Togetherness in Separation: Practical Considerations for Doing Remote Qualitative Interviews Ethically

Engward, Hilary; Goldspink, Sally; Iancu, Maria; Kersey, Thomas; Wood, Abigail

doi:10.1177/16094069211073212

Cited by 45 publications

(29 citation statements)

References 16 publications

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“…These methods may have resulted in less access to non-verbal cues during interviews which may have influenced engagement (Novick, 2008). However, this impact may have been mitigated by the fact that the first author had experience of conducting clinical work remotely throughout the pandemic and used relevant transferable skills including distant rapport building (Hanna & Mwale, 2017) and 'warming up talk' (Engward et al, 2022). Participation bias is always a risk in research of this nature.…”

Section: Strengths and Limitationsmentioning

confidence: 99%

‘Like a ticking time bomb’: A qualitative study exploring the illness experiences of adults with kidney stone disease

Néill

Richards

Hennessey

et al. 2023

British J Health Psychol

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ObjectiveKidney stone disease (KSD) is a common, complex and painful urological condition, but how patients make sense of and respond to the challenges of KSD is poorly understood. Using the common‐sense model of illness self‐regulation (CSM‐SR), we aimed to explore the illness experiences of individuals with KSD.DesignA qualitative design using individual semi‐structured interviews.MethodsThirty‐three patients with KSD attending outpatient urology services participated in interviews informed by the CSM‐SR. Data were analysed using reflexive thematic analysis. Themes were mapped onto the domains of the CSM‐SR.ResultsFive main themes were generated, broadly echoing domains within the CSM‐SR: (1) making sense of KSD, (2) normality paused, (3) the psychological burden of KSD, (4) the tensions of managing KSD, and (5) improving understanding of KSD. Additionally, findings suggested that partners' perceptions of KSD were an additional contextual factor that informed patients' own perceptions and management of KSD. Participants appraised initial KSD symptoms as indicative of a serious health threat. Diagnosis brought some relief, however, KSD wielded multi‐dimensional impacts on patients' perceptions, self‐management and well‐being. Anxiety, including fear of KSD recurrence, and low mood were common psychological burdens across narratives.ConclusionThe majority of the themes identified were commensurate with an extended CSM‐SR. This model has utility in informing how patients perceive and manage KSD. Examining patients' KSD representations and routinely assessing for psychological distress may be of benefit to improve health outcomes for this patient group.

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Section: Strengths and Limitationsmentioning

confidence: 99%

‘Like a ticking time bomb’: A qualitative study exploring the illness experiences of adults with kidney stone disease

Néill

Richards

Hennessey

et al. 2023

British J Health Psychol

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“…The findings from our scoping review did not identify major differences in the recruitment of participants in the context of virtual synchronous qualitative data collection compared with in-person data collection. Several key elements were highlighted, however, regarding ethical concerns that must be addressed when pivoting to virtual synchronous data-collection methods (Carter et al, 2021; Engward et al, 2022; Newman et al, 2021; Reñosa et al, 2021; Roberts, 2015; Varma et al, 2021). First, to obtain participants’ consent, researchers should use a method suitable to their context and convenient for the population they are trying to reach.…”

Section: Resultsmentioning

confidence: 99%

“…It allows the researchers and participants to reflect on their experience and ensure their well-being, especially when virtual sessions, whether individual interviews or focus groups, are carried out with a vulnerable population, such as older adults living alone (Melis et al, 2022) or individuals struggling with mental-health issues (Han et al, 2019), or broach sensitive topics (Pocock et al, 2021). Those moments of shared reflection are crucial to highlighting methodological issues that might have occurred during the whole process in order to improve future iterations of this data-collection method (Chiumento et al, 2018; Engward et al, 2022). To provide a safe and comfortable environment in which to do so, researchers should plan to discuss more informal topics following the session while also providing relevant resources, such as helplines or referral to clinical psychologists, if needed, and checking in with participants a couple of days later, especially if they come from a more vulnerable population, such as older adults living alone (Melis et al, 2022) or individuals with mental-health issues (Han et al, 2019).…”

