The relationship of self‐compassion and hope with quality of life for individuals with bleeding disorders

Abstract

Introduction Minimal research has been conducted examining the relationship of positive psychology variables with quality of life (QOL) for individuals with bleeding disorders. While many individuals manage their bleeding disorders well, some are at higher risk of developing psychosocial complications due to the daily stressors of managing illness‐related symptoms. Aim The purpose of this study is to better understand the relationships between two positive psychology variables, self‐compassion and hope and QOL (overall, psychosocial and physical) among individuals diagnosed with bleeding disorders. Methods Participants completed a survey identifying demographic information as well as rating scales of self‐compassion, hope and quality of life. We conducted Pearson correlational and standard multiple regression analyses to explore the bivariate and linear relationships between the aforementioned variables in a sample of 86 patients with bleeding disorders between the ages of 15 and 65. Results Self‐compassion and hope were significantly related to QOL. Together, self‐compassion and hope were predictive of overall QOL, psychosocial QOL and physical QOL. However, hope was the only individual predictor of all three QOL dimensions. Conclusion Due to the significant relationships found between self‐compassion, hope and QOL in this sample, it may be beneficial to incorporate positive psychology factors into the treatment of those diagnosed with bleeding disorders, especially those at higher risk for decreased QOL.

Emotional Regulation, Self-Compassion, Medication Adherence and Quality of Life in Dermatologic Patients

“…The results indicated a significant negative relationship between perceived stress and quality of life. On the other hand,self-compass is significantly positively correlatedwith quality of life 39 .…”

The Effect of Self-Compassion on Psychosocial and Clinical Outcomes in Patients With Medical Conditions: A Systematic Review

“…They demonstrated that HbA1c levels improved after the intervention and at the three-month follow-up significantly in the experimental group (baseline: 74. 25 A negative relationship at the .1 level (p = .055) was demonstrated between anxiety and self-compassion; participants who felt anxious were less likely to be self-compassionate. The results also illustrated a significant regression coefficient for self-compassion and shame (β = -1.615, SE = .515, t = -3.138, p = .003).…”

“…Eight articles were further excluded, for reasons shown in the Appendix section ( Figure 1). Finally, 19 articles (n=2,713 patients, of which 73.3% were females) met our eligibility criteria and were included in this systematic review [15][16][17][18][19][20][21][22][23][24][25][26][27][28][29][30][31][32][33]. The baseline characteristics of the included studies are comprehensively described in Table 1.…”

Health and quality of life of patients with haemophilia: A national study of 124 Danish men

“…1 Bleeding disorders have the potential to affect many aspects of health-related quality of life (HRQOL), including physiological, psychological, social, educational and occupational functioning. 2 The evaluation of HRQOL is essential for the full assessment of the disease burden, and HRQOL is increasingly recognized as a significant component of modern haemophilia management, and as an important health outcome measure in haemophilia, which may help in improving treatment strategies. 3 A review from 2012 concluded that HRQOL is reduced in persons with haemophilia, with a potential impact on education and employment, particularly when prophylactic treatment is not available.…”

“…Bleeding disorders, such as haemophilia and von Willebrand disease (VWD) are inherited conditions characterized by insufficient production of clotting factors in the blood 1 . Bleeding disorders have the potential to affect many aspects of health‐related quality of life (HRQOL), including physiological, psychological, social, educational and occupational functioning 2 . The evaluation of HRQOL is essential for the full assessment of the disease burden, and HRQOL is increasingly recognized as a significant component of modern haemophilia management, and as an important health outcome measure in haemophilia, which may help in improving treatment strategies 3 .…”