An Integrative Review of Communication Between Parents and Nurses of Hospitalized Technology‐Dependent Children

Giambra, Barbara K.; Stiffler, Deborah; Broome, Marion E.

doi:10.1111/wvn.12065

Cited by 29 publications

(19 citation statements)

References 24 publications

(59 reference statements)

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“…This study is viewed with caution due to the small sample size and low survey return rate of 10.2% ( n = 134 of 1320 surveys sent out) which limits the generalisability of the results (Uhl et al, 2013). Other single setting studies on partnership nursing with parents of children with long‐term conditions found that parents expected to be treated as experts in the care of their own children (Baird et al, 2016; Giambra, Stiffler, et al, 2014). Baird et al (2016) explored partnership nursing with parents of children with long‐term conditions in a single paediatric intensive care unit in the USA and found that parents reported inconsistencies in the continuity of care of their child which created issues of distrust, as some nurses provided greater insight into their child's medical diagnosis and care requirements compared to other nurses.…”

Section: Introductionmentioning

confidence: 99%

Children living with long‐term conditions: A meta‐aggregation of parental experiences of partnership nursing

Barratt

Bail

Paterson

2021

Journal of Clinical Nursing

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Aim To explore how parents of children with long‐term conditions experience partnership in paediatric and neonatal nursing care and to identify existing partnership barriers and facilitators. Background Parent–nurse partnership is fundamental to paediatric and neonatal nursing. Partnership is characterised by five attributes: parental participation, negotiation, mutual trust and respect, shared roles and decision‐making, and communication. Little is known about the parental experiences of partnership nursing specific to children living with a long‐term condition. Design A qualitative meta‐aggregation review following Joanna Briggs Institute meta‐aggregation approach. Methods A comprehensive search was conducted in six electronic databases. Studies were assessed according to the inclusion and exclusion criteria. Qualitative findings with illustrative quotes from included studies were extracted and grouped into categories which informed the synthesised findings. This review has been reported according to the PRISMA guidelines. Findings A total of 4,404 studies were screened, 162 full‐text studies were assessed against the inclusion and exclusion criteria, and a total of six studies were included. The meta‐aggregation developed three overarching synthesised findings which were as follows: (a) empowering parents to become involved, (b) effective communication to recognise mutual expertise and (c) collaborative nurse–family relationships. Conclusion Parents valued collaboration where both parents and nurses are recognised equally for their skills and expertise. A power struggle existed between parents and nurses when expertise was not recognised. Parents appreciated nurses who empowered them to develop new skills and knowledge in the care of their own child. Relevance to clinical practice Nurses need to recognise the skills and knowledge that parents have surrounding the care requirements of their own children. Collaboration and negotiation are key to successful partnership between nurses and parents. Nurses need to frequently reflect on how they are successfully partnering with both parents and children and ensure all parties in the nurse/parent/child triad feel supported and empowered.

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Section: Introductionmentioning

confidence: 99%

Children living with long‐term conditions: A meta‐aggregation of parental experiences of partnership nursing

Barratt

Bail

Paterson

2021

Journal of Clinical Nursing

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“…It can be regarded as a crisis event for children because of its numerous related stressors, such as isolation from the family and significant others, loss of control, and exposure to unfamiliar environments (Agostini et al., ; Foster, Whitehead, & Maybee, ; Kools et al., ; Tallen, Kendall, & Snider, ). For these reasons, including the parents in the nursing care of their children is beneficial to both the child and parents (Giambra, Stiffler, & Broome, ; Power & Franck, ).…”

mentioning

confidence: 99%

Factors influencing fatigue among mothers with hospitalized children: A structural equation model

Kim

Park

et al. 2017

Specialist Pediatric Nursing

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Purpose: The aim of this study was to identify the physiological, psychological, and situational factors affecting fatigue among mothers of hospitalized children. Design and Methods:This study used a cross-sectional descriptive design with a self-report questionnaire. Participants were 211 mothers with children younger than 6 years old who were admitted to general hospitals. Based on the theory of unpleasant symptoms, the physiological, psychological, and situational factors were tested using structural equation modeling.Results: Mothers' fatigue was influenced by physiological ( = .24), situational, and psychological factors ( = .17), and situational ( = .37) factors such as the mother's sleeping hours, the child's adaptation to hospitalization, anxiety and having support with their housework. These three factors explained 31.34% of the variance in fatigue. In particular, it was found that the psychological factors exacerbate the negative influence of the situational factors on fatigue. Moreover, the situational factors were most strongly related to mothers' fatigue, and they had an indirect effect via the psychological factors as a mediator.Practice Implications: It is necessary to implement a nursing intervention that targets the controllable factors such as anxiety and children's adaptation to hospitalization that were identified in this study. Pediatric nursing care should not be limited to treating children's illnesses, but should be extended to providing family-centered care.

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“…2000-2014 yılları arasında yapılan çalışmaların incelendiği bir sistematik derlemede, hastanede yatan, teknolojiye bağımlı çocukların ebeveynlerinin hemşirelerle olan iletişiminin önemli olduğu ve ailelerin bakım becerilerini görerek öğrenmek istedikleri açıklanmıştır. 29 Ayrıca sosyal hizmet uzmanları evde uzun süreli süreğen bir bakım sağlamanın yarattığı stresle başa çıkmaları konusunda aileye yardımcı olabilir. 5,10,19 Bakım sürecindeki ihtiyaçlarının saptanmasında ilk adım ailelerin hedeflerinin belirlenmesidir.…”

Section: Teknoloji Bağımlı çOcukların Evde Hemşirelik Bakımıunclassified

Technology-dependent Children and Home Care

Didişen¹,

Özdemir²,

Keskin³

2017

cayd

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An Integrative Review of Communication Between Parents and Nurses of Hospitalized Technology‐Dependent Children

Cited by 29 publications

References 24 publications

Children living with long‐term conditions: A meta‐aggregation of parental experiences of partnership nursing

Children living with long‐term conditions: A meta‐aggregation of parental experiences of partnership nursing

Factors influencing fatigue among mothers with hospitalized children: A structural equation model

Technology-dependent Children and Home Care

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