Tools used for evaluation of Brazilian children's quality of life

Abstract

OBJECTIVE:To review the available tools to evaluate children's quality of life validated for Brazilian language and culture.DATA SOURCES: Search of scientific articles in Medline, Lilacs and SciELO databases using the combination of descriptors "quality of life", "child" and "questionnaires" in Portuguese and English.DATA SYNTHESIS: Among the tools designed to assess children's quality of life validated for the Brazilian language and culture, the Auto questionnaire Qualité de Vie Enfant Imagé (AUQEI), the Child Health Questionnaire - Parent Form 50 (CHQ-PF50), the Pediatric Quality of Life Inventory (PedsQL(tm)) version 4.0 and the Kidscreen-52 are highlighted. Some tools do not include all range of ages and some lack domains that are currently considered relevant in the context of childhood, such as bullying. Moreover, due to the cultural diversity of Brazil, it may be necessary to adapt some instruments or to validate other tools. CONCLUSIONS: There are validated instruments to evaluate children's quality of life in Brazil. However, the validation or the adaptation of other international tools have to be considered in order to overcome current deficiencies.

Oral health, socio-economic and home environmental factors associated with general and oral-health related quality of life and convergent validity of two instruments

“…As regards measurement of the perception of health-related quality of life in children and adolescents, several instruments have been developed. There are generic instruments that evaluate measures of quality of life in general, with no link to a specific disease, and other instruments related to specific conditions [ 11 - 14 ]. The generic HRQoL instruments are focused on general living conditions.…”

Descriptions of Perceived Quality of Life of Residents from a Quilombo in North Brazil

“…For children, we used the questionnaire named Autoquestnaire Qualité de Vie Enfant Imagé (AUQEI), which has 26 items and a scale composed of four factors: Autonomy (items: 15, 17, 19, 23, and 24), Leisure (items: 11, 21, and 25), Function (items: 1, 2, 4, 5, and 8), and Family (items: 3, 10, 13, 16, and 18) covering 18 items; items 6, 7, 9, 12, 14, 20, 22, and 26 were not included in the factors cited because they do not belong to a specific domain, and thus their analysis is separate from these factors 10,11 .…”

“…Before administering the questionnaire, an image containing four emotional states ( Figure 1) was presented to each child, so that they could be used as a basis for understanding their current emotional state [10][11][12] . summed, and the maximum score was 78 points; following the study of Assumpção Jr. et al 10 , the cut-off value of 48 points was adopted to be considered a good QOL.…”

Estudo da associação entre a qualidade de vida relacionada à saúde global e especifica, problemas comportamentais de pacientes pediátricos com doença renal crônica níveis 3 ou superior e a qualidade de vida e saúde mental de seus cuidadores primários

“…Tabela 2 Breve descrição dos instrumentos de destaque utilizados no Brasil para avaliar qualidade de vida relacionada à saúde de crianças e adolescentes [14].…”