The psychosocial impact of an infantile haemangioma on children and their parents: Table 1

Abstract

Infantile haemangiomas (IHs) are common, benign vascular tumours in children that appear soon after birth and regress before the age of 12 years. Physicians have always been concerned about the considerable psychosocial impact these lesions might have on children and their parents. This is the first critical review of studies on the psychosocial impact of IHs on children and their families. Future directions for research are suggested. As propranolol is becoming the most common first choice treatment for IHs, this article discusses its use in the light of this review.

Effect of Angiofibromas on Quality of Life and Access to Care in Tuberous Sclerosis Patients and Their Caregivers

“…Conversely, there was no significant difference in QoL scores between individuals with TSC with AFs and those without AFs, although of individuals with TSC with AFs, those who received AF treatment had significantly better QoL scores than those without treatment, as measured by the CDLQI (mean 3.83 AE 3.88 [n = 40] versus 9.50 AE 7.66 [n = 12], p = 0.001); median 3 [IQR 1-5] versus 8 [IQR 2. [5][6][7][8][9][10][11][12][13][14][15][16]. Individuals with TSC who were not treated for AFs had a CDLQI score indicating skin disease with moderate (score of 7-10) effect on QoL.…”

Influence of infantile hemangioma severity and activity on QoL of patients and their parents: A cross‐sectional study

“…Skin conditions in children, such as infantile hemangioma (IH), the most common benign vascular tumor of infancy, may be associated with an impaired quality of life (QoL) of the children and/or their parents/caregivers . Several studies have tried to measure the impact of IH on children and their parents, but results are conflicting . Only one of these studies used a validated IH‐specific Hemangioma Family Burden (HFB) questionnaire, concluding that burden of disease of IH may be underestimated by physicians and that parents of children with severe IH experience a high burden .…”

Psychological Impact of Cutaneous Congenital Vascular Lesions

“…A recent review about the psychosocial impact of infantile haemangiomas on children and their parents observed that all but one of the studies investigating the psychosocial impact of hemangiomas were conducted in small groups of parents and all have flaws [22].…”