A service evaluation of the Eczema Education Programme: an analysis of child, parent and service impact outcomes

Ersser, Steven J.; Farasat, Helen; Jackson, Karina; Dennis, H. G.; Sheppard, Zoë; More, A.

doi:10.1111/bjd.12414

Cited by 26 publications

(38 citation statements)

References 26 publications

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“…Findings from this study on the challenges of self-management largely concur with existing literature. Practices are influenced by: carer’s beliefs about eczema treatments; the time consuming nature of treatments; child resistance46; lack of knowledge, skills and confidence47 48; and difficulty in identifying reliable information from the vast available volume 49 50. Observations on the desire for knowledge and greater control over the condition reaching a trigger point has similarities with a study of parents of children with other long-term conditions in which information seeking patterns change over time and according to where the person is in their life course 51…”

Section: Discussionmentioning

confidence: 99%

Knowledge mobilisation: an ethnographic study of the influence of lay mindlines on eczema self-management in primary care in the UK

Cowdell

2018

BMJ Open

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ObjectiveTo investigate the way in which mindlines, ‘collectively reinforced, internalised tacit guidelines’, are constructed among lay people with eczema in primary care.DesignEthnographic study.SettingObservation in one general practice in the UK and interviews across central England.ParticipantsIn observation, patients in the participating general practice regardless of presenting complaint and in interviews, people with eczema or parents of children with eczema (n=16).ResultsObservation of over 250 hours and interview data were combined and analysed using an ethnographic approach through the lenses of mindlines and self-management. Four themes were identified: doctor knows best; not worth bothering the doctor; I need to manage this myself; and how I know what to do. Themes were set within the context of four broad typologies of lay people’s approach to self-management: content to self-manage; content to accept practitioner management; self-managing by default; and those referred to secondary care.ConclusionsThis study is the first to examine how lay eczema mindlines are developed and to recognise typologies of people with different need for, and receptiveness to, information. Lay eczema mindlines are constructed in many ways. The outstanding challenge is to find strategies to revise or modify these mindlines by adding reliable and useful knowledge and by erasing outdated or inaccurate information.

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Section: Discussionmentioning

confidence: 99%

Knowledge mobilisation: an ethnographic study of the influence of lay mindlines on eczema self-management in primary care in the UK

Cowdell

2018

BMJ Open

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“…The development of an outcome measure of parental self‐efficacy in eczema care provides a basis for evaluating interventions directed towards enhancing parental confidence in managing their child's condition. This study set out to develop and then validate a tool to measure parental self‐efficacy and test the feasibility of its clinical application through a wider study evaluating an Eczema Education Programme (EEP) directed at supporting parents in managing their child's eczema …”

mentioning

confidence: 99%

“…The Parental Self‐Efficacy with Eczema Care Index (PASECI) was developed as an outcome measure for a study investigating the feasibility and impact of a structured education programme, termed the EEP, which was designed for parents of children with eczema. Through the initial phase of delivery of the EEP we planned to develop and validate this scale . The EEP service offered parents access to standardized, evidence‐based eczema education delivered in both specialist centres and the community .…”

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confidence: 99%

Parental self-efficacy and the management of childhood atopic eczema: development and testing of a new clinical outcome measure

et al. 2015

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Summary Background Effective parental management of childhood eczema requires education and support to reduce disease severity and improve the child's quality of life. Self‐efficacy is a key factor influencing effective chronic disease management, yet there are no published scales to measure parental self‐efficacy in managing childhood eczema. The Parental Self‐Efficacy with Eczema Care Index (PASECI) was designed to measure parental self‐efficacy in managing childhood eczema as a pre‐ and postintervention tool in the evaluation of a structured Eczema Education Programme (EEP). Objectives To develop and test the validity, reliability and sensitivity of a new outcome measure (PASECI) designed to assess parental self‐efficacy in managing their child's eczema to determine pre‐ vs. postintervention changes in educational intervention evaluation studies. Methods PASECI was developed from the literature, expert consultation and piloting of a 40‐item prototype. The final 29‐item scale is arranged in four subscales. Parents of children with eczema aged 0–16 years (n = 242) attending the EEP were assessed at 1 week pre‐EEP and 4 weeks postintervention. Cronbach's α and factor analyses were undertaken. Results PASECI has face, content and construct validity. It is reliable, with high item internal consistency (α > 0·87 in all domains). Factor analysis revealed four viable domains. It was sensitive to change for postintervention measures using sign tests (P < 0·001). Conclusions PASECI is a useful, valid, reliable and sensitive evaluative outcome measure of self‐efficacy in parents managing childhood eczema.

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“…The EEP was feasible to implement in a high deprivation, highly mobile urban health community, for whom good access was achieved, but relied on educational delivery by specialist dermatology nurses. It complements recently published work by the same group that reveals that the EEP intervention led to statistically significant parental, child and service impact outcomes being achieved, when evaluated using a non‐controlled observational study . The EEP is the first nurse‐led model to be delivered on a large scale across both primary and secondary care and is one of the largest reported eczema education programmes in Europe.…”

Section: Resultsmentioning

confidence: 54%

“…This study provides additional detail on the nature and development of the intervention and its evaluation in terms of parental access and satisfaction data. This complements work recently published by the group on the efficacy of the intervention using observational pretest posttest design, but not controlled trial methodology . The latter focuses on parental, child and service impact outcomes – with statistically significant impacts being observed, compared with baseline, on infant quality of life ( P < 0.001), child quality of life ( P = 0.027), disease severity ( P < 0.001) and parental self‐efficacy ( P < 0.001).…”

Section: Discussionmentioning

confidence: 55%

The Eczema Education Programme: intervention development and model feasibility

Jackson

Ersser

Dennis

et al. 2013

Acad Dermatol Venereol

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It was feasible to provide the EEP as an adjunct to normal clinical care on a large scale, achieving a high level of patient/parent satisfaction and access within an urban area of multiple deprivation and high mobility. The intervention is transferable and the results are generalizable to other ethnically diverse child eczema populations within metropolitan areas in Britain. A multicentre RCT is required to test the effectiveness of this intervention on a larger scale.

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A service evaluation of the Eczema Education Programme: an analysis of child, parent and service impact outcomes

Cited by 26 publications

References 26 publications

Knowledge mobilisation: an ethnographic study of the influence of lay mindlines on eczema self-management in primary care in the UK

Knowledge mobilisation: an ethnographic study of the influence of lay mindlines on eczema self-management in primary care in the UK

Parental self-efficacy and the management of childhood atopic eczema: development and testing of a new clinical outcome measure

The Eczema Education Programme: intervention development and model feasibility

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