Transition of Adolescents With Inflammatory Bowel Disease From Pediatric to Adult Care: A Survey of Adult Gastroenterologists

Hait, Elizabeth J.; Barendse, Renée M.; Arnold, Janis; Valim, Clarissa; Sands, Bruce E.; Korzenik, Joshua R.; Fishman, Laurie N.

doi:10.1097/mpg.0b013e31816d71d8

Cited by 142 publications

(140 citation statements)

References 22 publications

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“…Their previous experience of managing their chronic condition in close collaboration with parents and paediatric health-care professionals becomes irrelevant, and their feeling of being redundant or unwanted as collaborators is striking. These findings support research demonstrating that, in paediatric wards, clinicians negotiate treatment and care through parents with little involvement from children (Coyne et al, 2011, Donnelly and Kilkelly, 2011, Hallström and Elander, 2004, whereas in adult wards, adolescents are expected to be autonomous and independent (Hait et al, 2009). Both the young adults and the health professionals in adult care should be ready to invest the necessary time and support to prepare young adults to take responsibility for their own health.…”

Section: Discussionsupporting

confidence: 74%

Adolescents’ and young adults’ transition experiences when transferring from paediatric to adult care: A qualitative metasynthesis

Fegran¹,

Hall²,

Uhrenfeldt³

et al. 2014

International Journal of Nursing Studies

222

204

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Section: Discussionsupporting

confidence: 74%

Adolescents’ and young adults’ transition experiences when transferring from paediatric to adult care: A qualitative metasynthesis

Fegran¹,

Hall²,

Uhrenfeldt³

et al. 2014

International Journal of Nursing Studies

222

204

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“…16 Additionally, adult gastroenterologists frequently report a lack of knowledge of the disease, treatment, and the impact of substance use on health in the young adults transferred to their practice. [17][18][19] Increasing knowledge alone is, however, not sufficient for successful transition.…”

Section: Discussionmentioning

confidence: 99%

Self-efficacy in adolescents with inflammatory bowel disease: A pilot study of the “IBD-yourself”, a disease-specific questionnaire

Zijlstra

Bie

Breij

et al. 2013

Journal of Crohn's and Colitis

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Background and aims: Successful transfer of adolescent IBD patients to an adult gastroenterologist requires anticipation of a changing role for patients and their parents. Self-efficacy has been demonstrated to be important for transfer readiness. We therefore developed an IBD-specific questionnaire (the "IBD-yourself") to assess self-efficacy in adolescent IBD patients visiting a transition clinic. Our aim was to evaluate the reliability of this questionnaire, and to describe the self-efficacy level of adolescent IBD patients, and the perceived self-efficacy level according to their parents. Methods: In a cross-sectional design, 50 IBD patients (aged 14-18 years) and 40 parents completed the "IBD-yourself" questionnaire. Internal reliability was assessed by standardised Cronbach's α. Median self-efficacy scores per domain were calculated. Results: The domains of the questionnaire for adolescents showed good to excellent internal consistency, with Cronbach's α ranging from 0.64 to 0.93. The domains of the parental questionnaire had Cronbach's α ranging from 0.47 to 0.93. Median self-efficacy scores of adolescents varied from 70 to 100%. In comparison with patient's self-assessment, parents thought that their child was more A v a i l a b l e o n l i n e a t w w w . s c i e n c e d i r e c t . c o m ScienceDirectJournal of Crohn's and Colitis (2013) 7, e375-e385 Downloaded from https://academic.oup.com/ecco-jcc/article-abstract/7/9/e375/427279 by guest on 07 June 2019 self-efficacious in knowledge of IBD and diagnostic tests, self-management of medication use, and transfer readiness. Length of time since first visit to the transition clinic was positively correlated with several domains of the questionnaire, such as independent behaviour at the outpatient clinic, and transfer readiness. Conclusion: The "IBD-yourself" questionnaire is a first step toward evaluating quality and efficacy of IBD transition programmes. Paediatric gastroenterologists should be aware that parents do not always accurately assess the self-efficacy of their child.

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“…Another survey by Hait et al [10] was done among 1132 adult gastroenterologists in the Netherlands. The response rate was only 34% but the majority of these gastroenterologists reported a lack of medical knowledge among young adults with IBD.…”

Section: Introductionmentioning

confidence: 99%

Transition of children with inflammatory bowel disease: Big task, little evidence

El‐Matary¹

2009

WJG

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Children with chronic long-term disorders need to move to the adult practice at some point in their life. Establishing a smooth and efficient transition process is a complicated task. Transition of medical care to adult practice is defined as the purposeful planned movement of adolescents and young adults with chronic physical and medical conditions from child-centered to adultoriented health care systems. This step is of the utmost importance for several reasons. There is an obvious deficiency of research in this area especially when it comes to pediatric inflammatory bowel disease (IBD). There is a considerable difference in individual practice among different centers. Also, age of transition varies among different countries and sometimes, even within the same country, transition age may vary among different provinces and districts! Interestingly, local politics and many factors other than children's welfare often play a role in deciding the age that older children move to adult practice at. This review discusses transition of children with IBD in view of the available evidence.

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Transition of Adolescents With Inflammatory Bowel Disease From Pediatric to Adult Care: A Survey of Adult Gastroenterologists

Cited by 142 publications

References 22 publications

Adolescents’ and young adults’ transition experiences when transferring from paediatric to adult care: A qualitative metasynthesis

Adolescents’ and young adults’ transition experiences when transferring from paediatric to adult care: A qualitative metasynthesis

Self-efficacy in adolescents with inflammatory bowel disease: A pilot study of the “IBD-yourself”, a disease-specific questionnaire

Transition of children with inflammatory bowel disease: Big task, little evidence

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