The utility of stuttering support organization conventions for young people who stutter

Gerlach, Hope; Hollister, Julia; Caggiano, Lee; Zebrowski, Patricia M.

doi:10.1016/j.jfludis.2019.105724

Cited by 19 publications

(5 citation statements)

References 42 publications

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“…A supportive social network fosters greater psychological resilience (Boyle, 2015 ) which can protect PWS from the negative psychosocial effects of stuttering including social isolation (Craig et al, 2011 ; Gerlach et al, 2019 ; Iverach & Rapee, 2014 ). One PWS stated they had previously formed a buddy system with another PWS in their SSG where they would communicate with each other and practise fluency techniques between SSG meetings.…”

Section: Discussionmentioning

confidence: 99%

“…Stuttering support groups are usually facilitated by speech-language therapists (SLTs) and offer a safe environment where PWS can come together as a community and share their feelings and experiences without being judged (Boyle, 2013 ). Many studies have shown the value of SSGs (Craig et al, 2011 ; Gerlach et al, 2019 ; Plexico et al, 2019 ). Through PWS’ perspectives, past research determined that social support could protect PWS against the negative effects of stuttering and possibly enhance participation in activities of daily living (Gerlach et al, 2019 ; Tran et al, 2011 ).…”

Section: Introductionmentioning

confidence: 99%

“…Many studies have shown the value of SSGs (Craig et al, 2011 ; Gerlach et al, 2019 ; Plexico et al, 2019 ). Through PWS’ perspectives, past research determined that social support could protect PWS against the negative effects of stuttering and possibly enhance participation in activities of daily living (Gerlach et al, 2019 ; Tran et al, 2011 ). Stuttering support groups also play an important role in reducing PWS’ internalised stigma, accepting their stutter and improving PWS’ psychological well-being (Boyle, 2013 ).…”

Section: Introductionmentioning

confidence: 99%

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Why do people who stutter attend stuttering support groups?

Bloye,

Abdoola,

Eslick

2023

South African Journal of Communication Disorders

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Background Stuttering support groups (SSGs) have been a long-standing invaluable resource for people who stutter (PWS) but research into SSGs is only emerging. Speech-language therapists (SLTs) need further insight to successfully facilitate SSGs. Objectives To determine PWS’ perspectives regarding why they attend SSGs in South Africa. Method Thirteen PWS who attend SSGs, between 20 and 58 years old, were a part of this qualitative study. Purposive sampling was utilised. Semi-structured telephonic interviews were used and data was analysed thematically. Results Four themes, namely, ‘altered perceptions’, ‘increased sense of community’, ‘support group reciprocity’, and ‘support group environment, participants and topics’, were identified. The results yielded clinical implications which included SLTs encouraging: (1) improved perceptions of being a PWS through education and self-empowerment, (2) PWS’ connections between meetings to increase the sense of community, (3) reciprocity in meetings, (4) sharing personal stories to promote learning and general self-management and (5) support, praise and education to empower and encourage PWS. This study’s findings show that SSGs helped PWS accept their stutter and gain confidence. This study showcased how SSGs can help PWS manage their fluency and gain confidence. Additionally, this study supports current research which suggests that dysfluency and social-emotional well-being should be equally addressed. Conclusion Recommendations were generated from PWS’ perspectives and included focusing discussions on fluency, emotions and sharing personal stories. Insights from PWS helped better inform SLTs of their role within SSGs including guiding and facilitating conversations. Contribution People who stutters’ perspectives can be used in clinical practice to help SLTs meet the needs of PWS and guide best practice when facilitating SSGs.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Why do people who stutter attend stuttering support groups?

Bloye,

Abdoola,

Eslick

2023

South African Journal of Communication Disorders

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“…Support groups allow the opportunity to discuss unique and shared experiences, seek advice and encouragement, and identify role models (Thoits, 2011). Furthermore, joining support groups has been shown to decrease the negative effects of stuttering by promoting resilience (Gerlach et al, 2019). Stuttering support groups can be found using the chapter locator tool on the National Stuttering Association's website (https://westutter.org/chapters/).…”

Section: Methodsmentioning

confidence: 99%

Understanding and Supporting Students Who Stutter: A Guide for Special Educators

Thome

2022

Intervention in School and Clinic

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Stuttering is a common disorder addressed by speech-language pathologists in elementary schools. Although students who stutter likely receive specialized services from speech-language pathologists, other school personnel, including special and general educators, play a key role in creating supportive and positive learning environments for these students. Most special education teachers, however, receive little or no information about stuttering. Yet, because special educators collaborate and consult regularly with general educators, they are well positioned to communicate essential information about supports that can be provided. Increased understanding of stuttering and techniques for supporting students can greatly minimize the negative outcomes experienced by many students who stutter. This article provides teachers with (a) information about stuttering to improve understanding of the disorder, (b) guidance on how to provide classroom and student-level supports to create a positive learning environment for students who stutter, and (c) recommendations for collaborating with speech-language pathologists.

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“…To better understand the effects of stuttering on social life many authors suggested the emotional statuses of AWS in different communication events [6,7,9,24]. Thereafter, the difficult situations and emotions that AWS experience during various periods of communication should be examined and addressed in the intervention process [e.g., 14,25]. Timing based (e.g., before, during, and after communication) investigation of the stuttering may help us better understanding of how emotions work in communication situations.…”

Section: Purposementioning

confidence: 99%

Emotional reactions of people who stutter in difficult communication situations: a preliminary study

Koçak¹,

Cangi²

2022

Clin Arch Commun Disord

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Purpose: Few studies have examined the emotional responses of adults who stutter (AWS) in specific situations. The aim of this study is to determine the emotions of AWS in different communication situations at various times in communication.Methods: The study included 38 AWS. The first stage of the study determined the difficulties related to stuttering in communication situations by requiring the participants to complete a questionnaire consisting of open-ended questions. The four SLTs scored these situations from various aspects (e.g., common experience of difficulty for AWS) and the final version of the 19-item list of situations in the “Determining Emotions Regarding Communication Situations in Stuttering Questionnaire (DERCSQ)” has been reached. The DERCSQ also provided a list of 90 emotions related to communication situations and stuttering. The participants completed the DERCSQ by indicating their feelings in three communication situations (before, during, and after communication).Results: The results indicated that AWS frequently experience negative emotions in different communication situations. The participants indicated that they experience the following emotions in pre-communication: excited (194), anxious (143), restless (142), tense (128), and concerned (118). During the communication, the participants experience the following emotions: uneasy (90), excited (88), uncomfortable (81), insufficient (78), and restless (75). During the after-communication period, the participants indicated that they experience the following emotions: anxiety (38), uneasy (34), uncomfortable (34), insufficient (33), and self-rage (32).Conclusions: The emotions obtained are compatible with the stuttering and psychology literature, it is remarkable that emotions such as anxiety and uneasy after stuttering were prominent.

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The utility of stuttering support organization conventions for young people who stutter

Cited by 19 publications

References 42 publications

Why do people who stutter attend stuttering support groups?

Why do people who stutter attend stuttering support groups?

Understanding and Supporting Students Who Stutter: A Guide for Special Educators

Emotional reactions of people who stutter in difficult communication situations: a preliminary study

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