patients, and very few ( n = 10, 1%) for both. Sixty-six percent of items measured person-centred care, 30% expert care and 4% environmental aspects of care. Available PREMs address between 1 and 11 of the 14 domains of importance for quality palliative care. PREMs had a median of 38% (IQR 25.4–56.3) of items >Grade 8 measured by the Flesch-Kincaid readability test, with Grade 8 or lower recommended to ensure health information is as accessible as possible across the population. Conclusions: Whilst 44 PREMs are available for hospitalised patients with palliative care needs or their families, a varied number of items are available for some domains of care provision that are important, compared to others. Few are suitable for people with lower levels of literacy or limited cognitive capacity due to illness.

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Section: Quality Appraisalmentioning

confidence: 99%

Section: Table 3 (Continued)mentioning

confidence: 99%

Section: Table 3 (Continued)mentioning

confidence: 99%

See 1 more Smart Citation

Description of patient reported experience measures (PREMs) for hospitalised patients with palliative care needs and their families, and how these map to noted areas of importance for quality care: A systematic review

et al. 2023

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“…In the process of app development, UCD gives priority to the needs of users, which can improve the stickiness and autonomy of users, and bring positive emotional experience to users, so as to meet the needs, preferences, and goals of users, and improve the quality of apps. The World Health Organization recommends that it be integrated into the whole process of an mHealth intervention to ensure the effectiveness of the intervention [ 27 - 30 ]. In recent years, UCD technology has been applied in the development of mHealth apps and has achieved certain effects in the areas of lifestyle intervention for patients with chronic diseases [ 25 ].…”

Section: Introductionmentioning

confidence: 99%

Assessing the Views and Needs of People at High Risk of Gestational Diabetes Mellitus for the Development of Mobile Health Apps: Descriptive Qualitative Study

Duan¹,

Liu²,

Liu³

et al. 2022

JMIR Form Res

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Background Early prevention of gestational diabetes mellitus (GDM) can reduce the incidence of not only GDM, but also adverse perinatal pregnancy outcomes. Moreover, it is of great significance to prevent or reduce the occurrence of type 2 diabetes. Mobile health (mHealth) apps can help pregnant women effectively prevent GDM by providing risk prediction, lifestyle support, peer support, professional support, and other functions. Before designing mHealth apps, developers must understand the views and needs of pregnant women, and closely combine users’ needs to develop app functions, in order to better improve user experience and increase the usage rate of these apps in the future. Objective The objective of this study was to understand the views of the high-risk population of gestational diabetes mellitus on the development of mobile health apps and the demand for app functions, so as to provide a basis for the development of gestational diabetes mellitus prevention apps. Methods Fifteen pregnant women with at least one risk factor for gestational diabetes were recruited from July to September 2021, and were interviewed via a semistructured interview using the purpose sampling method. The transcribed data were analyzed by the traditional content analysis method, and themes were extracted. Results Respondents wanted to develop user-friendly and fully functional mobile apps for the prevention of gestational diabetes mellitus. Pregnant women's requirements for app function development include: personalized customization, accurate information support, interactive design, practical tool support, visual presentation, convenient professional support, peer support, reasonable reminder function, appropriate maternal and infant auxiliary function, and differentiated incentive function.These function settings can encourage pregnant women to improve or maintain healthy living habits during their use of the app Conclusions This study discusses the functional requirements of target users for gestational diabetes mellitus prevention apps, which can provide reference for the development of future applications.

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“…At the institutional (meso) level, aggregated PREMs are used to drive quality improvement initiatives. They are also used to compare the performance of providers (benchmarking), to identify which care aspects insufficiently addressed, and to inform the general public to enable informed patient choice (public reporting) [ 9 , 10 ]. At the national (macro) level, PREMs are used for monitoring responsiveness of health services, for reimbursement decisions and payments models, and for macro-level healthcare performance measurements, for example.…”

Section: Introductionmentioning

confidence: 99%

Quality of Cancer Care in Switzerland: Going Beyond Traditional Quality Indicators by Collecting Patient-Reported Experiences of Cancer Care

Arditi

Peytremann‐Bridevaux

2022

Public Health Rev

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Background: High-quality cancer care should be effective, safe, accessible, efficient, equitable, and responsive to patients’ needs. In Switzerland, information on the safety and effectiveness of cancer care is available, but not on responsiveness. Systematic and comprehensive reports from patients on cancer care are missing and needed to complete the assessment of the quality of cancer care.Evidence: Patient-reported experiences of cancer care are key to evaluate responsiveness of care and drive quality improvement initiatives in oncology practice. Studies have found that responsive care leads to more positive experiences of care, which can lead to more effective treatments and health benefits.Policy Options and Recommendations: Our first recommendation is to develop a position statement on the importance and value of patient-reported experiences of cancer care. Our second recommendation is to systematically collect patients’ experiences of cancer care at the national level, through a dedicated national cancer-specific measurement program or through the integration of patient-reported experiences measures in cancer registries.Conclusion: The systematic collection of patient-reported experiences of cancer care provides essential information on what matters to patients in addition to traditional clinical information, including patients as partners of the overall assessment of healthcare performance.

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User-Centered Design of the consideRATE Questions, a Measure of People's Experiences When They Are Seriously Ill

Cited by 8 publications

References 30 publications

Description of patient reported experience measures (PREMs) for hospitalised patients with palliative care needs and their families, and how these map to noted areas of importance for quality care: A systematic review

Description of patient reported experience measures (PREMs) for hospitalised patients with palliative care needs and their families, and how these map to noted areas of importance for quality care: A systematic review

Assessing the Views and Needs of People at High Risk of Gestational Diabetes Mellitus for the Development of Mobile Health Apps: Descriptive Qualitative Study

Quality of Cancer Care in Switzerland: Going Beyond Traditional Quality Indicators by Collecting Patient-Reported Experiences of Cancer Care

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