Understanding Experiences of Spousal Caregivers with Health as Expanding Consciousness

ObjectivesTo provide a comprehensive synthesis of informal caregivers’ experiences of caring for a significant other following discharge from cardiac surgery.DesignSystematic integrated review without meta-analysis.Data sourcesA bibliographic search for publications indexed in six databases (Cochrane Library, CINAHL, MEDLINE, EMBASE, AMED and PsycINFO), including a scan of grey literature sources (GreyNet International, Google Scholar, Web of Science, WorldCat and the Clinical Trials Registry) was conducted in October 2018.Eligibility criteria for selecting studiesStudies were included if they described views and perspectives of informal caregivers of cardiac surgery patients (non-intervention studies (qualitative and quantitative)), and the effectiveness of interventions to evaluate support programme for informal caregivers of cardiac surgery patients (intervention studies).ResultsOf the 4912 articles identified in searches, 42 primary research studies were included in a narrative synthesis with 5292 participants, including 3231 (62%) caregivers of whom 2557 (79%) were women. The median sample size across studies was 96 (range 6–734). Three major themes emerged from the qualitative study data: (1) caregiver information needs; (2) caregiver work challenges and (3) caregivers adaption to recovery. Across the observational studies (n=22), similar themes were found. The trend across seven intervention studies focused on caregiver information needs related to patient disease management and symptom monitoring, and support for caregivers to reduce symptoms of emotional distress.ConclusionInformal caregivers want to assist in the care of their significant others after hospital discharge postcardiac surgery. However, caregivers feel insecure and overwhelmed and they lack clear/concise discharge information and follow-up support during the early at-home recovery period. The burden of caregiving has been recognised and reported since the early 1990s, but there remains a limited number of studies that assesses the effectiveness of caregiver interventions.PROSPERO registration numberCRD42018096590.

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“…Afraid to leave their spouse alone and uncertain about how to deal with postoperative depression (MacLeod22).…”

Section: Resultsmentioning

confidence: 99%

Experiences of informal caregivers after cardiac surgery: a systematic integrated review of qualitative and quantitative studies

et al. 2019

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“…In a previous qualitative study by this author, communication, collaboration, and social determinants were found to be potent intervening variables effecting the practice environment (Testa & Emery, 2014). and the process is dynamic and transformative for both nurse and patient (Jones, 2006;MacLeod, 2011;Smith, 2011;Watson & Smith, 2004).…”

Section: Study Findings Theoretical Representation and Extant Litermentioning

confidence: 89%

“…This involves knowing the person, a process which is mutual, dynamic, and transformative for both nurse and patient. As the relationship between nurse and patient evolves, the nurse comes to know the patient as a whole person, with disease as a manifestation of only a part of the individual experience (Jones, 2006;MacLeod, 2011;Smith, 2011). When care is truly person-centered, the nurse and patient are part of a mutual partnership grounded in trust and truth (Jones, 2013).…”

Section: Introductionmentioning

confidence: 99%

“…Based Care (RBC) emphasizes the importance of relationship to patient centered care. RBC includes knowing the patient as a whole person; respecting individual needs and preferences; self -awareness; understanding the meaning that illness holds to the person; intentional presence; active listening; and the importance of caring and authenticity in relationships with patients, families, and colleagues (Gordon, 1994;Jones, 2013;Koloroutis, 2004;MacLeod, 2011;Newman, 2008;Smith 2011;Watson & Smith 2004;Willis, et al, 2008).…”

Section: Introductionmentioning

confidence: 99%

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Development and Psychometric Evaluation of the Nurse's Perception of the Relationship-Based Care Environment Scale

Testa

2017

International Journal for Human Caring

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The purpose of this study was to define, develop, and psychometrically evaluate a scale designed to measure Nurse's Perception of the Relationship Based Care Environment. Background: Relationship is a complex multidimensional concept. It is a critical component of professional practice and core to the interaction between nurse and patient. While there are a number of scales available to measure different dimensions of relationships between nurses and other groups there is no one scale that captures multiple dimensions. Methods: Based on a review of the literature and an earlier qualitative study, a theoretical representation was developed. This representation became the framework for development of elements and items for the NPRBCE scale. The content validity of the NPRBCE scale was determined by an expert panel of Registered Nurses. Four hundred and seventy three Registered Nurse participants completed the survey. Analysis: Data were subjected to Principal Components Analysis and Cronbach's alpha was computed to determine reliability of the scale as a whole and each of the components of the scale. Results: The final solution was a five component 56-item scale. The five components include: nurse/ other discipline; nurse/organization; nurse/ nurse; nurse/ patient-knowing the patient; and nurse/patient-respecting the patient. The scale as a whole and each of the resulting components were found to be reliable. The components were parsimonious and interpretable.

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“…The five most common conditions reported include hypertension, high cholesterol chronic back pain, heart disease, and arthritis [6]. When family members assume the caregiver role, they are particularly vulnerable to physical exhaustion and emotional constraints [7]. Spousal caregivers perceive worse physical health and depressive symptoms than other family caregivers [8].…”

Section: Introductionmentioning

confidence: 99%

A Model of Health for Family Caregivers of Elders

Weierbach¹,

Chen²

2016

Healthcare

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Family members who provide care to their loved ones experience changes in their own health. The caregiver health model (CGHM) is a new model that identifies health holistically and identifies four determinant(s) that contribute to the health status of the family caregiver. The purpose is to introduce the CGHM: Hypothesis 1: the determinants of health in the CGHM contribute to the health of the Caregiver, Hypothesis 2: the determinants of health contribute to changes in the caregivers’ health at 8 and 16 weeks, and Hypothesis 3: a change in health occurs from baseline to 8 and 16 weeks. Methods: A descriptive, longitudinal design used three data collection points and five survey instruments. Community recruitment (N = 90) occurred through word of mouth and newspapers. Inclusion criteria consisted of being a family caregiver, living in a rural residence, and providing care to elders with necessary activities of daily living (ADLs) and/or instrumental ADLs (IADLs). Following a participant generated phone call to provide consent, caregivers received an initial study packet, additional packets were sent upon return of the previous packet. Analysis for the three hypotheses included multiple backwards stepwise linear regression, generalized estimating equations (GEE), and analysis of variance (ANOVA) α = 0.05. Results: A significant decrease in mental (p < 0.01) but not physical health at 8 weeks (p = 0.38) and 16 weeks (p = 0.29) occurred over time. Two determinants displayed significant (p < 0.05 or less) changes in mental and/or physical health at one or more time points. Study limitations include caregiver entry at varying times and self-report of elder nursing needs and medical conditions. Conclusions: Findings support two of the four determinants contributing to caregiver health.

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Understanding Experiences of Spousal Caregivers with Health as Expanding Consciousness

Cited by 10 publications

References 15 publications

Experiences of informal caregivers after cardiac surgery: a systematic integrated review of qualitative and quantitative studies

Experiences of informal caregivers after cardiac surgery: a systematic integrated review of qualitative and quantitative studies

Development and Psychometric Evaluation of the Nurse's Perception of the Relationship-Based Care Environment Scale

A Model of Health for Family Caregivers of Elders

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