The relatives&amp;rsquo;&amp;nbsp;voice: how do relatives experience participation in reablement? A qualitative study

Hjelle, Kari Margrete; Alvsvåg, Herdis; Førland, Oddvar

doi:10.2147/jmdh.s122385

Cited by 37 publications

(65 citation statements)

References 25 publications

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“…Earlier studies in Sweden have also reported on family caregivers' need for professional caregivers to acknowledge their practical efforts and to affirm the choices made (20,28,29). When professional caregivers take over, it also creates free time for family caregivers for relax and recharge (17). Similar findings are indicated by the present study, and therefore, family caregivers must be given sufficient time for relief in order to provide everyday support.…”

Section: Reflections On the Findingssupporting

confidence: 84%

A responsibility that never rests – the life situation of a family caregiver to an older person

Jarling

Rydström

Bravell

et al. 2019

Scandinavian Caring Sciences

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Background When the ageing population increases, the burden and responsibility of close family members will likely increase. Those closely related who assume a great responsibility can be significantly affected in health, well‐being and daily life. Aim This study aims to describe the life situation when family caregivers are imposed responsibility for an older person with complex care needs in their own home. Methods In this Swedish qualitative study, ten family caregivers were strategically selected in order to achieve variations in the life situation. A reflective lifeworld research design based on phenomenological philosophy was used throughout the data collection with the lifeworld interviews and the analytic process. Findings In terms of extensive responsibility, the life situation is complex and involves emotions that are difficult to manage. In essence, a paradoxical life situation is described which is experienced as both voluntarily and nonchosen at the same time. The responsibility never rests. The essential meaning is further illustrated with three constituents: loss of freedom, contradictory feelings and affected relationships. Conclusion A life situation with extensive responsibility for an older family member interferes with the whole life situation with an impact on health and relationships with other people. The findings are crucial for professional caregivers in order to capture the nature of family support in a way that enables a meaningful life for both the family caregiver and the older person being cared for. Knowledge of this will give professional caregivers an increased awareness of the life situation of family caregivers and provide a better understanding of the support they are longing for, and, in some countries, such as Sweden, also are entitled to by law.

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Section: Reflections On the Findingssupporting

confidence: 84%

A responsibility that never rests – the life situation of a family caregiver to an older person

Jarling

Rydström

Bravell

et al. 2019

Scandinavian Caring Sciences

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“…The use of a structured process for goal identification has been shown to be effective in terms of better outcomes on health‐related quality of life (Parsons, Rouse, Robinson, Sheridan, & Connolly, ). The idea of focusing on those activities that the person identifies as most important have been highlighted as an essential component of reablement (Hjelle, Alvsvåg, & Førland, ; Hjelle, Tuntland, Førland, & Alvsvåg, ). Therefore, the process of identifying those activities is a critical feature.…”

Section: Discussionmentioning

confidence: 99%

“…Recently, a Norwegian research group included ‘to be active and participate in society’ as a focus of reablement (Tuntland et al, ). The person‐centred approach and setting of personally meaningful goals were seen as keys to promoting the persons’ motivation during the reablement period of 10 weeks (Hjelle, Alvsvåg, et al, ; Hjelle, Tuntland, et al, ). The intervention resulted in positive effects on activity performance and satisfaction with activity performance (Tuntland et al, ).…”

Section: Discussionmentioning

confidence: 99%

“…However, advising relatives was only reported in around 10% of all cases. Hjelle and colleagues reported that the involvement of relatives in reablement is important but at the same time complex (Hjelle, Alvsvåg, et al, ; Hjelle, Tuntland, et al, ). While relatives expressed their will to contribute both in terms of giving and receiving information it was not part of routine practices to invite the relatives in the process.…”

Section: Discussionmentioning

confidence: 99%

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Characteristics of occupational therapy and physiotherapy within the context of reablement in Swedish municipalities: A national survey