Section: Resultsmentioning

confidence: 99%

Virtual Synchronous Qualitative Data Collection Methods Used in Health and Social Sciences: A Scoping Review of Benefits, Challenges and Practical Insights

Dubé,

Meziane,

Hudon

et al. 2023

International Journal of Qualitative Methods

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In recent years, we have seen the use of virtual synchronous qualitative data-collection methods grow exponentially, especially within the context of the COVID-19 pandemic. Although several recommendations for researchers conducting in-person interviews and focus groups are available in the scientific literature, they are not necessarily suited for application in a virtual context. To gain a better understanding of current practices and recommendations in virtual synchronous qualitative data collection, we conducted a scoping review. Information obtained from the 70 articles included in this review highlights the main benefits and challenges of virtual data-collection methods in research, compares differences with in-person means of data collection, and provides readers with practical insights for before, during, and after data collection. This comprehensive overview of the existing literature allowed us to outline the theoretical contributions and practical implications of our work as well as provide perspectives for future research. This scoping review can serve as a tool to inform researchers about how best to conduct virtual synchronous qualitative data collection based on other researchers’ prior experiences and the recommendations currently available in the literature.

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“…Potential participants were emailed, with an accompanying information sheet, to introduce the interviewer, organise a telephone call to address any queries and arrange an interview time. Following verbal consent protocols associated with online interviewing (Engward et al, 2022), the interviews, lasting approximately 1 h, were conducted via Zoom and field notes were taken. Semi structured interviews were undertaken.…”

Section: Methodsmentioning

confidence: 99%

Good death disrupted: Nurses' moral emotions navigating clinical and public health ethics during the first wave of COVID‐19 pandemic

Mowat

Cook

Chapman

et al. 2023

Journal of Clinical Nursing

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AimTo explore the moral emotions that frontline nurses navigated in endeavouring to ensure a ‘good death’ for hospital patients and care home residents during the first wave of the COVID‐19 pandemic.BackgroundUnder normal circumstances, frontline staff are focused on clinical ethics, which foreground what is best for individuals and families. Public health crises such as a pandemic require staff to adapt rapidly to focus on what benefits communities, at times compromising individual well‐being and autonomy. Visitor restrictions when people were dying provided vivid exemplars of this ethical shift and the moral emotions nurses encountered with the requirement to implement this change.MethodsTwenty‐nine interviews were conducted with nurses in direct clinical care roles. Data were analysed thematically informed by the theoretical concepts of a good death and moral emotions.ResultsThe data set highlighted that moral emotions such as sympathy, empathy, distress and guilt were integral to the decisions participants described in striving for a good palliative experience. Four themes were identified in the data analysis: nurses as gatekeepers; ethical tensions and rule bending; nurses as proxy family members; separation and sacrifice.ConclusionsParticipants reflected on morally compromising situations and highlighted agency through emotionally satisfying workarounds and collegial deliberations that enabled them to believe that they were party to painful but morally justifiable decisions.Implications for the profession and patient careNurses are required to implement national policy changes that may disrupt notions of best practice and therefore be experienced as a moral wrong. In navigating the moral emotions accompanying this shift, nurses benefit from compassionate leadership and ethics education to support team cohesion enabling nurses to prevail.Public contributionTwenty‐nine frontline registered nurses participated in the qualitative interviews that inform this study.Reporting methodThe study adhered to the Consolidated Criteria for Reporting Qualitative Research checklist.

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Togetherness in Separation: Practical Considerations for Doing Remote Qualitative Interviews Ethically

Cited by 45 publications

References 16 publications

‘Like a ticking time bomb’: A qualitative study exploring the illness experiences of adults with kidney stone disease

‘Like a ticking time bomb’: A qualitative study exploring the illness experiences of adults with kidney stone disease

Virtual Synchronous Qualitative Data Collection Methods Used in Health and Social Sciences: A Scoping Review of Benefits, Challenges and Practical Insights

Good death disrupted: Nurses' moral emotions navigating clinical and public health ethics during the first wave of COVID‐19 pandemic

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