Home care services for sick children: Healthcare professionals’ conceptions of challenges and facilitators

Castor, Charlotte; Hallström, Inger; Hansson, Helena; Landgren, Kajsa

doi:10.1111/jocn.13821

Cited by 17 publications

(57 citation statements)

References 37 publications

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“…They must be aware of numerous training strategies, should continuously develop them, and recognize available social resources (52,54,55). Unfortunately, this infrastructure is missing and due to a shortage of nurses, economic problems, and the introduction of cheap manpower, sometimes even people other than nurses are employed to provide home care services (4,6,9,12,16,18,21). The presence of these ineligible individuals and their improper care will lead to people's mistrust of nursing and care (23,37).…”

Section: Discussionmentioning

confidence: 99%

“…In Sweden, Castor et al studied home care services for children and reported certain teamwork inadequacies. The research claimed that sometimes caregivers lack the necessary skills to care for patients; hence, they are not sure what the right method of care is in particular circumstances (6). Moreover, Febles et al focused on immigrants and reported cultural and linguistic differences along with budget deficits, as challenges faced by home care services; they considered communication barriers as the most crucial challenge (7).…”

Section: Contextmentioning

confidence: 99%

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Challenges and Barriers Faced by Home Care Centers: An Integrative Review

et al. 2019

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Context:Increasing life expectancy and the rise in the cost of long-term care at hospitals have led global healthcare systems towards offering home care services. Thus, identifying barriers to this valuable type of care can be an effective step in achieving health-related goals. This study was carried out to determine the challenges faced by home care centers.Evidence Acquisition: This research was conducted as an integrative review in 2018, whereby a wide range of keywords, such as home care, home care nursing, challenges, barriers, and their equivalents in Persian language were used to retrieve related articles. Certain valid Persian and international databases, including EBSCO, EMBACE, SienceDirect, Scopus, MEDLINE, Google Scholar, Iran-Doc, CINAHL, IranMedex, Magiran, and SID were utilized in order to search for relevant articles. Among papers written in Persian or English, which were useful for the purpose of this study with their full text being accessible, 39 articles were chosen and analyzed using the Broome (indirect cohort) method. Results:In the process of data analysis, the challenges faced by home care centers were revealed. They included non-application of standard and integrated methods for home care nursing services, deficiency in intra-and extra-organizational communications, absence of proper organizational infrastructure, lack of adequate and effective human resources, absence of legal and security supports, economic problems, information poverty, cultural constraints and ignoring ethical issues. Conclusions:There are many challenges and barriers to home care services; these are often intertwined and each is the cause or effect of others. This wide range of challenges and obstacles require coordination, as well as a comprehensive and accurate programming.

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Section: Discussionmentioning

confidence: 99%

Section: Contextmentioning

confidence: 99%

Challenges and Barriers Faced by Home Care Centers: An Integrative Review

et al. 2019

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“…Family members experienced that staff kept focus on the ill child when the ill children became active partners in the planning of care while the needs of other family members were also taken into consideration, consistent with child‐centred care (Coyne et al., ). This is interesting, as home‐care professionals have expressed feelings of inadequacy due to limited paediatric experience (Castor et al., ; Chong & Abdullah, ; Samuelson et al., ).…”

Section: Discussionmentioning

confidence: 99%

“…Accessibility varies from 24 hr a day to a couple of hours a week (Parab et al, 2013;Parker et al, 2012) and can be organised for specific groups of patients, for example, children with a specific disease or for both children and adults regardless of illness (Parker et al, 2012). HCS can be provided by the hospital or the primary healthcare, and when HCS is provided by primary healthcare, children may constitute a minority of the patients and professional paediatric competence may be limited (Castor, Hallstrom, Hansson, & Landgren, 2017;Parker et al, 2012;Samuelson, Willen, & Bratt, 2015). In Sweden, accessibility to HCS for children is uneven (National Board of Health and Welfare, 2008), and when available, it can be provided by the hospital or by either county-or municipalitybased primary healthcare.…”

