Turning the Social Determinants of Health to Our Advantage: Policy Fundamentals for a Better Approach to Children's Health

Brown, Adalsteinn D.; Katherine, Wendy; Allen, Katy; Quach, Uyen; Chiu, Elizabeth; Bialystok, Lauren

doi:10.12927/hcq.2010.21985

Cited by 5 publications

(5 citation statements)

References 28 publications

(40 reference statements)

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“…For example, education is one of the three strongest determinants of health and wellbeing for adolescents and young adults [45], but the young adults in this study faced barriers and prejudice accessing postsecondary education. Successful transitions require policy approaches that move beyond health care needs and recognize the full range of young adult developmental needs [46]. Cross-system linkages are necessary to facilitate timely and efficient support between the pediatric and adult health, education, and social systems to support and enhance these young adults' limited remaining years.…”

Section: Discussionmentioning

confidence: 99%

“…Until recently, there has been little focus on primary care providers in the transition process [55]. The role of a primary care home is now prominent in clinical guidelines on transition [29, 46]. Primary care philosophy recognizes that health transition must also include education, career choices, and independent living [46].…”

Section: Discussionmentioning

confidence: 99%

“…The role of a primary care home is now prominent in clinical guidelines on transition [29, 46]. Primary care philosophy recognizes that health transition must also include education, career choices, and independent living [46]. In pediatric care, nurse clinicians provide primary care management of complex youth and families in tertiary care settings.…”

Section: Discussionmentioning

confidence: 99%

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Up against the System: A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care

Cook

Siden

Jack

et al. 2013

Nursing Research and Practice

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Advances in pediatric care have not provided the interdisciplinary support services required by those young adults with pediatric life-threatening conditions (pedLTCs) who live beyond childhood but have limited expectations to live past early adulthood. These young adults, the first generation to live into adulthood, face multiple challenges transitioning from a plethora of pediatric palliative services to scant adult health services. In a case study, using an innovative bulletin board focus group, we describe the complex interplay of the health, education, and social service sectors in this transition. Our descriptions include system deficits and strengths and the young adults' resilience and coping strategies to overcome those deficits and move forward with their lives. Young adults with pedLTC need knowledgeable providers, coordinated and accessible services, being respected and valued, and services and supports that promote independence. We recommend implementation of multidisciplinary solutions that are focused on young adult priorities to ensure seamless access to resources to support these young adults' health, educational, vocational, and social goals. The input and voice of young adults in the development of these services are imperative to ensure that multisystem services support their needs and life goals.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Up against the System: A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care

Cook

Siden

Jack

et al. 2013

Nursing Research and Practice

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“…Allusions to the uniqueness and value of childhood abound in academic, lay, and political discourse. Yet social policies affecting children across a range of domains often fail to re ect the priority ascribed to children [1][2][3]. In the eld of health care, policies on drug development, regulation and funding routinely neglect issues unique to children, in advanced and developing systems alike [4,5].…”

Section: Introductionmentioning

confidence: 99%

The moral foundations of child health and social policies: A critical interpretive synthesis

Denburg

Giacomini

Ungar

et al. 2019

Preprint

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Background: Allusions to the uniqueness and value of childhood abound in academic, lay, and policy discourse. However, little clarity exists on the values that should guide child health and social policymaking. We review extant academic literature on the normative dimensions of child health and social policy to provide foundations for the development of child-focused public policies. Methods: We conducted a critical interpretive synthesis of academic literature on the normative dimensions of child health and social policy-making. We employed a social constructivist lens to interpret emergent themes. Political theory on the social construction of target populations served as a bridge between sociologies of childhood and public policy analysis. Results: Our database searches returned 14,658 unique articles; full text review yielded 72 relevant articles. Purposive sampling of relevant literature complemented our electronic searches, adding 51 original articles, for a total of 123 articles. Our analysis of the literature reveals three central themes: potential, rights, and risk. These themes retain relevance in diverse policy domains. A core set of foundational concepts also cuts across disciplines: well-being, participation, and best interests of the child inform debate on the moral and legal dimensions of a gamut of child social policies. Finally, a meta-theme of embedding encompasses the pervasive issue of a child’s place, in the family and in society, at the heart of much social theory and applied analysis on children and childhood. Conclusions: Foundational understanding of the moral language and dominant policy frames applied to children can enrich analyses of social policies for children in a range of sociopolitical contexts. Our proposed schema of values, and allied exploration of their points of consonance and tension, is an important step in efforts to gauge social policy prescriptions not only by measures of outcome but also by evidence of their alignment with social values.

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“…With a growing population of YAs with complex and LLCs entering adult services, education for professionals to anticipate their expected disease trajectories and coordinated policy and funding to support the health and well-being of YAs with LLCs are needed. [6][7][8] Accessing appropriate health and social services to achieve their developmental goals is fraught with complications and obstacles 3,6,9 that increase their vulnerability and morbidity, and require enormous personal investment. [10][11][12][13] Furthermore, these YAs are concurrently experiencing changing or declining health, profound physical disabilities, debilitating pain, dependence on care providers and equipment for daily living, isolation, the psychological burden of their condition for themselves and their family, and uncertain futures.…”

Section: Introductionmentioning

confidence: 99%

Investing in Uncertainty: Young Adults with Life-Limiting Conditions Achieving Their Developmental Goals

Cook

Jack

Siden

et al. 2016

Journal of Palliative Medicine

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Turning the Social Determinants of Health to Our Advantage: Policy Fundamentals for a Better Approach to Children's Health

Cited by 5 publications

References 28 publications

Up against the System: A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care

Up against the System: A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care

The moral foundations of child health and social policies: A critical interpretive synthesis

Investing in Uncertainty: Young Adults with Life-Limiting Conditions Achieving Their Developmental Goals

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