The psychosocial impact of recurrence on cancer survivors and family members: a narrative review

García-Vivar, Cristina; Canga, Navidad; Canga, A.; Arantzamendi, María

doi:10.1111/j.1365-2648.2008.04939.x

Cited by 43 publications

(36 citation statements)

References 61 publications

(85 reference statements)

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“…Even though they did not explicitly check for mediating effects on children's emotional and behavioral problems, it is conceivable that recurrence and type of cancer are related to children's well-being. Recurrence or complication in treatment have been repeatedly shown to significantly affect the family of cancer patients [35,36]. However, there is also evidence that rather the 'perceived experienced stressfulness of the parental illness' is associated with emotional distress in children than stage or prognosis [24,37].…”

Section: Impact Of Parental Cancer: Emotional and Behavioral Functioninmentioning

confidence: 98%

When a parent has cancer: challenges to patients, their families and health providers

Krauel

Simon

Krause-Hebecker

et al. 2012

Expert Review of Pharmacoeconomics & Outcomes Research

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At least 14% of cancer patients live with minor children. Being a parent with cancer has far-reaching consequences for individual treatment decision-making and quality of life in patients and their families. Even though the majority of children and adolescents do not show clinically relevant symptoms of psychopathology, worries about the survival of the parent and the future development of the family are present, and experienced as distressing, in most children. Open communication by parents and clinicians has been found to be of major importance for children and adolescents in adjusting to parental cancer. Support for parents with cancer on relevant parenting issues, starting in the diagnostic phase, should be acknowledged as an important facet of cancer care to reduce the psychosocial burden for cancer patients and their families.

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Section: Impact Of Parental Cancer: Emotional and Behavioral Functioninmentioning

confidence: 98%

When a parent has cancer: challenges to patients, their families and health providers

Krauel

Simon

Krause-Hebecker

et al. 2012

Expert Review of Pharmacoeconomics & Outcomes Research

View full text Add to dashboard Cite

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“…Anxiety has shown variable prevalence across studies of recurrent patients. Although some reviews show that recurrent cancer patients return to high levels of anxiety (Vivar, Canga, Canga, & Arantzamendi, 2009;Warren, 2009), other studies show patients report lower anxiety levels at recurrence (Weisman & Worden, 1986;Yang, Thornton, et al, 2008). There is suggestion here that recurrence releases patients from the stress of surveillance (Worden, 1989).…”

mentioning

confidence: 89%

An Exploration of the Relative Influence of Patient's Age and Cancer Recurrence Status on Symptom Distress, Anxiety, and Depression Over Time

Step

Kypriotakis

Rose

2013

Journal of Psychosocial Oncology

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Past research suggests that psychosocial responses to advanced or recurrent cancer vary by age. This study compares the relative influences of patients' age and recurrence status on indicators of symptom distress, anxiety, and depression following a diagnosis of advanced cancer. A prospective study of advanced cancer support provided patient outcome data reported at baseline, 3-, and 6-month intervals. Cohorts were defined by age group and recurrence status and latent growth curves fit to anxiety, depression, and symptom distress outcomes. Middle-age recurrent patients reported the highest symptom distress, depression, and anxiety across time points. Older recurrent patients fared worse at baseline than older nonrecurrent patients, but outcome scores converged across time points. Recurrent cancer presents a distinct challenge that, for middle-age patients, persists across time. It may be beneficial to develop targeted educational and support resources for middle-age patients with recurrent disease.