Zingmark

Evertsson

Haak

2020

Health Soc Care Community

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Reablement is a multidisciplinary, home‐based intervention implemented for people at risk of functional decline and losing independence aiming to optimise functioning and independence in activities of daily living. There is limited knowledge about what characterises the intervention and the role of different professionals. The purpose of this study was to explore the characteristics and differences of occupational therapy and physiotherapy interventions in terms of focus, content and duration within the context of reablement in Swedish municipalities. Web‐based surveys were used to collect data from 43 municipalities representing 25% of the population in Sweden. Data on intervention characteristics were reported for all cases receiving occupational therapy (n = 1,395) and physiotherapy (n = 1,006) over a 15‐week period. Data were presented descriptively, and differences between occupational therapy and physiotherapy were analysed using Chi‐square tests. The results indicated that reablement in Sweden was implemented for adults in all ages (19–103 years, median 81.0 years); 72% had home help. For both professions, a baseline assessment was made in fewer than half of all cases. There were significant differences between occupational therapists and physiotherapists regarding the focus and content as well as the number of contacts and duration of the intervention. For occupational therapists, walking indoors and self‐care were the largest focus areas, whereas for physiotherapists walking indoors and body function were the largest focus areas. For most cases, the intervention was completed within five sessions over a 6‐week period. This study provides the first picture of occupational therapy and physiotherapy within Swedish reablement contexts. In relation to the results, the focus of interventions, how assessments are made and how the intervention is implemented over time are issues that can be further elaborated.

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“…After screening 2,304 unique records, of which 236 were examined in full-text, 43 articles met our eligibility criteria and served as the overall data material for the scoping review (illustrated in Figure 1-Prisma Flow Diagram). Among these studies were 12 intervention studies, including ve RCTs (30)(31)(32)(33)(34), ve non-randomized controlled trials (35)(36)(37)(38)(39) and two non-controlled pre-post study (40,41), in addition to one RCT long-term follow up study (42); four studies with mixed design/other (43)(44)(45)(46); three studies based on quantitative research (47)(48)(49); and 23 qualitative studies, of which 15 focused on HCPs' perspectives (50)(51)(52)(53)(54)(55)(56)(57)(58)(59)(60)(61)(62)(63)(64), six on older adults' perspectives (65)(66)(67)(68)(69)(70) and two on family members perspectives (71,72).…”

Section: Data Charting Processmentioning

confidence: 99%

Integration of physical activity in reablement for community dwelling older adults: a systematic scoping review

Mjøsund

Moe

Burton

et al. 2019

Preprint

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Introduction: Reablement is a rehabilitative intervention provided to homecare receivers (mostly older adults) with the aim of improving function and independence. There is limited evidence of the effectiveness of reablement and the content of these interventions is variable. Physical activity (PA) is known to be important for improving and maintaining function among older adults, but it is unclear how PA is integrated in reablement.Objective: To map existing evidence of how PA strategies are integrated and explored in studies of reablement for community dwelling older adults and to identify knowledge gaps.Methods: An apriori protocol was published. Studies investigating or exploring time-limited (within 6 months), interdisciplinary reablement for community-dwelling older adults, published in English, Norwegian, Danish, Swedish and German were considered for inclusion. PubMed, Cochrane central register of controlled trials, Embase, PsycINFO, AMED, PEDro, CINAHL and Google Scholar were searched for studies published between 1996 and July 2019, in addition to reference and citation searches. Study selection and data extraction were made independently by two reviewers.Results: Forty-three studies were included. Exercise strategies and practice of daily activities were reported to be included in the majority of intervention studies, but in most cases, no information was provided about the degree or intensity of which PA was involved, or how PA interventions were targeted to individual needs. Interventions aiming to increase general PA levels or reduce sedentary behavior were rarely described. None of the studies explored older adults’, health care providers’ or family members’ experiences with PA in a reablement setting, but some of the studies touched upon themes related to PA experiences. Some studies reported outcomes of physical fitness, including mobility, strength and balance, but there was insufficient evidence for any synthesis of these results. None of the studies reported PA levels among older adults receiving reablement.Conclusion: There is limited evidence regarding how PA is integrated in reablement, including how PA strategies are targeted to older adults’ individual needs and preferences in a reablement setting. The feasibility, and effectiveness of PA interventions, as well as experiences or barriers related to PA in a reablement setting should be further investigated.

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The relatives’ voice: how do relatives experience participation in reablement? A qualitative study

Cited by 37 publications

References 25 publications

A responsibility that never rests – the life situation of a family caregiver to an older person

A responsibility that never rests – the life situation of a family caregiver to an older person

Characteristics of occupational therapy and physiotherapy within the context of reablement in Swedish municipalities: A national survey

Integration of physical activity in reablement for community dwelling older adults: a systematic scoping review

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