To tell or not to tell: Dimensions of disclosure to children with HIV in the Zambezi region of Northern Namibia

Kalomo, Eveline Ndinelao; Liao, Minli; Besthorn, Fred H.; Shilunga, Anna Panduleni Kauko; Mbapaha, Claudia

doi:10.1080/15381501.2017.1341359

Cited by 5 publications

(4 citation statements)

References 33 publications

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“…explaining the disclosure process to the caregiver) is not completed in front of the child so that the child’s well-being is safeguarded [ 4 , 16 ]. Despite these detailed guidelines, many children are unaware of their HIV status and their caregivers are hesitant to disclose to them [ 17 ].…”

Section: Introductionmentioning

confidence: 99%

“…Lack of knowledge on how and when to approach the disclosure question is another important factor delaying disclosure [4,13,[16][17][18][19][24][25][26][27]. A study in Ghana [26] and another in Peru [28], reported that few mothers were confident in their ability to disclose their status due to social stigma and the possibility of this stigma being passed onto their children.…”

Section: Introductionmentioning

confidence: 99%

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Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations

et al. 2022

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Awareness of Human Immunodeficiency Virus (HIV) status improves health outcomes in children living with HIV, yet caregivers often delay disclosure. This qualitative investigation explored, through observation, how 30 caregivers responded to a HIV Disclosure study conducted between 2017 and 2020 at Chris Hani Baragwanath Academic Hospital, Soweto, South Africa. Caregivers were assisted in disclosing to their children, aged 7–13 years; followed by a sub-sample of caregivers providing in-depth interviews to elaborate on findings.1) Barriers to disclosure included: caregivers being ill equipped, the fear of negative consequences and children considered lacking emotional or cognitive readiness. 2) Deflecting diagnosis from their children and the need for medication, motivated caregivers to disclosure. 3) Apprehension was evident during disclosure; however, overall disclosure was a positive experience with the support of the healthcare providers. These results highlight the significant role healthcare providers’ play in supporting caregivers through the disclosure process.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations

et al. 2022

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“…The copyright holder for this preprint this version posted October 19, 2021. ; https://doi.org/10.1101/2021.10.14.21264620 doi: medRxiv preprint Guiding caregivers through disclosure 4 untimely disclosure of HIV status to others; exposure of the caregiver's "personal secrets"; and caregiver's lack of knowledge on how and when to approach the disclosure questions (4,13,16,17,(22)(23)(24)(25)(26)(27). A recent study in Ghana (28) reported that caregivers lacked knowledge on how to disclose to their children, and that this poor knowledge was the main reason for delayed disclosure.…”

Section: (Which Was Not Certified By Peer Review)mentioning

confidence: 99%

“…The World Health Organisation (WHO) and the South African National Department of Health (SANDoH) encourage a comprehensive approach to disclosure which ensures the child's physical, emotional, cognitive and social well-being is safeguarded by pre-disclosure not being completed in front of the child and children of school going age to be made aware of their caregivers' HIV status (4,10,11,13,16). Despite this, studies have shown that many children are unaware of their HIV status and that their caregivers are hesitant to disclose to them (17).…”

Section: Introductionmentioning

confidence: 99%

Guiding caregivers through disclosure: a qualitative investigation into caregivers’ responses to a disclosure intervention for HIV-infected children in Soweto, South Africa

Joyce

Ramsammy

Galvin

et al. 2021

Preprint

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Awareness of HIV status improves health outcomes in HIV infected children, yet disclosure is often delayed by hesitant caregivers. This qualitative investigation explored how 30 caregivers responded to a HIV Disclosure study conducted between 2017 and 2020 at Chris Hani Baragwanath Academic Hospital, Soweto, South Africa. Caregivers were assisted in disclosing to their children, aged 7-13 years. Following that, a sub-sample of caregivers were interviewed to elaborate on findings.1) Barriers to disclosure included caregivers being ill-equipped, fear of negative consequences and children considered lacking emotional or cognitive readiness. 2) Deflecting diagnosis and the need for medication motivated caregivers to disclosure. 3) Apprehension was evident during disclosure, however, overall disclosure was a positive experience with the assurance and support of the healthcare providers. These results highlight the significant role healthcare providers play in supporting caregivers through the disclosure process and how, in turn, this has a positive impact on the community as a whole.

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The relationship between social support and anxiety amongst children living with HIV in rural northern Namibia

Besthorn

Kalomo

Lightfoot

et al. 2018

African Journal of AIDS Research

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To tell or not to tell: Dimensions of disclosure to children with HIV in the Zambezi region of Northern Namibia

Cited by 5 publications

References 33 publications

Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations

Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations

Guiding caregivers through disclosure: a qualitative investigation into caregivers’ responses to a disclosure intervention for HIV-infected children in Soweto, South Africa

The relationship between social support and anxiety amongst children living with HIV in rural northern Namibia

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