Background: The systematic support of parents of children with eczema is essential to their effective management. The few existing support models have a limited evidence base. This paper reports the outcome-orientated service evaluation of an original, extensive social learning theory based, nurse-led Eczema Education Programme (EEP).Objectives: To evaluate the EEP using specified child and parental outcomes and service impact data.Methods: From a sample of 257 parent-child dyads attending the EEP, a pretest-posttest design evaluated its child impact using health related quality of life measures (Infant's Dermatitis Quality of Life index, IDQOL, which includes a small dermatitis severity element; Children's Dermatology Life Quality Index, CDLQI), severity measures (Patient Orientated Eczema Measure, POEM), a new parental measure (Parental Self-Efficacy in Eczema Care Index, PASECI) and service impact data based on General Practice (GP) attendance patterns pre-post intervention.Results: Statistically significant impacts were observed, compared to baseline, on infant quality of life (p<0.001), child quality of life (p=0.027), disease severity (p<0.001) and parental self-efficacy (p<0.001). Improvements in child quality of life, parental efficacy and service impact were also evident from qualitative data. The cumulative total of all GP visits for selected participants post EEP reduced by 62%.
Conclusions:The EEP appears to be an effective model of delivering structured education to parents of children with eczema and one generalizable to other multi-ethnic metropolitan populations. As a non-controlled study, this rigorous service evaluation highlights the model's significance and the case for an evaluative multi-centre randomised controlled trial of this educational intervention to inform a nurse-led programme of care.