Uptake and attrition in couple‐based interventions for cancer: perspectives from the literature

Regan, Tim; Lambert, Sylvie; Kelly, Brian

doi:10.1002/pon.3342

Cited by 39 publications

(39 citation statements)

References 36 publications

(165 reference statements)

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“…On the basis of the aforementioned evidence on individual and dyadic coping, considerable research efforts have focused on the development of coping skills training interventions to maximise the use of adaptive coping by patients and partners and so decrease physical and psychological distress in response to cancer challenges 2 32. Coping skills fostered by these interventions typically include problem solving, symptom management, communication (with family/friends or healthcare professionals) and stress management.…”

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confidence: 99%

A parallel-group, randomised controlled trial of a multimedia, self-directed, coping skills training intervention for patients with cancer and their partners: design and rationale

et al. 2013

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IntroductionCoping skills training interventions have been found to be efficacious in helping both patients and their partners manage the physical and emotional challenges they face following a cancer diagnosis. However, many of these interventions are costly and not sustainable. To overcome these issues, a self-directed format is increasingly used. The efficacy of self-directed interventions for patients has been supported; however, no study has reported on the outcomes for their partners. This study will test the efficacy of Coping-Together—a multimedia, self-directed, coping skills training intervention for patients with cancer and their partners.Methods and analysisThe proposed three-group, parallel, randomised controlled trial will recruit patients diagnosed in the past 4 months with breast, prostate, colorectal cancer or melanoma through their treating clinician. Patients and their partners will be randomised to (1) a minimal ethical care (MEC) condition—selected Cancer Council New South Wales booklets and a brochure for the Cancer Council Helpline, (2) Coping-Together generic—MEC materials, the six Coping-Together booklets and DVD, the Cancer Council Queensland relaxation audio CD and login to the Coping-Together website or (3) Coping-Together tailored—MEC materials, the Coping-Together DVD, the login to the website and only those Coping-Together booklet sections that pertain to their direct concerns. Anxiety (primary outcome), distress, depression, dyadic adjustment, quality of life, illness or caregiving appraisal, self-efficacy and dyadic and individual coping will be assessed before receiving the study material (ie, baseline) and again at 3, 6 and 12 months postbaseline. Intention-to-treat and per protocol analysis will be conducted.Ethics and disseminationThis study has been approved by the relevant local area health and University ethics committees. Study findings will be disseminated not only through peer-reviewed publications and conference presentations but also through educational outreach visits, publication of lay research summaries in consumer newsletters and publications targeting clinicians.Trial registrationAustralian New Zealand Clinical Trials Registry ACTRN12613000491763 (03/05/2013)

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confidence: 99%

A parallel-group, randomised controlled trial of a multimedia, self-directed, coping skills training intervention for patients with cancer and their partners: design and rationale

et al. 2013

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“…The participation rate in the RCT was 62%, which was higher than those in previous studies of in-person interventions for families of children with cancer (40%) [6] and of couple-based interventions for cancer patients (49%) [9]. The reasons for non-participation included lack of need, time, and resources, which may indicate that the intervention is especially relevant for families with psychological symptoms at the time of inclusion and who have the resources to allow them to organize participation of the whole family in up to six sessions (Table 1).…”

Section: Discussionmentioning

confidence: 46%

“…In previous studies, attrition in interventions for couples 3-8 months after diagnosis of cancer was reported to be 25-27% [9]. We had an attrition rate of 12% of families in the control group, which might indicate that it is difficult to fill in a questionnaire about family well-being knowing that it will not result in support.…”

Section: Discussionmentioning

confidence: 98%

FAMily-Oriented Support (FAMOS): development and feasibility of a psychosocial intervention for families of childhood cancer survivors

et al. 2017

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Background: We developed and tested the feasibility of a manualized psychosocial intervention, FAMily-Oriented Support (FAMOS), a home-based psychosocial intervention for families of childhood cancer survivors. The aim of the intervention is to support families in adopting healthy strategies to cope with the psychological consequences of childhood cancer. The intervention is now being evaluated in a nationwide randomized controlled trial (RCT). Methods and design: FAMOS is based on principles of family systems therapy and cognitive behavioral therapy, and is delivered in six sessions at home. Families were recruited from all four pediatric oncology departments in Denmark after the end of intensive cancer treatment. We evaluated the feasibility of the intervention and of a RCT design for comparing the intervention with usual care. The evaluation was conducted among families enrolled in the study by tracking procedures and parents' evaluations.Results: A total of 68 families (68 mothers, 60 fathers, 68 children with cancer and 73 siblings) were enrolled, with a participation rate of 62% of families. Fathers were highly represented (88% of families); also families with single parents (12%) and parents with basic education (7-12 years of primary, secondary, and grammar school education) were represented (12%). The dropout rate was 12% of families (all in the control group), and two families did not complete the intervention because of relapse. Evaluation by parents in the intervention group showed overall satisfaction with the format, timing, and content of the intervention. Conclusion:The results indicate that the FAMOS intervention is feasible in terms of recruitment, retention, and acceptability. The effects of the intervention on post-traumatic stress, depression, anxiety, family functioning, and quality of life will be reported after the nationwide RCT has been completed.

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“…Time constraints may limit the participation of caregivers in intervention studies (16)(17)(18)(19)(20) . This population experiences significant demands for their time and attention, for their care duties and other commitments, which generate feelings of overload (21) , a lack of time (22) , and a lack of energy or motivation to take on additional tasks (22) , as is the case with intervention programs.…”

Section: Identifying the Existing Evidencementioning

confidence: 99%

Designing a telephone intervention program for family caregivers

Díaz

Cruz

2018

Rev. esc. enferm. USP

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Objective Describing the development process of a nursing intervention program to promote the adaptation of family caregivers for people with chronic diseases in Colombia and Brazil. Method A developmental study in which an intervention program was created as proposed by the UK Medical Research Council for developing and evaluating complex interventions. Results The program was organized into five weekly sessions of 40 minutes duration applied over the telephone, which integrated the activities of Caregiver Support and Improvement in Coping. Conclusion Following the recommendations of the UK Medical Research Council allowed designing an intervention program of high methodological rigor based on existing scientific evidence, and based on a theoretical model from the nursing discipline which will increase the understanding of their mechanisms of action in improving the well-being of family caregivers.

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Uptake and attrition in couple‐based interventions for cancer: perspectives from the literature

Cited by 39 publications

References 36 publications

A parallel-group, randomised controlled trial of a multimedia, self-directed, coping skills training intervention for patients with cancer and their partners: design and rationale

A parallel-group, randomised controlled trial of a multimedia, self-directed, coping skills training intervention for patients with cancer and their partners: design and rationale

FAMily-Oriented Support (FAMOS): development and feasibility of a psychosocial intervention for families of childhood cancer survivors

Designing a telephone intervention program for family caregivers

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