Understanding breast cancer stories via Frank's narrative types

Thomas-MacLean, Roanne

doi:10.1016/s0277-9536(03)00372-1

Cited by 146 publications

(117 citation statements)

References 18 publications

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“…This reflects Frank's work on patient narratives, 171 which has been used as a way of explaining the experiences of patients with chronic illness. 172 Patients interviewed in our study exemplified all three of Frank's types of narrative in their descriptions of their cardiac event and subsequent experiences; 'restitution' where a previously healthy individual has been ill but has positive expectations for their future health, 'chaos' where the patient's illness has caused such disruption that they have negative views of any future improvement in their situation and 'quest' where the illness has made the patient realise they need to make changes to their lifestyle. 171 Thus patients who use 'restitution' or 'quest' narratives may be much more open to rehabilitation than those with 'chaos' narratives who do not anticipate any potential benefits.…”

Section: Theoretical Approaches To Qualitative Findingsmentioning

confidence: 99%

The Birmingham Rehabilitation Uptake Maximisation Study (BRUM). Home-based compared with hospital-based cardiac rehabilitation in a multi-ethnic population: cost-effectiveness and patient adherence

Jolly¹,

Taylor²,

Gy³

et al. 2007

Health Technol Assess

170

262

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Section: Theoretical Approaches To Qualitative Findingsmentioning

confidence: 99%

The Birmingham Rehabilitation Uptake Maximisation Study (BRUM). Home-based compared with hospital-based cardiac rehabilitation in a multi-ethnic population: cost-effectiveness and patient adherence

Jolly¹,

Taylor²,

Gy³

et al. 2007

Health Technol Assess

170

262

View full text Add to dashboard Cite

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“…While success stories may be inspiring, they may also be alienating (Mayer,1993;Potts, 2000), particularly to those who experience ongoing effects of cancer, have a poor prognosis, or ultimately die from the disease (Batt, 1994;Ehrenreich, 2001;Frank, 1995). In her analysis of the narrative content and form of breast cancer survivors' stories of cancer, Thomas-MacLean (2004) found elements of the restitution narrative as well as elements of Frank's chaos narrative (i.e., a story of never ending problems) and quest narrative (i.e., a story of change). Her results indicate the story of survivorship may not work for many people.…”

Section: Alternative Images and Criticisms Of Survivorshipmentioning

confidence: 99%

“…(The surgeon) might have taken a boob, but he gave me a different personality… something has happened to quiet little Kim." By saying she "found" an inner strength, Kim's story fits the quest narrative-cancer brought out new aspects of her self, making her a better person than she was before (Frank, 1995;Thomas-MacLean, 2004). …”

Section: Accepting the Survivor Identitymentioning

confidence: 99%

The meaning of the survivor identity for women with breast cancer

Kaiser

2008

Social Science & Medicine

225

183

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Abstract"Survivor" has become a ubiquitous and largely unquestioned term in culture and cancer discourse. While anecdotal evidence suggests women with breast cancer find fault with survivor images and discourse, the extent to which women identify with or reject the survivor identity has not been empirically studied. This paper examines whether women treated for breast cancer embrace survivorship. Data come from 39 in-depth interviews with women in the United States who completed treatment for breast cancer 3 to 18 months prior to the interview. Despite the positive meanings attached to survivorship, many women altered the meaning of survivorship or rejected survivorship. In particular, the survivor discourse alienated women who struggle with the threat of recurrence, who feel their cancer experience was not severe enough to merit this title, or who desire a private disease experience. These findings illustrate the failure of our cultural conceptions of cancer to adequately reflect lived experience and highlight how individuals actively "craft" illness meanings."I woke up, still alive. Does that mean 'cured'?" Marilyn Hacker, 1994 (cited in Bahar, 2003

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“…La productividad y vigencia de las aportaciones de Frank (1995) a la sociología de la salud las evidencian los estudios recientes que continúan utilizando sus categorías analíticas para el estudio de las narrativas sobre, por ejemplo, la diabetes (Karas y Karner, 2005), el cáncer de mama (Thomas-MacLean, 2004;Sumalla et al, 2013), la menopausia (Nosek et al, 2012) o la discapacidad adquirida (Smith y Sparkes, 2008). A diferencia de la mayoría de investigaciones citadas, que se centran en la tipología de narrativas que propone el autor, el presente artículo aplica su tipología de problemas corporales.…”

Section: Las Problemáticas Corporalesunclassified

“…En primer lugar, dificulta aceptar la vertiente negativa de la enfermedad y su tratamiento (también en Thomas-MacLean, 2004). Esto se traduce en la voluntad de esconder los efectos de la quimioterapia (con el uso de pelucas, de maquillaje, etc.…”

Section: Controlunclassified

La cicatriz (in)visible. La representación del cuerpo en blogs de mujeres con cáncer de mama

Coll‐Planas

Barbosa

2015

Política Soc.

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ResumenEn este artículo analizamos la representación del cuerpo en blogs de mujeres con cáncer de mama. Fijándonos tanto en los textos como en las imágenes, estudiamos la representación del cuerpo a partir de las problemáticas corporales planteadas por Frank (1995): control, relación con el cuerpo, relación con los demás y deseo. En los blogs analizados aparece un cuerpo deseante y que se entiende de una forma diádica, formando parte de una red de afectos y cuidados. El diagnóstico de cáncer puede generar tanto disociación del cuerpo (que es vivido como una amenaza), como asociación, una mayor conexión. En relación al control, se observa una clara voluntad de predictibilidad aunque también aparecen indicios de asunción de la contingencia.

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Understanding breast cancer stories via Frank's narrative types

Cited by 146 publications

References 18 publications

The Birmingham Rehabilitation Uptake Maximisation Study (BRUM). Home-based compared with hospital-based cardiac rehabilitation in a multi-ethnic population: cost-effectiveness and patient adherence

The Birmingham Rehabilitation Uptake Maximisation Study (BRUM). Home-based compared with hospital-based cardiac rehabilitation in a multi-ethnic population: cost-effectiveness and patient adherence

The meaning of the survivor identity for women with breast cancer

La cicatriz (in)visible. La representación del cuerpo en blogs de mujeres con cáncer de mama

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