Influence of infantile hemangioma severity and activity on QoL of patients and their parents: A cross‐sectional study

Abstract

An IH only seems to have limited influence on QoL in young children and their parents in the first month of their first doctor's visit. QoL is more affected in more severe IH. Physicians should be alert to the impact of IH, optionally guided by the HSS score.

Does treatment with propranolol affect quality of life in infantile hemangioma patients and their parents?

“…This has been shown before in the literature . We expect that the impact on QoL would have followed the same trend if no treatment had been given since there is a correlation between the HSS and D‐IH‐QoL . A possible explanation for QoL not significantly improving despite treatment may be the relatively small study population.…”

“…4 We expect that the impact on QoL would have followed the same trend if no treatment had been given since there is a correlation between the HSS and D-IH-QoL. 1 A possible explanation for QoL not significantly improving despite treatment may be the relatively small study population. Another explanation is that parents were still worried about their child, as treatment had not yet been finished or because of concerns about long-term sequelae due to PHACES, visceral IH, or disfigurement.…”

“…The cohort described in the previous study was approached again. Fifty‐three of the initial 59 participants were willing to participate and completed the Dutch version (D‐IH‐QoL) of the validated IH‐QoL a second time (characteristics are shown in Table ).…”

“…Recently, the quality of life (QoL) in infants with infantile hemangioma (IH) in the growth phase, and their parents, was reported . Overall, limited impact on QoL was demonstrated except in more severe IH.…”

Childhood vitiligo impacts emotional health of parents: a prospective, cross-sectional study of quality of life for primary caregivers

“…This has relevance for adherence to treatment and long-term disease outcomes. In the case of pediatric patients with chronic disease like psoriasis, alopecia areata and atopic dermatitis, this burden has been shown to also involve the lives of parents and other primary caregivers [4][5][6][7]. To date, in the study of vitiligo, assessments of QoL impact have focused on pediatric patients but not on their caregivers [2,3,[8][9][10].…”