Treatment with Growth Hormone

Siguero, Juan Pedro López; Aedo, M. J. Martinez; Moreno, Mathias; Valverde, Antonio Martínez

doi:10.1159/000184669

Cited by 10 publications

(5 citation statements)

References 3 publications

(3 reference statements)

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“…Studies assessing knowledge of children with endocrine disorders are rare (26,27), with no report that we could find, on impact of educational intervention. The PEKAQs in our study were designed specifically for rapid and reliable knowledge assessment in pediatric endocrine patients during clinic visits.…”

Section: Discussionmentioning

confidence: 76%

“…Previously, a clear relationship has been reported between knowledge of children treated with growth hormone and their degree of compliance and acceptance of treatment (26,30). In our study, at baseline only two-thirds of the participants knew their diagnosis correctly, partly due to several synonyms used for same disorder (Hashimoto’s thyroiditis, acquired hypothyroidism, chronic lymphocytic thyroiditis, autoimmune thyroiditis) or medical acronyms (CAH) for these disorders.…”

Section: Discussionmentioning

confidence: 99%

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Development and Validation of a Pediatric Endocrine Knowledge Assessment Questionnaire: Impact of ac Pediatric Endocrine Knowledge Assessment Questionnaire Intervention Study

Gupta

Zidan

Moltz

et al. 2016

Jcrpe

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Objective:While there is general agreement that patient education is essential for compliance, no objective tools exist to assess knowledge in children and parents of children with endocrine disorders. We aimed to design and validate a Pediatric Endocrine Knowledge Assessment Questionnaire (PEKAQ) for congenital hypothyroidism, Hashimoto’s thyroiditis, isolated growth hormone deficiency, Graves’ disease, and congenital adrenal hyperplasia. We evaluated baseline knowledge of children and parents of children with these disorders and assessed impact of educational intervention.Methods:At baseline, 77 children (12-18 years) and 162 parents of children 1-18 years participated in this prospective intervention study. Educational handouts for five targeted disorders were designed. Following one-on-one educational intervention, 55 children and 123 parents participated. Baseline and post-intervention knowledge scores were compared using McNemar’s test.Results:Adequate multi-rater Kappa measure of agreement was achieved for children’s (0.70) and parent’s (0.75) PEKAQs. Flesch Reading Ease Score for both PEKAQs (15 questions each) was 65. Post-intervention, significantly higher proportion of parents and children answered majority of questions correctly (p<0.05). Sixteen percent more parents and 22% more children knew their diagnosis correctly (p<0.05). Significant improvement was noted among all participants regarding reason for treatment, steps to take in a situation of missed dose, exercise and diet with these disorders, and long-term prognosis. Parent’s knowledge score was an independent predictor of child’s score.Conclusions:To our knowledge, this is the first validated PEKAQ that can be used widely in pediatric endocrinology clinics. We noted significant improvement in knowledge of children and parents of children with endocrine disorders.

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Section: Discussionmentioning

confidence: 76%

Section: Discussionmentioning

confidence: 99%

Development and Validation of a Pediatric Endocrine Knowledge Assessment Questionnaire: Impact of ac Pediatric Endocrine Knowledge Assessment Questionnaire Intervention Study

Gupta

Zidan

Moltz

et al. 2016

Jcrpe

View full text Add to dashboard Cite

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“…Some studies have investigated the impact of the device used on adherence and attributes of comfort, ease of use and choice (Desrosiers et al 2005, Wickramasuriya et al 2006, Kapoor et al 2008, Rosenfeld & Bakker 2008, Fuchs et al 2009, Hey-Hadavi et al 2010, Bozzola et al 2011, Rubin et al 2011, Kaptein 2013, Tauber et al 2013, Meinhardt et al 2014, Spoudeas et al 2014. Other studies looked at motivation, acceptance and satisfaction with therapy, family surrounding, educational level, training and administration technique for GHT, patient-doctor relationship and level of understanding about the disorder and therapy (Smith et al 1993, Siguero et al 1995, Haverkamp et al 2008, Kapoor et al 2008, Rosenfeld & Bakker 2008, Norgren 2009, Pfützner et al 2010, Cutfield et al 2011, Kappelgaard & Laursen 2011, Van Dongen & Kaptein 2012.…”

Section: Treatment Burden and Adherencementioning

confidence: 99%

Mothers' Experiences of Caring for Children Receiving Growth Hormone Treatment

Alsaigh

Coyne

2019

Journal of Pediatric Nursing

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“…As an example, a study by Lopez Siguero et al reported a disparity between patient acceptance of their treatment and knowledge of their treatment when asked to complete a questionnaire. Higher questionnaire scores were achieved by patients who attended an education camp on GHT, highlighting the benefits of appropriate patient education ( 96 ). Education is thus important not only to enhance patient knowledge but also to encourage a greater ownership of their own treatment plan.…”

Section: Practical Suggestions To Overcome Barriers To Sdm In Ghtmentioning

confidence: 99%

Shared Decision-Making in Growth Hormone Therapy—Implications for Patient Care

et al. 2018

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Several studies have shown that adherence to growth hormone therapy (GHT) is not optimal. There are several reasons why patients may not fully adhere to their treatment regimen and this may have implications on treatment success, patient outcomes and healthcare spending and resourcing. A change in healthcare practices, from a physician paternalistic to a more patient autonomous approach to healthcare, has encouraged a greater onus on a shared decision-making (SDM) process whereby patients are actively encouraged to participate in their own healthcare decisions. There is growing evidence to suggest that SDM may facilitate patient adherence to GHT. Improved adherence to therapy in this way may consequently positively impact treatment outcomes for patients. Whilst SDM is widely regarded as a healthcare imperative, there is little guidance on how it should be best implemented. Despite this, there are many opportunities for the implementation of SDM during the treatment journey of a patient with a GH-related disorder. Barriers to the successful practice of SDM within the clinic may include poor patient education surrounding their condition and treatment options, limited healthcare professional time, lack of support from clinics to use SDM, and healthcare resourcing restrictions. Here we discuss the opportunities for the implementation of SDM and the barriers that challenge its effective use within the clinic. We also review some of the potential solutions to overcome these challenges that may prove key to effective patient participation in treatment decisions. Encouraging a sense of empowerment for patients will ultimately enhance treatment adherence and improve clinical outcomes in GHT.

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Treatment with Growth Hormone

Cited by 10 publications

References 3 publications

Development and Validation of a Pediatric Endocrine Knowledge Assessment Questionnaire: Impact of ac Pediatric Endocrine Knowledge Assessment Questionnaire Intervention Study

Development and Validation of a Pediatric Endocrine Knowledge Assessment Questionnaire: Impact of ac Pediatric Endocrine Knowledge Assessment Questionnaire Intervention Study

Mothers' Experiences of Caring for Children Receiving Growth Hormone Treatment

Shared Decision-Making in Growth Hormone Therapy—Implications for Patient Care

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