The opinion of Greek parents on the advantages and disadvantages of the outpatient pediatric oncology setting

Matziou, Vasiliki; Servitzoglou, Marina; Vlahioti, Efrosini; Deli, Haralampia; Matziou, Theodora; Megapanou, Efstathia; Perdikaris, Pantelis

doi:10.1016/j.ejon.2012.11.007

Cited by 4 publications

(4 citation statements)

References 18 publications

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“…These educational efforts laid the foundation and provided standardized education for stakeholders to be successful in planning and implementation. Anderson et al (2013) and Matziou et al (2012) recommended that patient and family feedback be obtained throughout the transition to improve the process. A discussion with families after each cycle allowed for modifications to be made to the system as needed.…”

Section: Methodsmentioning

confidence: 99%

“…Patient and family satisfaction has increased with the national trend toward ambulatory care (Hansson et al, 2011). Outpatient care was found to improve patient's ability to maintain daily routine and participate in activities with fewer disruptions to family routines (Lippert et al, 2017;Matziou et al, 2012;Stevens et al, 2006). Families reported decrease need for child care and fewer unpaid days off work.…”

Section: Introductionmentioning

confidence: 99%

“…Families reported decrease need for child care and fewer unpaid days off work. Children were happier, less anxious, and less scared when attending appointments in the clinic or being treated in the home than when hospitalized (Matziou et al, 2012). The system prior to the QI project left patients without the opportunity to use their developed support system, coping skills, and connection to friends and family for days at a time.…”

Section: Introductionmentioning

confidence: 99%

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Letting Kids Be Kids: A Quality Improvement Project to Deliver Supportive Care at Home After High-Dose Methotrexate in Pediatric Patients With Acute Lymphoblastic Leukemia

Ranney

Hooke

Robbins

2020

J Pediatr Oncol Nurs

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The Children’s Oncology Group recommends children with high-risk acute lymphoblastic leukemia (ALL) receive high-dose methotrexate (HD MTX) throughout treatment. Historically, patients have been hospitalized for at least 54 hours for HD MTX. Literature supports the safety and efficacy of the transition of supportive care interventions of intravenous (IV) fluids and leucovorin to ambulatory care. The goal of this quality improvement (QI) project was to implement a system to support the safe delivery of supportive care in the home after inpatient HD MTX in children with high-risk ALL. An interdisciplinary team implemented system changes including an ambulatory supportive care protocol, standard computerized order sets, family education, and education of staff in the inpatient, outpatient, and home care setting. Measurements included laboratory results of renal function and medication clearance, length of hospitalization, and family-reported quality of life. During project implementation, 10 patients completed a total of 38 cycles. The system safely and effectively supported transition to the outpatient setting for all patients. Average length of stay was decreased by 37.8 hours per HD MTX cycle. Families reported that quality of life improved in most domains with family time and sleep having largest improvement, while level of stress remained the same. Ambulatory monitoring post-HD MTX requires a multidisciplinary approach to meet individualized patient needs. Future QI efforts should consider outpatient administration of HD MTX in addition to supportive care as a means to improved quality of life.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Letting Kids Be Kids: A Quality Improvement Project to Deliver Supportive Care at Home After High-Dose Methotrexate in Pediatric Patients With Acute Lymphoblastic Leukemia

Ranney

Hooke

Robbins

2020

J Pediatr Oncol Nurs

View full text Add to dashboard Cite

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“…Chronic kidney disease is an irreversible deterioration in kidney function for three months that can cause death if dialysis or transplantation is not used quickly [1]. The most common reasons for chronic kidney disease (CKD) are diabetic nephropathy, hypertension, glomerulonephritis, interstitial nephritis, pyelonephritis, polycystic kidney disease, and obstructive nephropathy [2]. With time, the prevalence rate of ESRD increases in most countries as Japan, the USA, and the European Union.…”

Section: Introductionmentioning

confidence: 99%

Assessment of Nutritional Status of Chronic Renal Failure Patients on Hemodialysis in Damanhour National Medical Institute in El-Beheira Governorate, Egypt

