“…In the bulimia nervosa group, we also observed there was no conflict avoidance, as seen in the study with French adolescent girls using the same methods (31), although there was a mechanism of avoidance of family members in some teens in our study. They did not confront the teenager for fear of the reactions that she may have in face of criticism.…”
Section: Discussionsupporting
confidence: 74%
“…This issue was the starting point of a research project conducted by our team: to study the interrelations between eating disorders and family relationships in adolescence in different cultural contexts. Several studies have been carried out in normal and pathological contexts both in France and Brazil (27)(28)(29)(30)(31), using photo elicitation, a visual narrative method which consists of using one or several photographs taken by the subject as the basis of the interview (32).…”
Family components can play roles both as protective factors and maintenance mechanisms of eating disorders. We aimed to investigate the role of food in the family relationships of adolescents with anorexia nervosa and bulimia in northeastern Brazil. Using photo elicitation, a visual narrative method that gives insight into the participants' perspective through photograph, we conducted semi-structured interviews with 26 people: four teenage girls with anorexia, four with bulimia, eight mothers, four fathers, five grandmothers, and one sister. Data were analyzed using the principles of Interpretative Phenomenological Analysis, which highlighted the following themes: control of the parent-adolescent relationship through food; food as a mean of experiencing parental presence-absence; food as the focus of conflict in the nuclear family, and food as a source of three-generational conflict. Food seemed to be a means for teens and parents to express physical suffering and psychological violence. Moreover, mourning appeared to influence the girls' relationships with food. Conflict in these families is not focused solely on food, but extends to other subjects, and teenagers' emotional reactivity concerning their relationship with their parents and food during family mealtimes varied. These features reinforced the cultural aspect and influences of eating experiences among adolescent girls with eating disorders. Remarkable disparities exist in the generations' views on what rules and rituals these adolescents must follow at meals. These disparities can obfuscate generational boundaries in these families. Our data reinforce the need to focus on the adolescent's autonomy in the family setting and on family identity as related to food among three generations. These findings necessitate a reorganization of boundaries between these generations.
“…In the bulimia nervosa group, we also observed there was no conflict avoidance, as seen in the study with French adolescent girls using the same methods (31), although there was a mechanism of avoidance of family members in some teens in our study. They did not confront the teenager for fear of the reactions that she may have in face of criticism.…”
Section: Discussionsupporting
confidence: 74%
“…This issue was the starting point of a research project conducted by our team: to study the interrelations between eating disorders and family relationships in adolescence in different cultural contexts. Several studies have been carried out in normal and pathological contexts both in France and Brazil (27)(28)(29)(30)(31), using photo elicitation, a visual narrative method which consists of using one or several photographs taken by the subject as the basis of the interview (32).…”
Family components can play roles both as protective factors and maintenance mechanisms of eating disorders. We aimed to investigate the role of food in the family relationships of adolescents with anorexia nervosa and bulimia in northeastern Brazil. Using photo elicitation, a visual narrative method that gives insight into the participants' perspective through photograph, we conducted semi-structured interviews with 26 people: four teenage girls with anorexia, four with bulimia, eight mothers, four fathers, five grandmothers, and one sister. Data were analyzed using the principles of Interpretative Phenomenological Analysis, which highlighted the following themes: control of the parent-adolescent relationship through food; food as a mean of experiencing parental presence-absence; food as the focus of conflict in the nuclear family, and food as a source of three-generational conflict. Food seemed to be a means for teens and parents to express physical suffering and psychological violence. Moreover, mourning appeared to influence the girls' relationships with food. Conflict in these families is not focused solely on food, but extends to other subjects, and teenagers' emotional reactivity concerning their relationship with their parents and food during family mealtimes varied. These features reinforced the cultural aspect and influences of eating experiences among adolescent girls with eating disorders. Remarkable disparities exist in the generations' views on what rules and rituals these adolescents must follow at meals. These disparities can obfuscate generational boundaries in these families. Our data reinforce the need to focus on the adolescent's autonomy in the family setting and on family identity as related to food among three generations. These findings necessitate a reorganization of boundaries between these generations.
