Understanding care closer to home for ill children and young people

Abstract

CCTH may be an effective and feasible option for children and young people who are ill.

Home care services for sick children: Healthcare professionals’ conceptions of challenges and facilitators

“…Still, in the present study, the number of referred paediatric patients remained low and occurred late in the illness which HP found puzzling. Speculations on whether the paediatricians were reluctant to let go of the children was also found among general practitioners in the UK (Spiers et al., ). How to increase the referral rate of paediatric patients to HCS would be an important area for further studies as children should be hospitalised only when care cannot be provided anywhere else (European Association for Children in Hospital ).…”

“…Thus, home care professionals (HP) often care for adults but have less experience of care for sick children (National Board of Health and Welfare , Parker et al., ). This might influence the quality of care for children in HCS (Jünger, Vedder et al., ; Nielson, Kai, McAurthur, & Greenfield, ) and affect the HP's conceptions of working with sick children and their families (Spiers et al., ).…”

“…A study with nurses providing adult palliative care in rural municipalities in Scotland showed that they felt unsure when providing palliative care to children as the number of paediatric patients was low, periods of care short and the structure of care confusing (Reid, ). In a British national survey, HP working in HCS expressed passionate involvement when providing care for ill children in their homes but also difficulties in finding resources such as finding enough time (Spiers et al., ). Nurses in a Swedish municipality‐based HCS described that confidence in their professional role and a trusting relationship with the families was important to be able to care for children with chronic or long‐term illnesses in their homes (Samuelson, Willen, & Bratt, ).…”

Children's and parents' experiences of home care provided by hospital staff: A scoping review

“…Reporting Method: In this scoping review, we have adhered to the Preferred Reporting Items for Systematic reviews and Meta Analyses Extension for Scoping Reviews checklist. Spiers et al, 2012). Services may also be offered in the municipality, by community-based healthcare teams (Castor et al, 2017).…”

“…Paediatric home‐care services (HCS) are defined as care that ‘ substitutes for acute hospital review and/or admission by providing clinical review, support, education and management of the acutely or chronically unwell child in their own home ’ (Parab et al., 2013). There are different models for organising, delivering and financing home care for children internationally and within countries (Parab et al., 2013; Spiers et al., 2012). Services may also be offered in the municipality, by community‐based healthcare teams (Castor et al., 2017).…”