Khalil

Saied

Atlam

et al. 2021

JAMMR

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Background: Nutritional problems are of the most important risk factors of increasing mortality rates in chronic renal failure patients on hemodialysis and morbidity occurring from malnutrition significantly severely affects their quality of life. Aim: To assess the nutritional status of chronic renal failure patients on hemodialysis (HD) attending HD unit in Damanhur National Medical Institute. Methods: A cross-sectional study was carried out in the hemodialysis unit on 174 patients. Data collection was done via a specially designed questionnaire containing; socio-demographic and clinical data, anthropometric measurements, biochemical measurements, 24-hour recall list and questions for assessment of nutritional knowledge. Malnutrition inflammation score (MIS) was used for assessment of the nutritional status. Results: 65.5% of the patients were mildly malnourished, 24.7% were moderately malnourished and only 9.8% were normal and the level of malnutrition was significantly affected by duration of renal disease and hemodialysis duration. 44.3 % of patients had poor nutritional knowledge level, and only 4% had good nutritional knowledge and the nutritional knowledge level had a significant association with level of malnutrition. 96% did not attend any nutritional health education sessions, but they were willing to attend these sessions. Conclusions: Malnutrition was highly prevalent among the studied patients. There was a statistically significant relationship between levels of malnutrition (MN) and the level of nutritional knowledge of hemodialysis patients.

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Development and validation of measurement tools for user experience evaluation surveys in the public primary healthcare facilities in Greece: a mixed methods study

et al. 2019

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Background The public primary healthcare system in Greece has not been fully developed and is delivered by urban and rural health centers, outpatient departments in public hospitals and the recently established first-contact and decentralized local primary care units. The aim of this study was to develop a valid and reliable measurement tool for conducting periodic user experience evaluation surveys in public Primary HealthCare facilities in Greece such as outpatient clinics of public hospitals and health centers. Methods A mixed methods approach was applied. In particular, the methodology of developing and validating the tools included three steps: (a) establishment of the theoretical background/literature review, (b) qualitative study: development of the tools items and establishment of the face validity and (c) quantitative study: pilot testing and establishment of the structural validity and estimation of the internal consistency of the tools. Two patient focus groups participated in qualitative study: one visiting health centres and the other visiting the outpatient clinics of public hospitals. Quantitative study included 733 Primary Health Care services’ users/patients and was conducted during August–October 2017. Exploratory and confirmatory factor analysis was performed to check for structural validity of the tools, while Cronbach’s alpha coefficients were estimated to check for reliability. Results Confirmatory factor analysis confirmed almost perfectly the presumed theoretical model and the following six factors were identified through the tools: (a) accessibility (three items, e.g. opening hours), (b) continuity and coordination of care (three items, e.g. doctor asks for medical history), (c) comprehensiveness of care (three items, e.g. doctor provides advices for healthy life), (d) quality of medical care (four items, e.g. sufficient examination time), (e) facility (four items, e.g. comfortable waiting room) and (f) quality of care provided by nurses and other health professionals (four items, e.g. polite nurses). Conclusions We have developed reliable and valid tools to measure users’ experiences in public Primary HealthCare facilities in Greece. These tools could be very useful in examining differences between different types of public Primary Health Care facilities and different populations. Electronic supplementary material The online version of this article (10.1186/s12875-019-0935-6) contains supplementary material, which is available to authorized users.

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The opinion of Greek parents on the advantages and disadvantages of the outpatient pediatric oncology setting

Cited by 4 publications

References 18 publications

Letting Kids Be Kids: A Quality Improvement Project to Deliver Supportive Care at Home After High-Dose Methotrexate in Pediatric Patients With Acute Lymphoblastic Leukemia

Letting Kids Be Kids: A Quality Improvement Project to Deliver Supportive Care at Home After High-Dose Methotrexate in Pediatric Patients With Acute Lymphoblastic Leukemia

Assessment of Nutritional Status of Chronic Renal Failure Patients on Hemodialysis in Damanhour National Medical Institute in El-Beheira Governorate, Egypt

Development and validation of measurement tools for user experience evaluation surveys in the public primary healthcare facilities in Greece: a mixed methods study

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