A Model of Health for Family Caregivers of Elders

Weierbach, Florence M.; Chen, Yan

doi:10.3390/healthcare5010001

Cited by 6 publications

(6 citation statements)

References 28 publications

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“…The 10-item GHS (Hays et al, 2009) is designed to assess general domains of health and functioning, including overall physical health, mental health, social health, pain, fatigue, and overall perceived quality of life. The GHS demonstrated good reliability (α = .81) in a study of family caregivers of elders (Weierbach & Cao, 2016).…”

Section: Methodsmentioning

confidence: 99%

Improving Caregiver Health through Systematic Assessment and a Tailored Plan of Care

et al. 2021

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Caregivers often experience strain and negative effects on their well-being. We tested the effects of a caregiver assessment and tailored care plan for caregivers of patients transitioning home from an inpatient rehabilitation facility (IRF), a study involving two groups: usual care ( n = 225) (preimplementation) and intervention (postimplementation) ( n = 215). Caregivers in the intervention group were assessed using the 25-item self-reported Preparedness Assessment for the Transition Home during the IRF stay. A tailored care plan was implemented in response to the assessment. Caregivers in both groups completed the Modified Caregiver Strain Index and Global Health Scale at 30- and 90-day postdischarge. After adjusting for baseline and demographics, caregivers in the intervention group reported lower strain ( p < .01) and better overall health ( p < .05) at 30-day post-IRF discharge, relative to usual care. Implementing a systematic caregiver assessment and tailored care plan in the IRF may mitigate the adverse effects of caregiving.

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Section: Methodsmentioning

confidence: 99%

Improving Caregiver Health through Systematic Assessment and a Tailored Plan of Care

et al. 2021

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“…Structural equation models in mplus 8 [37] were used to examine the association between a caregiver's involvement in caregiving tasks and social support and a caregiver's engagement in self-care activities, as well as to examine whether self-care activity served as a mediator in the relationship between social support and caregiver outcomes. Latent variables were used for social support (three indicators: received support, social interaction, and satisfaction of support), self-care activity (three indicators: physical health checkups, restorative activities, and sleep), and caregiver outcomes (three indicators: caregiver burden, positive perceptions of caregiving, and depression) in all the structural equation models.…”

Section: Analysesmentioning

confidence: 99%

Caring for Dementia Caregivers: Psychosocial Factors Related to Engagement in Self-Care Activities

Lin,

Moxley,

Czaja

2023

Behavioral Sciences

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Caregivers often prioritize the needs of the care recipient and neglect their own health needs. It is imperative to understand the factors related to their self-care practices and engagement in self-care activities. The present study examined the extent to which dementia caregivers engaged in self-care activities, how this varied depending on caregiver characteristics, and whether self-care engagement mediated the relationship between social support and caregiver outcomes. The study utilized baseline data from a diverse sample of dementia caregivers (N = 243) who participated in a randomized trial evaluating a psychosocial technology-based caregiver intervention. Results showed that the dementia caregivers engaged in low levels of self-care activities and that their engagement varied based on the caregivers’ background characteristics (age, gender, race/ethnicity, relationship to the care recipient, and employment status). Less caregiver involvement (e.g., less ADL/IADL help provided and more caregiver preparedness) and more social support predicted higher self-care activity engagement. Self-care activity engagement served as a mediator, such that more social support predicted more self-care activities, which, in turn, were associated with more positive perceptions of caregiving and less caregiver burden and depression. The findings suggest a need for interventions that promote self-care engagement among dementia caregivers and underscore the importance of social support and caregiver preparedness to caregivers’ well-being.

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“…To synthesize the review findings, we first listed all constructs assessed in included studies. These were then grouped for overlap or relatedness to other constructs along the Caregiver Health Model, 21 originally developed for family caregivers of elders. This model places caregiver health at the center, impacted by caregiver needs, tasks, beliefs and attitudes, and health promotion behaviors (eg, nutrition, physical activity, and other lifestyle choices) as determinants, and considers this within the environmental context.…”

Section: Synthesismentioning

confidence: 99%

“…The CGHM was used to map constructs and outcomes found in included studies. 21 While not developed for neurooncology caregiving, the model approaches caregivers comprehensively, placing their health at the center impacted by needs, tasks, beliefs and attitudes, and health promotion behaviors while taking environmental factors into account. There is a noticeable gap in the neurooncology caregiver literature related to health promotion behaviors.…”

Section: Boele Et Al Caregiver Outcome Measuresmentioning

confidence: 99%

Family caregiver constructs and outcome measures in neuro-oncology: A systematic review

Boele

Hertler

Dirven

et al. 2022

Neuro-Oncology Practice

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BACKGROUND As a first step to reach consensus on the key constructs and outcomes in neuro-oncology caregiver research, we performed a systematic review to evaluate the constructs that are being evaluated in research studies and how these have been assessed. METHODS All peer-reviewed publications with primary data reporting on outcomes of family caregivers of adult primary brain tumour patients were eligible. Electronic databases PubMed/ Medline, Embase, Web of Science, Emcare, Cochrane Library, and PsycINFO were searched up to September 2021. Using Covidence, title and abstract screening, full text review, and data extraction were done by two researchers independently, with a third guiding consensus. Constructs as reported in each study, and how these were assessed were the primary result. RESULTS Searches yielded 1090 unique records, with 213 remaining after title/abstract screening. Of these, 157 publications met inclusion criteria, comprising 120 unique studies. These originated from 18 countries and were published between 1996-2022. Most were observational (75%) cross-sectional (61%) studies, reporting on quantitative methods (62%). Twenty-seven different constructs were assessed and mapped along the Caregiver Health Model categories: caregiver health, needs, tasks, beliefs and attitudes, and environment. Seventeen questionnaires were used > 2 times to measure the same construct, with the vast majority of questionnaires only used across one or two studies. CONCLUSIONS Neuro-oncology caregiving research is a field gaining traction, but lags behind in clear definition of key constructs, and consistency in assessment of these constructs. Developing consensus or guidance will improve comparability of studies, meta-analyses, and advance the science more quickly.

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A Model of Health for Family Caregivers of Elders

Cited by 6 publications

References 28 publications

Improving Caregiver Health through Systematic Assessment and a Tailored Plan of Care

Improving Caregiver Health through Systematic Assessment and a Tailored Plan of Care

Caring for Dementia Caregivers: Psychosocial Factors Related to Engagement in Self-Care Activities

Family caregiver constructs and outcome measures in neuro-oncology: A systematic review

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