The Theory of Shared Communication: How Parents of Technology-Dependent Children Communicate With Nurses on the Inpatient Unit

Trust, Health Care Relationships, and Chronic Illness

“…First, patients and family members need to continually develop their competence to deal with illness problems, and second, they must often put a lot of energy into creating an effective partnership. A good example of this can be found in the research of Giambra and colleagues (2014). These researchers developed a grounded theory of shared communication from the perspective of parents of technologically dependent children that highlights the extensive work parents undertake to explicitly join with nurses and create a partnership based on mutual understanding of the child’s plan of care.…”

“…Furthermore, the one-way focus on patients trusting physicians that predominates in the research will not contribute to effective, socially and financially responsible relationships in the context of chronic illness. Trust in the patient and the family from health care providers is also critical (Calnan et al, 2006; Giambra, Sabourin, Broome, & Buelow, 2014; Williams, McGregor, King, Nelson, & Glasgow, 2005). Reciprocal trust between patients, family members, and the broad array of providers requires attention (Gilson, 2006).…”

An Integrative Review of Communication Between Parents and Nurses of Hospitalized Technology‐Dependent Children

“…Providing clear information regarding the plan of care for the child was the most often‐noted behavior associated with parent‐nurse shared communication that improved mutual understanding of optimal care for the child (Avis & Reardon, ; Giambra, Sabourin, Broome, & Buelow, ; Shields et al., ; Shields, Hunter, & Hall, ). This included telling the parents not only everything being done for the child, but also the reasons for the care (Shields et al., ).…”

“…In the study by Margolan, Fraser, & Lenton (), parents expressed the importance of being fully involved in the discharge process for their hospitalized technology‐dependent child. Giambra and colleagues () also found parents wanted to verify that the information they had provided about the child's care was understood by the nurses.…”

Loss and rebuilding: A qualitative study of late diagnosis of cleft palate

“…Relationships are important in health care, as they play a central role in people's perceptions of and satisfaction with services (Giambra, Sabourin, Broome, & Buelow, 2014). Trust, in particular, underpins such interactions because of patients' position of vulnerability and uncertainty about diagnosis or treatment, and their dependence on clinicians (Gilson, 2006;Hallowell, 2008).…”