1999
DOI: 10.1353/hpu.2010.0697
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Tracking and Follow-Up of Marginalized Populations: A Review

Abstract: Maintaining study cohorts is a key element of longitudinal research. Participant attrition introduces the possibility of bias and limits the generalizability of a study's findings, but with appropriate planning it is possible to sustain contact with even the most transient participants. This paper reviews the essential elements of tracking and follow-up of marginalized populations, which are (1) collection of contact information, (2) thorough organization of tracking efforts, (3) attention to staff training an… Show more

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Cited by 70 publications
(59 citation statements)
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References 35 publications
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“…Four participants withdrew from the study and thirteen were lost to follow up. These follow-up rates are comparable to other studies with marginalized populations (McKenzie et al, 1999;Veldhuizen et al, 2014). There was no difference at baseline between those lost to follow-up and study participants according to: age, gender, race, housing stability, primary income source, history of incarceration, current crack use, current IDU, emergency department use in past six months, and history of mental health hospitalization.…”
Section: Resultssupporting
confidence: 82%
“…Four participants withdrew from the study and thirteen were lost to follow up. These follow-up rates are comparable to other studies with marginalized populations (McKenzie et al, 1999;Veldhuizen et al, 2014). There was no difference at baseline between those lost to follow-up and study participants according to: age, gender, race, housing stability, primary income source, history of incarceration, current crack use, current IDU, emergency department use in past six months, and history of mental health hospitalization.…”
Section: Resultssupporting
confidence: 82%
“…Cases were assigned to interviewers randomly and with the idea that the participant and interviewer would remain paired throughout the course of the study, unless a safety concern or staff turnover dictated a change. There was no matching on gender or ethnicity because we have found, similar to others (McKenzie et al, 1999), that the ability to form a respectful relationship with a participant matters more than being of the same race or gender.This approach has several advantages. Because cases are randomly assigned, interviewers all have a comparable mix of difficult and easy cases.…”
supporting
confidence: 57%
“…The goal of our study is to achieve an 80% retention rate, using methods shown to be effective at tracking and retaining homeless and vulnerably housed participants (McKenzie et al 1999). Efforts were made to establish trust and rapport with participants at first contact and to explain the importance of their participation in follow-up interviews.…”
Section: Follow-up Proceduresmentioning
confidence: 99%