Theorizing the Authentic

Campbell, Kelly B.

doi:10.1177/0095399704270582

Cited by 40 publications

(5 citation statements)

References 25 publications

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“…Congruent with studies that have explored PPI in other settings (Campbell, 2005; Martin, 2008), we found that the majority of participants in our study were highly educated, with professional or managerial backgrounds (although their careers had often ended prematurely because of ill health or caring commitments). We would suggest that there were clear parallels between our participants and Campbell’s notion of the “good citizen”: likeminded individuals from well-educated backgrounds with disposable resources (time and money).…”

Section: Resultscontrasting

confidence: 81%

Exploring the Impact of Patient and Public Involvement in a Cancer Research Setting

et al. 2013

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An enduring theme in the literature exploring patient and public involvement (PPI) in research has been the focus on evaluating impact, defined usually in terms of participants’ practical contribution to enhancing research processes. By contrast, there has been less emphasis on the perspectives and experiences of those involved in PPI. Drawing on qualitative data with people involved in the National Cancer Research Network in the United Kingdom, we report on what motivated participants to get involved and their experiences of involvement in this setting. We highlight how those involved in PPI often espoused the notion of the “good citizen,” with PPI in research being a natural extension of their wider civic interests. However, our findings also highlight how PPI was an important resource, utilized by participants to make sense of living with chronic illness. We suggest that PPI in research also offers spaces for the reconfiguration of self and identity.

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Section: Resultscontrasting

confidence: 81%

Exploring the Impact of Patient and Public Involvement in a Cancer Research Setting

et al. 2013

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“…Inequities are reproduced because those constructing ideology and policy practices sabotage efforts to articulate alternative understandings of the contributions that women make to society. If social and economic policies centered a concept like provisioning, with its broad understanding of work, anchored in the reality of responsibilities and relationships, it would lead to different discussions about citizenship, civil society, entitlements, and rewards (see Campbell 2005 for one exploration of the possibilities). A model where the market, state, and family are all visible has been advocated by a number of feminist policy scholars (Lister 1997; Skevik 2005; Staeheli and Clarke 2003; Thayer 2000; Vandenberg 2000; Yuval‐Davis 1999).…”

Section: Resultsmentioning

confidence: 99%

Provisioning Responsibilities: How Relationships Shape the Work that Women Do

Neysmith

Reitsma-Street

Baker-Collins

et al. 2010

Canadian Review of Sociology

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Cette étude documente le travail d'approvisionnement que les femmes effectuent pour elles‐mêmes et pour les autres, tout en enregistrant les contours de ce travail et en analysant les responsabilités qui y sont associées. Le concept d'approvisionnement a orienté les interviews réalisées auprès de 100 femmes. La diversité et l'étendue du travail des femmes se sont manifestées par le choix des femmes provenant de six groupes communautaires marginalisés par le revenu, la race ou l'âge dans deux provinces canadiennes. Les résultats résument les types d'activités et de stratégies d'approvisionnement que les femmes utilisent pour assumer leurs responsabilités. Parce que celles‐ci font partie des avenues de leurs relations, négocier les limites de leurs responsabilités d'approvisionnement modèle le travail quotidien des femmes et leurs possibilités de s'engager dans la société civile. This study documents the work women do to provision for themselves and others. It charts the contours of this work and examines associated responsibilities. The concept of provisioning informed interviews with 100 women. The diversity and range of women's work were surfaced by selecting women from six community groups, marginalized by income, race, and age, in two Canadian provinces. Findings summarize the types of provisioning activities and strategies women use to meet their responsibilities. Because the latter flow through pathways of relationships, negotiating the boundaries of their provisioning responsibilities shapes women's daily work and possibilities for engaging in civil society.

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“…For some, like Bhai, Grace, and Brendan, these experiences may bring into sharp relief uncomfortable positions of inequality, injustice, and frustration, faced by past and current selves, and potential future selves. This evokes the reflective and "awakening" potential of participation (Campbell, 2005): through PPI, contributors construct new interpretations of their positions within the world, and of the benefits and limitations of these positions.…”

Section: Discussionmentioning

confidence: 99%

“An Active, Productive Life”: Narratives of, and Through, Participation in Public and Patient Involvement in Health Research

Reynolds

Beresford

2020

Qual Health Res

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Public and patient involvement (PPI)—engaging the public in designing and delivering research—is increasingly expected in health research, reflecting recognition of the value of “lay” knowledge of illness and/or caring for informing research. Despite increased understanding of PPI experiences within the research process, little attention has been paid to the meaning of PPI in other areas of contributors’ lives, and its value as a broader social practice. We conducted repeated narrative interviews with five experienced PPI contributors from the United Kingdom to explore how meaning is constructed through narratives of PPI in relation to their broader “life-worlds.” Narratives were extremely varied, constructing identities and meanings around PPI in relation to family and social life, career and employment, financial status, and wider social agendas, as well as health. This emphasizes the importance of recognizing PPI as a social practice with diverse meaning and value beyond health research.

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Theorizing the Authentic

Cited by 40 publications

References 25 publications

Exploring the Impact of Patient and Public Involvement in a Cancer Research Setting

Exploring the Impact of Patient and Public Involvement in a Cancer Research Setting

Provisioning Responsibilities: How Relationships Shape the Work that Women Do

“An Active, Productive Life”: Narratives of, and Through, Participation in Public and Patient Involvement in Health Research

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