Understanding social stigma in women with hepatitis C

Grundy, Gillian; Beeching, Nicholas

doi:10.7748/ns2004.10.19.4.35.c3720

Cited by 44 publications

(36 citation statements)

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“…Similarly, a fear of transmitting infection to others by sharing things such as eating utensils, cups, glasses and towels was expressed by 68% of our cases, indicating poor knowledge about transmission of HBV/HCV. Similar findings were reported in other studies (14,16,21).…”

Section: Discussionsupporting

confidence: 82%

“…The percentage reporting avoidance of sexual intercourse from another study in Pakistan and a study in the United States were 27% and 17% respectively (14,15). A study describing social stigma in HCV-positive women concluded that women were concerned about sexual transmission, pregnancy and child care affecting their close relationships and their expected gender role (16). Although the literature shows a low risk of sexual transmission in intra familial relations (17) misconceptions of disease spread via sexual relationships with a partner is still prevalent in societies.…”

Section: Discussionmentioning

confidence: 99%

“…Stigma related to hepatitis occurs in both sexes; however, female patients have been reported as more concerned with family and social relations, sexual transmission and pregnancy and child care as compared with males and this concern affects their relationships and ability to fulfil their gender roles (16). When the experiences of male and female patients were compared in our study, males were more affected than females were in term of changes in lifestyle, fear of disease transmission and changes in relationship with the spouse.…”

Section: Discussionmentioning

confidence: 99%

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Experiences of stigma among hepatitis B and C patients in Rawalpindi and Islamabad, Pakistan

Rafique

Saqib

Siddiqui

et al. 2014

East Mediterr Health J

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Hepatitis B and C are chronic diseases with mental and social impacts which can result in poor quality of life. The aim of this study was to determine the experiences of stigma in a sample of hepatitis B-and C-positive patients in Pakistan. In a cross-sectional study, 140 inpatients and outpatients from 3 tertiary-care hospitals in Islamabad and Rawalpindi answered a semi-structured questionnaire about stigma experienced from relatives, friends, spouse and health-care providers, and about work/financial problems. The majority of patients (75%) said they had had to change their lifestyle, and significantly more were males than females. Stigma was marked in terms of disease transmission, with 66% of patients fearing that they could transmit the infection to others; 19% said that family members avoided sharing towels, soap and eating and drinking utensils. Marital relationships were affected for 51% of married patients who had told their spouse. Patients' comments showed a sense of family and societal discrimination resulting in feelings of disappointment and isolation.1 Pakistan Medical Research Council, Islamabad, Pakistan (Correspondence to M.A.N. Saqib: arif289@gmail.com

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Section: Discussionsupporting

confidence: 82%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Experiences of stigma among hepatitis B and C patients in Rawalpindi and Islamabad, Pakistan

Rafique

Saqib

Siddiqui

et al. 2014

East Mediterr Health J

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“…In Israel, the percentage of nurses who shun contact (77.3 %) with HIV, HBV, and HCV infected patients is much higher (15), but this may mostly be related to the fear of HIV/AIDS (17). These results however confi rm that HCV patients are stigmatised (18)(19)(20)(21) and that this kind of intolerance leads adversely affects the quality of patient care (22).…”

Section: Knowledge About Hcv Infectioncontrasting

confidence: 44%

Knowledge of HCV Infection Among Nursing Students of the Medical College of Bitola

