The Scholarly Neglect of Black Autistic Adults in Autism Research

Malone, Kayla; Pearson, Jamie N.; Palazzo, Kayla N.; Manns, Lonnie D. C.; Rivera, Amelia Q.; Martin, DeVoshia Mason

doi:10.1089/aut.2021.0086

Cited by 35 publications

(31 citation statements)

References 80 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Nonetheless, our participants identified intersectionality related to race and ethnicity as important. Further research with Black, Asian and Ethnic Minority communities is desperately needed (Malone et al, 2022). Although our sample reflects only the views of 225 autistic people in Scotland, this sample size is larger than many other research priority studies, where often non-autistic people's views dominate (Roche et al, 2021).…”

Section: Discussionmentioning

confidence: 98%

What are the autism research priorities of autistic adults in Scotland?

Cage¹,

Crompton²,

Dantas³

et al. 2022

Preprint

View full text Add to dashboard Cite

Studies investigating autistic community research priorities indicate a mismatch between what autism research focuses on and what autistic people want to see researched. Further, there has not been a research priority-setting exercise specifically with autistic people in Scotland, where there are unique cultural, political, and social contexts. Using a community-based participatory design, we aimed to identify the research priorities of autistic adults living in Scotland. Autistic and non-autistic researchers designed and conducted a survey where 225 autistic adults rated and ranked research topics in order of importance and provided qualitative feedback on issues and questions important to them. The top five research priorities were: mental health/wellbeing, identification and diagnosis of autistic people, support services, knowledge and attitudes towards autistic people, and issues impacting autistic women. There were differences in priorities according to different intersections of identity, and qualitative responses indicated a desire for research to focus on support and understanding. The bottom three priorities concerned genetics, treatments and interventions, and causes. These findings emphasise the need to address the gap between what autism research focuses on and the everyday lives of autistic people.

show abstract

Section: Discussionmentioning

confidence: 98%

What are the autism research priorities of autistic adults in Scotland?

Cage¹,

Crompton²,

Dantas³

et al. 2022

Preprint

View full text Add to dashboard Cite

show abstract

“…However, we are united in combating ableism and in believing that cognitive science cannot be truly representative until it empowers and engages with neurodivergent populations and in emphasizing the intersectional nature of neurodiversity. Social and institutional barriers—such as higher rates of misdiagnosis/misidentification of neurodivergence—disproportionately impact disabled people, people of color, and women (Davis, Solomon, & Belcher, 2022; Diemer, Gerstein, & Regester, 2022; Jack, 2011; Malone et al., 2022; Zener, 2019). Neurodivergence also intersects with queerness and variant gender identity (Walker, 2021).…”

Section: Positionality Statementmentioning

confidence: 99%

From Puzzle to Progress: How Engaging With Neurodiversity Can Improve Cognitive Science

et al. 2023

View full text Add to dashboard Cite

show abstract

“…It should be also noted that in various media autism is mainly portrayed as almost all white phenomenon, with main characters of the most popular tv shows and press articles being white males (Heilker, 2012 ; Onaiwu, 2020 ). The scientific community also seems to marginalize people of color in the research (Malone et al, 2022 ). Such homogenic autism representation might be especially disturbing as there is some evidence that race and ethnicity of an autistic child may influence the work of clinicians resulting in different thresholds for diagnosis or even substantially delay it (Becerra et al, 2014 ; Mandell et al, 2009 ).…”

Section: Public Views On Autismmentioning

confidence: 99%

How to Minimize the Impact of Experts’ Non-rational Beliefs on Their Judgments on Autism

Wodziński

Rządeczka

Moskalewicz

2022

Community Ment Health J

View full text Add to dashboard Cite

The non-autistic majority often judges people on the autism spectrum through the prism of numerous stereotypes, prejudices, cognitive biases, or, generally speaking, non-rational beliefs. This causes problems in autistic people’s everyday lives, as they often feel stigmatized, marginalized, and they internalize deficit-laden narratives about themselves. Unfortunately, experts, including health or law professionals, are not entirely immune to these non-rational beliefs, which affect their decision-making processes. This primarily happens when a mix of background knowledge, overconfidence, and haste co-occur. The resulting decisions may impact autistic people, e.g., by determining eligibility for the state’s therapeutical and financial support. This paper shows how simplified reasoning and inference may influence experts’ (medical examiners or court expert witnesses) decision-making processes concerning autistic people. It also proposes particular clues and strategies that could help experts cope with this risk and avoid making biased decisions.

show abstract

The Scholarly Neglect of Black Autistic Adults in Autism Research

Cited by 35 publications

References 80 publications

What are the autism research priorities of autistic adults in Scotland?

What are the autism research priorities of autistic adults in Scotland?

From Puzzle to Progress: How Engaging With Neurodiversity Can Improve Cognitive Science

How to Minimize the Impact of Experts’ Non-rational Beliefs on Their Judgments on Autism

Contact Info

Product

Resources

About