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“…Segundo as evidências recolhidas por esta pesquisadora (e indo ao encontro do estudo de Vivar, Whyte, & Mcqueen, 2010), o confronto com esta notícia é ainda mais difícil de ultrapassar uma vez que implica -para a criança/adolescente e sua família -o reviver de todos os problemas anteriores, acrescidos de redobradas preocupações com o fato de as probabilidades de cura se verem diminuídas. Retratando as dificuldades inerentes a este confronto, Valle (2010, p. 139 Vários autores salientam os riscos imediatos, ao nível psicossocial que, quer o paciente, quer a família encaram aquando da recidiva do câncer (e.g., ArrudaColli & Santos, 2015;Hinds et al, 2002;Vivar, Canga, & Arantzamendi, 2009). A sua confirmação é, entre outros, geradora de alterações ao nível das relações entre o paciente e os pais, e com a equipe prestadora de cuidados.…”

Section: Recidiva Oncológica: Aspetos Fenomenológicosunclassified

Recidiva Oncológica: Olhares dos Profissionais Hospitalares sobre as Dificuldades do Paciente Pediátrico

et al. 2018

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ResumoEm pediatria oncológica, a taxa de sobrevivência tem sofrido um aumento acentuado, sendo considerável a probabilidade de cura. Não obstante, o processo de confronto com a doença pode sofrer alguns contratempos, nomeadamente uma recidiva. Esta última é responsável por elevado sofrimento, o qual poderá ser ainda maior que o confronto com o diagnóstico. Procurando conhecer as perceções dos profissionais de oncologia, relativamente às principais dificuldades experienciadas pelas crianças e adolescentes cuja doença recidivou, as autoras desenvolveram um estudo investigando o olhar desses profissionais. Entrevistaram-se 17 profissionais, de dois hospitais portugueses, exercendo funções hospitalares na área da saúde, serviço social, psicologia e educação. Suas reflexões apontaram como principais dificuldades a aceitação de ter que passar novamente por um processo fisica e psicologicamente penoso sendo que, entre os adolescentes -mais conscientes da gravidade da doença e suas implicações -acrescem as dificuldades em ter esperança na cura. Para os mais pequenos, os profissionais apontaram como mais comum a dificuldade em compreender os motivos de nova submissão a tratamentos dolorosos e do afastamento dos seus contextos de vida. Dando a conhecer uma etapa particularmente desafiante da doença oncológica, o presente estudo traz um olhar multifocal de um grupo de profissionais que acompanham de perto essas crianças/adolescentes (e respectivas famílas). A sua longa e diversa experiência -em termos de tipologias de câncer, evolução do quadro clínico, idade ou temperamento dos pacientes (e dos próprios pais) -fazem desses profissionais informantes-chave no mapeamento das dificuldades associadas ao processo de recidiva oncológica em pediatria, bem como no desenho e implementação de respostas mais ajustadas à fenomenologia destes processos. Palavras-chave: psico-oncologia pediátrica, recidiva, fenomenologia, profissionais de cuidados Cancer recurrence: perspectives of hospital staff on the difficulties of pediatric patients Abstract In pediatric oncology, the survival rate has risen considerably, and nowadays the probability of cure is very high. However, the process of fighting the disease can suffer some setbacks, namely a relapse. This event is responsible for high suffering, which may be even greater than dealing with the diagnosis of cancer. Aiming to understand the perceptions of oncology professionals regarding the main difficulties experienced by children/adolescents whose cancer relapsed, the authors developed a study in which the professionals' perspective was explored. A group of 17 professionals (from the areas of health, social work, psychology and education), working in two Portuguese hospitals, was interviewed. Their reflections indicated that the main difficulties during relapse were the acceptance of having to undergo such a -physically and psychologically -painful process all over again, and among adolescents, who are more aware of the severity of the disease and its implications, also difficulties in kee...

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The psychosocial impact of recurrence on cancer survivors and family members: a narrative review

Cited by 43 publications

References 61 publications

When a parent has cancer: challenges to patients, their families and health providers

When a parent has cancer: challenges to patients, their families and health providers

An Exploration of the Relative Influence of Patient's Age and Cancer Recurrence Status on Symptom Distress, Anxiety, and Depression Over Time

Recidiva Oncológica: Olhares dos Profissionais Hospitalares sobre as Dificuldades do Paciente Pediátrico

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