The meaning of participation to stroke survivors: a qualitative study

Fryer, Kate; Baxter, Susan; Brumfitt, Shelagh

doi:10.12968/ijtr.2016.23.8.356

Cited by 2 publications

(34 citation statements)

References 18 publications

(16 reference statements)

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“…One article stated that their qualitative design "emerged gradually" over the course of the research (47). All articles used either interviews (47,49,(51)(52)(53) or focus groups (47,48,50) for data collection purposes. One study used photovoice (50), another included working groups as part of their process (47), and one outlined the use of "total communication technique" in their interviews and focus groups, which allowed for participants with speech difficulty to participate with gestures or writing (51).…”

Section: Article Characteristics and Quality Assessmentmentioning

confidence: 99%

“…The analytical theme, Essential Elements of Participation, represents the factors identified by participants as intrinsic to participation (47)(48)(49)(50)(51)(52). We categorized these references into 5 descriptive themes: (1) Being Included, (2) Beyond Function, (3) Normative Function, (4) Contribution, and (5) Self-Directed (47)(48)(49)(50)(51)(52).…”

Section: Essential Elements Of Participationmentioning

confidence: 99%

“…Being Included characterizes how being valued, respected, and treated as an equal member of society is a defining aspect of participation for pwABI (47)(48)(49)(50)(51)(52). One participant stated, "To participate fully in life is to interact physically and mentally and socially with your peers and others in the community at large to the extent that you can" (48).…”

Section: Essential Elements Of Participationmentioning

confidence: 99%

“…Being Included "It means taking part, being one of the team...a cog within a wheel" The stroke survivors described how participation meant being part of something, which involved working in co-operation with others." (51) Beyond Function "Participation can be partial, from the perspective of society, but full and meaningful in the eyes of the person it involves." (47) Normative Function "Being able to do favorite activities alone which had always been done alone, was described as a form of participation…" (51) Contribution "In resistance to popular perceptions about people with disabilities as perpetually receiving help, the root of participation for many participants was defined not by what they can get from other people, but instead by what they can contribute back to others."…”

Section: Essential Elements Of Participationmentioning

confidence: 99%

“…(51) Beyond Function "Participation can be partial, from the perspective of society, but full and meaningful in the eyes of the person it involves." (47) Normative Function "Being able to do favorite activities alone which had always been done alone, was described as a form of participation…" (51) Contribution "In resistance to popular perceptions about people with disabilities as perpetually receiving help, the root of participation for many participants was defined not by what they can get from other people, but instead by what they can contribute back to others." (48) Self-Directed "For example, participants defined participation in life as: Just to be able to do whatever you want to do to your fullest extent to the best of your ability."…”

Section: Essential Elements Of Participationmentioning

confidence: 99%

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Conceptualization of Participation: A Qualitative Synthesis of Brain Injury Stakeholder Perspectives

Rajala¹,

Waterhouse²,

Evans³

et al. 2022

Front. Rehabilit. Sci.

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BackgroundThe return to participation in meaningful life roles for persons with acquired brain injury (pwABI) is a goal shared by pwABI, their families, clinicians, and researchers. Synthesizing how pwABI define participation will help to identify the aspects of participation important to pwABI and can inform a person-centered approach to participation outcome assessment. To-date, the qualitative synthesis approach has been used to explore facilitators and barriers of participation post-stroke, and views about participation among individuals with stroke in the UK.ObjectivesThis paper's objectives are to (1) conduct a scoping review of qualitative literature that defines and characterizes participation from the perspective of pwABI of any type, (2) synthesize how pwABI define and categorize participation, and (3) link the themes identified in the qualitative synthesis to the International Classification of Functioning, Disability, and Health (ICF) using standardized linking rules to enhance the comparability of our findings to other types of health information, including standardized outcome measures.MethodsWe completed a scoping review of qualitative literature. Our search included PubMed, APA PsychInfo, CINAHL, and Embase databases and included articles that (1) had qualitative methodology, (2) had a sample ≥50% pwABI, (3) had aims or research questions related to the meaning, definition, perception, or broader experience of participation, and (4) were in English. Qualitative findings were synthesized using Thomas and Harden's methodology and resultant themes were linked to ICF codes.ResultsThe search identified 2,670 articles with 2,580 articles excluded during initial screening. The remaining 90 article abstracts were screened, and 6 articles met the full inclusion criteria for the qualitative synthesis. Four analytical themes emerged: (1) Essential Elements of Participation (2) How pwABI Approach Participation, (3) Where pwABI Participate, and (4) Outcomes of Participation. Each overarching theme included multiple descriptive themes.ConclusionIn this paper, we identified themes that illustrate key components of participation to pwABI. Our results provide insight into the complex perspectives about participation among pwABI and illustrate aspects of participation that should hold elevated importance for clinicians and researchers supporting participation of pwABI.

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Section: Article Characteristics and Quality Assessmentmentioning

confidence: 99%

Section: Essential Elements Of Participationmentioning

confidence: 99%

Section: Essential Elements Of Participationmentioning

confidence: 99%

Section: Essential Elements Of Participationmentioning

confidence: 99%

Section: Essential Elements Of Participationmentioning

confidence: 99%

See 3 more Smart Citations

Conceptualization of Participation: A Qualitative Synthesis of Brain Injury Stakeholder Perspectives

Rajala¹,

Waterhouse²,

Evans³

et al. 2022

Front. Rehabilit. Sci.

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Qualitative research. Part 3: Methods

Nicholls

2017

International Journal of Therapy and Rehabilitation

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Background: In the third and final article in this three part series, I look at sampling in qualitative studies, methods of data collection and analysis. Content: Building on the previous two articles, I highlight the importance of rigour and explore some of the different criteria used by researchers to demonstrate that their research is trustworthy. I include a brief discussion of some of the more recent trends in mixed-method or post-positivist research. Conclusions: Qualitative research is different in many ways to quantitative, and it cannot be approached with the same mind-set. It seeks to explore different aspects to quantitative research, focusing on the individual experience, rather than conclusions that can be drawn from large groups. Because of these differences, the two approaches to research should not be seen as alternatives, but complementary.

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The meaning of participation to stroke survivors: a qualitative study

Abstract: Background/aims: The effect of stroke can be all encompassing, and have an impact on

Cited by 2 publications

References 18 publications

Conceptualization of Participation: A Qualitative Synthesis of Brain Injury Stakeholder Perspectives

Conceptualization of Participation: A Qualitative Synthesis of Brain Injury Stakeholder Perspectives

Qualitative research. Part 3: Methods

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