The (putative) pathological impact of fibromyalgia on the orofacial system

Baat, C. de; Gerritsen, A.E.; Baat-Ananta, M. de; Baat, Paul de

doi:10.5177/ntvt.2016.03.15240

Cited by 3 publications

(2 citation statements)

References 18 publications

(20 reference statements)

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“…Furthermore, Rhodus et al 18 outlined that dysphagia can occur in conjunction with other oral symptoms in this population. These symptoms include xerostomia, glossodynia dysgeusia and odynophagia, a point which was also emphasised by De Baat et al 19 These studies highlight the currently ambiguous nature of the relationship between fibromyalgia and dysphagia, and the need for further investigation into the causation and presentation of this condition. The sparse amount of research into this topic was re-emphasised recently in a systematic review, which found a very limited number of available studies which investigated dysphagia in those with fibromyalgia.…”

Section: Dysphagiamentioning

confidence: 78%

The lived experiences of oropharyngeal dysphagia in adults living with fibromyalgia

Gilheaney,

Hussey,

McTiernan

2023

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BackgroundFibromyalgia is a chronic pain condition which has recently been linked with eating, drinking and swallowing difficulties (dysphagia). However, to date, sample sizes within completed research are small and study designs heterogeneous, and therefore, little is known about the lived experiences of dysphagia among people with fibromyalgia. To go some way towards addressing this gap in the literature, this study collected and analysed the first‐hand experiences of the physical symptoms, the psychosocial impacts and environmental factors that influenced the lived experience of a sample of people living with fibromyalgia‐associated dysphagia.MethodsQualitative semi‐structured interviews were conducted with adults with dysphagia and fibromyalgia. Reflexive thematic analysis was employed and themes were identified regarding the reported experience and impact of swallowing problems. The same researcher conducted the interviews and extracted all data, and a second researcher analysed a random sample of 5% of the data for accuracy, with no disagreements arising between the two researchers.ResultsAll participants (n = 8) reported the negative psychosocial impact of their dysphagia. Participants reported managing their dysphagia independently, primarily using compensatory strategies. Participants discussed feeling unsupported in healthcare interactions due to clinicians not understanding the occurrence, nature or impact of eating, drinking and swallowing difficulties. Participants also reported that they did not have access to evidence‐based management strategies that adequately addressed their fibromyalgia‐related swallowing problems.ConclusionsDespite minimal previous research in this area, findings here highlight the impact that dysphagia has on people with fibromyalgia. A broad range of physical symptoms were reported to have negative consequences across both social and emotional domains. The reported symptoms often required complex coping strategies and sometimes impeded participants from seeking suitable medical intervention from healthcare providers. There are both broad‐ranging implications of fibromyalgia‐associated dysphagia and reported poor perceptions of medical interactions for this cohort of patients. Therefore, there is evidently a need for clinical research into the management of this condition to develop patient‐centred care delivery options and to equip healthcare professionals with the knowledge and skills necessary to provide efficacious management to this group.Patient or Public ContributionBefore initiation of the qualitative interviews, the interview schedule was piloted with an individual living with fibromyalgia and dysphagia, with feedback provided on the appropriate wording and format of semi‐structured questioning.

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Section: Dysphagiamentioning

confidence: 78%

The lived experiences of oropharyngeal dysphagia in adults living with fibromyalgia

Gilheaney,

Hussey,

McTiernan

2023

Health Expectations

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“…Fujarra et al (46) evaluated TMJ disorder symptoms in FMS patients and found that FMS patients were suffering TMJ symptoms with muscle disorders, disc displacement and myofascial pain with limited mouth opening. Oral manifestations of FMS, such as TMJ dysfunction, xerostomia, hyposalivation and burning mouth syndrome have also been suggested (34,47). Ghurye and McMillan (48) also suggested that pain in the TMJ might be associated with other chronic pain conditions such as FMS, irritable bowel syndrome and migraine.…”

Section: Discussionmentioning

confidence: 99%