Prodanovska-Stojcevska

Isjanovska

Popova-Ramova

2010

Archives of Industrial Hygiene and Toxicology

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Healthcare workers are at risk of occupationally-acquired viral infections such as human immunodefi ciency virus (HIV), hepatitis B (HBV), and hepatitis C (HCV). HCV is parenterally transmitted and has been found in every part of the world. This cross-sectional study was conducted to establish the awareness and attitude about HCV infections among 210 full-time and part-time nursing students of the Medical College in Bitola, Macedonia 'from May to June 2009. For this purpose we used a self-administered questionnaire which consisted of three parts. The fi rst included demographic data, the second included questions about causes of infection, mode of transmission, symptoms, acute and chronic hepatitis, and prevention, and the third questions about students' attitude toward patients with suspect or confi rmed HCV infection. Full-time students showed higher HCV awareness (84 %) than part-time students (69 %). 58 % of the full-time and 79 % of the part-time students said they would not avoid professional contact with suspect or HCV infected patients. Our study has shown that even though both groups of students have a suffi cient knowledge about HCV to face future challenges, they need further education on the subject. Practical recommendations would help to reduce stigmatising behaviour still further. KEY WORDS: bloodborne pathogens, healthcare workers, occupational riskProdanovska-Stojčevska V, et al.

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“…However, even HCV-infected individuals outside of treatment have lower quality of life scores compared to uninfected controls [7][8][9] . Negative social interactions may play a unique role as a determinant of quality of life in patients with HCV, as they often face stigmatization in their professional and private environment [10][11][12] . Patients living with AIDS and stigmatizing diseases such as tuberculosis and leprosy experience a deterioration or even complete collapse of their social support network [13][14][15] .…”

Section: Introductionmentioning

confidence: 99%

Mental and physical symptoms associated with lower social support for patients with hepatitis C

Blasiole¹,

Shinkunas²,

LaBrecque³

et al. 2006

WJG

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by others (19%). Nearly one fifth of the patients did not share information about their disease with others to avoid being stigmatized. Lower levels of social support were significantly associated with living alone, being unemployed, being excluded from antiviral therapy, having psychiatric comorbidities, contracting HCV through intravenous drug use, having high levels of anxiety and depression as measured by the HAD and negative mood state as measured by the SIP. Patients reporting lower levels of social support also noted more physical symptoms as measured by the SIP. CONCLUSION:Patients with hepatitis C often face significant social problems, ranging from social isolation to familial stress. The most common concerns reflect a limited insight of patients and their relatives and friends about the disease, the risk factors for its spread, and about potential consequences. Our data suggest that educational interventions targeting support persons and the stressors identified in our findings may lessen or alleviate the social strains patients with hepatitis C experience. INTRODUCTIONHepatitis C virus (HCV) infection, a common and slowly progressing liver disease, negatively affects quality of life. Most studies addressing the important impact of HCV focus on patients undergoing antiviral therapy [1][2][3][4][5][6] . However, even HCV-infected individuals outside of treatment have lower quality of life scores compared to uninfected controls [7][8][9] . Negative social interactions may play a unique role as a determinant of quality of life in patients with HCV, as they often face stigmatization in their professional and private environment [10][11][12] . Patients living with AIDS and stigmatizing diseases such as tuberculosis and leprosy Abstract AIM: To systematically examine the impact of the hepatitis C virus (HCV) diagnosis on patients' level of social support in a large-scale study. METHODS:Patients evaluated and treated for HCV in a tertiary referral center were enrolled in a cross-sectional study. Demographic data, functional and emotional status as measured by the Hospital Anxiety and Depression Scale (HAD) and the Sickness Impact Profile (SIP), severity of liver disease, mode of acquisition, and physical and psychiatric comorbidities were collected from patients or abstracted from the medical record. All participants completed a semi-structured interview, addressing questions of social support. RESULTS:A total of 342 patients (mean age 45.2 years; 37% women) were enrolled. Ninety-two (27%) patients described lower levels of support by family and friends. Nearly half of the participants (45%) noted the loss of at least one relationship due to the disease. Fears related to transmitting the disease (25%) were common and often associated with ignorance or even discrimination

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Understanding social stigma in women with hepatitis C

Cited by 44 publications

References 0 publications

Experiences of stigma among hepatitis B and C patients in Rawalpindi and Islamabad, Pakistan

Experiences of stigma among hepatitis B and C patients in Rawalpindi and Islamabad, Pakistan

Knowledge of HCV Infection Among Nursing Students of the Medical College of Bitola

Mental and physical symptoms associated with lower social support for patients with hepatitis C

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