Understanding the experiences of caregivers of children with tuberculosis in directly observed therapy

Silva, Thatiana de Medeiros Vale da; Santos, Maria Áurea dos; Almeida, Fabiane de Amorim

doi:10.1590/s0080-623420140000800007

Cited by 9 publications

(25 citation statements)

References 5 publications

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“…The fact that the child does not fit the normality standards leads the family members to great surprise and shock due to the contact with the new, feelings of guilt and fear due to the lack of knowledge about the pathology and concern about the future (20)(21) .…”

Section: Discussionmentioning

confidence: 99%

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Parental care for infants with feeding tube: psychosocial repercussions

et al. 2020

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Objectives: to understand the psychosocial repercussions experienced by caregiving parents, resulting from care for the child with dysphagic cleft lip and palate. Methods: qualitative study, developed in a tertiary hospital in September 2016. The sample defined by theoretical saturation consisted of seven mothers. Data collection was performed by unstructured interview, being audio-recorded and fully transcribed. Symbolic Interactionism was used as theoretical framework, and Thematic Content Analysis as methodological framework. Results: the following themes emerged: diagnosisimpact and coping; coping with overload and stress; interaction between caregivers as an acceptance and coping strategy; impact on family and social life of caregivers; and curiosity coping, and family and community prejudice. Final considerations: despite the physical and emotional overload, the mother figure plays the main and determining role in care, reflecting the complexity of care.

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Section: Discussionmentioning

confidence: 99%

“…Generally, care falls almost exclusively on the primary caregiver, full-time, leading him or her to leave home work. There is an impact on the family's financial condition, reducing their leisure opportunities and may have negative impacts on their affective relationships and social isolation (21) .…”

Section: Discussionmentioning

confidence: 99%

Parental care for infants with feeding tube: psychosocial repercussions

et al. 2020

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“…This study substantially adds to the yet limited body of evidence regarding paediatric TB from the socio-behavioural perspective[ 28 – 32 ]. Overall, the results of this study indicate very limited awareness of symptoms compatible with paediatric TB amongst caretakers of small children in Southern Mozambique, including those vulnerable or exposed to TB.…”

Section: Discussionmentioning

confidence: 99%

Caretakers' perspectives of paediatric TB and implications for care-seeking behaviours in Southern Mozambique

et al. 2017

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BackgroundTuberculosis (TB) remains an important public health concern, especially in poorly resourced settings. TB diagnosis is challenging, particularly for children, who are the most vulnerable to its′ impacts. Lack of knowledge and awareness of the disease compromises prompt diagnosis and treatment compliance.ObjectiveTo gain insights regarding caretakers′ knowledge of the aetiology and prevention of paediatric TB in southern Mozambique, to describe their care-seeking behaviours and to assess the acceptability of diagnostic procedures.MethodsA total of 35 caretakers were interviewed, all of which had children with TB compatible symptoms. Eleven were caretakers of children diagnosed with TB at the health facility, 11 of children for whom TB was excluded as a diagnosis at the health facility and 13 of children with TB compatible symptoms identified in the community. The first two groups took part in a TB incidence study, while the third group did not. All underwent the same semi-structured interviews, the results of which were analysed and compared using content analysis.ResultsEven when confronted with signs suggestive of TB, most caretakers never suspected it or misinterpreted the signs, even among caretakers with TB and TB contacts. There was limited knowledge of TB, except among those undergoing treatment. The transgression of social norms was often presented as an explanation for TB in parallel to medically sound causes. The use of traditional care for prevention is widespread, but it varied for treatment purposes. TB diagnostic procedures were considered painful but were unanimously tolerated.Conclusions and significanceMisconceptions of paediatric TB, associated complex care-seeking itineraries and negative feelings of the diagnostic procedures may result in delays, low adherence and lost to follow-up, which needs to be addressed by adequately framed health promotion approaches.

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“…Furthermore, it is necessary to guide the caregiver about the adverse effects that may occur as a result medications [13]. According to the study conducted with caregivers of children with TB, knowledge about the treatment and pathophysiology of the disease favors treatment adherence [14].…”

Section: Discussionmentioning

confidence: 99%

“…It is crucial for the health team to understand this situation. Caregiver experience contributes to the continuity of treatment and reduces the risk of abandonment prior to completion of interventions [14].…”

Section: Discussionmentioning

confidence: 99%

Risk areas for tuberculosis among children and their inequalities in a city from Southeast Brazil

et al. 2020

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Background The objective of the study was to identify areas of risk for the appearance of tuberculosis in children and their association with social inequalities in a municipality in southeastern Brazil. Methods Ecological study conducted in Ribeirão Preto, Brazil. To identify areas of spatial risk for tuberculosis in children, we used spatial scanning statistics. To analyze the association of cases of childhood tuberculosis with social vulnerability, we used the Social Vulnerability Index of São Paulo, and four explanatory statistical models were listed. Results There were 96 cases of childhood tuberculosis, of which 90 were geocoded through a process of converting addresses to geographic coordinates. A risk area was identified in the municipality, where children under 15 years old have 3.14 times greater risk of contracting tuberculosis than those living outside this area. The variables identified as risk factors were: number of private and collective households, proportion of children aged 0 to 5 years in the population, proportion of households without per capita income, and the proportion of private households with monthly nominal incomes of up to one quarter of wage minimums. The variables identified as protection factors were the proportion of women under the age of 30 years responsible for the household under and women responsible for the household with an average income over BRL 2344. Conclusion The study showed areas of risk for the occurrence of tuberculosis in children. The study is in line with the End TB Strategy and the 2030 Agenda, which aim to support strategic actions and, therefore, save the lives of children through the systematic, intensified, and comprehensive identification of children with tuberculosis respiratory symptoms in the community.

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Understanding the experiences of caregivers of children with tuberculosis in directly observed therapy

Cited by 9 publications

References 5 publications

Parental care for infants with feeding tube: psychosocial repercussions

Parental care for infants with feeding tube: psychosocial repercussions

Caretakers' perspectives of paediatric TB and implications for care-seeking behaviours in Southern Mozambique

Risk areas for tuberculosis among children and their inequalities in a city from Southeast Brazil

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