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confidence: 99%

A possibility for strengthening family life and health: Family members’ lived experience when a sick child receives home care in Sweden

Castor

Landgren

Hansson

et al. 2017

Health Soc Care Community

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Families often prefer home care to hospital care, and home-care services for ill children are increasing worldwide with limited knowledge of families' needs during curative and palliative home care. The aim of this study was to elucidate family members' lived experience when a sick child received home care from county-based primary healthcare services. A descriptive qualitative design was chosen and 12 families including sick children receiving home care and their mothers, fathers and siblings in the south of Sweden were interviewed between December 2015 and January 2017. The transcribed interviews were analysed using a hermeneutic phenomenological approach. The family members' lived experience was described in three essential themes:"Strengthening family life" relates to how home care induced freedom and luxury in a strained period of life and supported the families' everyday life. Usual social activities and relations were maintained as time and energy was saved when receiving home care. "Promoting health" relates to how the family members' burden of illness decreased as the child's signs of illness alleviated and the well-being of the whole family increased when the child received care in the home. This provided a peaceful respite for family members' psychosocial recovery. The third theme, "Creating alliances," relates to the importance of creating trustful alliances for communicating participation in care. If trustful alliances were not created, parents felt an overwhelming responsibility and family members became anxious. The findings suggest that care in the family's home is a useful complement to hospital care. Home care should be given with close attention to family members' needs and conditions, as positive effects of home care might be jeopardised when expectations and possibilities are not successfully shared. K E Y W O R D Schild, family members' lived experience, hermeneutic phenomenology, home-care services, paediatric careThis is an open access article under the terms of the Creative Commons Attribution-NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.

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“…In child health, the HV is addressed to assess the mother-child interaction and child care (6) , to identify and intervene in vulnerable situations, to collaborate to improve the trajectories of women, children and families, with a positive impact on maternal and child health (7) , in the development of the bond, with increased breastfeeding rates, decreased smoking and mothers' return to work or school (8) . However, investments to structure the teams of primary care services and to organize health actions in households are limited in Brazil (9) .…”

Section: Introductionmentioning

confidence: 99%

Care opportunities for premature infants: home visits and telephone support

Silva

Zilly

Nonose

et al. 2020

Rev. Latino-Am. Enfermagem

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Objective: to analyze opportunities for orientations to promote the care of premature infants during home visits and telephone support. Method: a qualitative study from the perspective of philosophical hermeneutics conducted with 18 mothers of premature infants discharged from hospital. Hospital contact and interviews were carried out, 15 and 45 days after discharge and at the infants’ six months of life, with data analysis by interpretation of meanings from 25 home visits and 56 telephone support contacts. Results: the following two thematic units emerged: Needs for contact and guidance: the place for home visits and opportunities for resolving doubts by telephone support, indicating aspects that suggest weakening child health, discontinuity in follow-up and vulnerability in specialized follow-ups. Home visits and telephone support favored the concern of health needs, doubts about basic care and problem solving, as ways to prevent damage and promote child health. Conclusion: home visits and telephone support emerge as collaborative practices of care and detection of latent conditions, which can be reduced or interrupted with prompt return of guidance, suggesting opportune strategies to increase follow-up, linkage and access to the health services.

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Home care services for sick children: Healthcare professionals’ conceptions of challenges and facilitators

Abstract: Aims and objectives: To explore healthcare professionals' conceptions of caring for sick children in home care services.Background: Families often prefer home care to hospital care, and the number of

Cited by 17 publications

References 37 publications

Challenges and Barriers Faced by Home Care Centers: An Integrative Review

Challenges and Barriers Faced by Home Care Centers: An Integrative Review

A possibility for strengthening family life and health: Family members’ lived experience when a sick child receives home care in Sweden

Care opportunities for premature infants: home visits and telephone support

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