“…Regarding the findings mentioned above, we want to point out that since the late 70's it has been described that eating disorders take place in the context of specific family dynamics driven by a set of rules in which family members tend to repeat behaviors that compromise the autonomy of other members. Thus, a maintenance circuit for those behaviors emerges and the psychosomatic symptom is self-perpetuated over time (Dawson, Rhodes, & Touyz, 2014;Lecomte et al, 2019;Liebman, Minuchin, & Baker, 1974;Pace, Cavanna, Guiducci, & Bizzi, 2015;Reich, von Boetticher, & Cierpka, 2016). This mechanism has been described as characteristic of alexithymic (Onnis & Di Gennaro, 1987) or psychosomatic families (Minuchin et al, 1975) in which the eating disorder acts as a symptom that helps the family to avoid conflict and emotional stress, or to express the conflict somatically.…”
Background. Anorexia nervosa is a complex and highly variable disorder. Preventing patients from becoming resistant to treatments is fundamental since an important percentage develops a severe and enduring disorder; and because relapse is highly associated with psychiatric comorbidity, poor prognosis, and serious medical consequences due to malnutrition. Contemporary treatments for anorexia nervosa support the benefits of involving the family in treatment, and although the gold standard of family psychotherapy offers an excellent option for anorexia nervosa, that intervention is aimed at early stages, and therapeutic options for later stages of the disorder are reduced and not clearly established. Objective. Expose the therapeutic effect of the protocol for severe and enduring cases of anorexia nervosa at relapse, used at the Clinic of Eating Behavior of the National Institute of Psychiatry, Ramón de la Fuente Muñiz, whose theoretical foundation is systemic therapy. Method. To develop this case report, we carried out an in-depth review of the clinical records, and of the clinic attendance records of the case presented here. CARE clinical case report guidelines format were used. Results. The case shows how a young woman, diagnosed with anorexia nervosa with clinical signs of severe and enduring anorexia nervosa (SE-AN), was able to achieve symptomatic remission after her parents, but not her, were administered the protocol for SE-AN. Discussion and conclusion. Here we present an emblematic case showing the importance of getting the parents involved in the treatment of anorexia nervosa.
“…The study of Lecomte et al 37 aimed to understand the role of food in family interactions amongst teenagers with Bulimia Nervosa. As part of their method, participating teenagers were asked to take a photograph of the table after a family meal before clearing to discuss with the researcher during an interview.…”
Section: Assessment Of Methodological Qualitymentioning
confidence: 99%
“…Several studies reported the potential of arts-based research methods to elicit information that is not readily expressed in words or text. [36][37][38][39][40] Several authors argued that ABM allowed for participants' viewpoints to be represented with greater authenticity and depth. 2,37,[40][41][42][43][44] Young people were also reported to be able to better disclose and share complex and difficult experiences and emotions.…”
Section: Enriching Data Through Arts-based Research Methodsmentioning
Background
Arts‐based methodologies and methods (ABM) can elicit rich and meaningful data with seldom‐heard groups and empower participants in research. Young people with complex psychosocial needs could be better engaged in research using arts‐based approaches to overcome communication and literacy issues as well as distrust of those with power, including researchers. A critical review of the use and impact of ABM among this population is timely. The purpose of this review is to synthesize and examine the experience and use of ABM with young people with complex psychosocial needs.
Methods
A systematic narrative literature review was conducted with a search of the literature from 2009 to 2021. All abstracts were reviewed independently by two authors and full papers were screened for eligibility against inclusion and exclusion criteria. Data synthesis focused on a descriptive numerical summary and a thematic analysis focused on key patterns across papers relating to the review objectives.
Results and Discussion
A total of 25 papers were included. The most common issues of focus were mental health (n = 10) and homelessness (n = 11) and methods using Photovoice (n = 12) and Body Mapping (n = 5). Individual interview data (n = 20) were the most commonly analysed, followed by created works (n = 19). Less than half the studies involved young people in the interpretation of the data collected. Knowledge translation was not described in almost half the studies, with public exhibits (n = 7) and forums with service providers (n = 4) being the most common activities. Key themes across the studies were valued over traditional methods in eliciting data, ABM as an approach to engage these young people in research and the impact of the use of ABM on participants and on key stakeholders through knowledge translation.
Conclusions
The growing field of ABM presents opportunities to enhance research with young people with complex psychosocial needs by promoting meaningful exploration of experiences, engaging participants in research and strengthening knowledge translation. The involvement of young people in the interpretation of data and ensuring that knowledge translation occurs are key areas for future attention.
Patient or Public Contribution
The findings of this review will inform future research to improve the engagement of young people with complex psychosocial needs in research and promote power sharing between researchers and research participants.
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