The management of cancer in the older adolescent

Albritton, Karen; Bleyer, W. Archie

doi:10.1016/j.ejca.2003.09.013

Cited by 170 publications

(119 citation statements)

References 64 publications

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“…3 Although survivors who are racial and ethnic minorities have been shown to visit their physician for regular care less than non-Hispanic white cancer survivors, their rates of enrollment in clinical trials may be equal to or higher than those of non-Hispanic white cancer survivors. 36 Differences in clinical trial accrual rates based on gender have been minimally explored in young adults and have gone unexplored for adolescent survivors. Although poor accrual rates for cancer survivors aged 20 to 39 years have been reported for both male and female subjects, deficits in participation have been more pronounced among male subjects independent of race and ethnicity.…”

Section: Sociodemographic Factorsmentioning

confidence: 99%

“…56,57 It is possible that these cognitive, emotional, behavioral, and family dynamic concerns may be associated with adherence. 36,56,[58][59][60][61][62] The influence of peer relationships on adherence, compared with those with parents and providers, should also be further examined for adolescents diagnosed with cancer. Adolescents may be positively or negatively motivated to engage in certain behaviors based on the need for acceptance by their peer groups.…”

Section: Psychosocial Barriers and Facilitators Affecting Adherence Tmentioning

confidence: 99%

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Psychosocial Barriers and Facilitators to Clinical Trial Enrollment and Adherence for Adolescents With Cancer

et al. 2014

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have not experienced the same survival gains as children and older adults diagnosed with cancer. Poor clinical trial enrollment and adherence rates among adolescents may account for some of this disparity. Although biological, regulatory, systemic, and practice-related challenges to clinical trial enrollment and adherence have been examined, studies of psychosocial factors, which can serve as barriers or facilitators to enrollment and adherence, are limited. To bring attention to these psychological factors, we reviewed existing literature on psychosocial barriers and facilitators that can affect an adolescent' s decision to enroll and adhere to a clinical trial. We also provide potential strategies to address psychosocial factors affecting clinical trial accrual and adherence. Pediatrics

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Section: Sociodemographic Factorsmentioning

confidence: 99%

Section: Psychosocial Barriers and Facilitators Affecting Adherence Tmentioning

confidence: 99%

Psychosocial Barriers and Facilitators to Clinical Trial Enrollment and Adherence for Adolescents With Cancer

et al. 2014

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“…Non-compliance can be observed as delayed attending to chemotherapy courses or as not-using recommended medications as well as not attending long-term follow-up 26 . Complicated treatment regimens, unsuitable conditions of hospitals for adolescent's needs, desire of adolescent for independence, insufficient communication between adolescent and health care provider, denial of the disease by adolescent, feeling undefeatable against cancer observed in adolescents may be among factors leading to non-compliance 11 . Our study's retrospective design could not provide a thorough assessment for non-compliance.…”

Section: Resultsmentioning

confidence: 99%

“…Mortality in adolescent cancers arises from four major cancers: sarcomas, leukemia/ lymphomas, malignant CNS tumors and germ cell tumors 11 . Although an increase of 1.5% (per year) in 5-year overall survival in childhood cancers was observed during the last 25 years in America, only 0.9% increase (per year) was reported in adolescent survival rates 14 .…”

Section: Resultsmentioning

confidence: 99%

Single institution experience on cancer among adolescents 15-19 years of age

Yağcı-Küpeli¹,

Akyüz²,

Yalçın³

et al. 2017

Turk J Pediatr

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“…One factor identified to account for this disadvantage is the fragmentation of services [1,[10][11][12].…”

Section: Literature Reviewmentioning

confidence: 99%

Stories of Dying and Death as told by Family Members’ of Adolescents and Young Adults (AYAs) who have Died from Cancer

Barling¹,

Davis²

2016

J Palliat Care Med

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Research of AYAs with cancer has developed significantly over the last 20 years. The research has demonstrated that AYAs with cancer are a forgotten population, who require closer study in order to understand their unique issues. This paper examines family members' experiences of adolescents and young adults (AYAs) during the dying stage of their cancer trajectory. The results are drawn from a larger study titled 'From Go to Woe; Family Members' Stories of Adolescents and Young People Living with and Dying from Cancer, which storied the family members' experience of the diagnosis, treatment, dying and death of an AYA family member, utilizing Armstrong-Coster's (2004) four stages of the cancer trajectory. The principal researcher's motivation to understand and story these experiences was related to her own isolation and lack of information when her 16 year old son Anthony, was diagnosed with and eventually died of cancer at 17 years of age.The significance of this study is the contribution made to the identification of issues that can inform health policy/ guidelines. The findings have the potential to increase understanding of, and prepare family members and AYAs with cancer, for the experience of the death and dying stage of the cancer trajectory.Keywords: Adolescents and young adults; Cancer; Death and dying; End of life decision making Literature ReviewResearch over the last 20 years has indicated that AYAs with cancer are a forgotten population who require closer study in order to understand their unique problems [1][2][3][4][5][6][7][8][9] prompting Michelagnoli, Pritchard and Phillip [3] to describe this group of people as a lost tribe. One factor identified to account for this disadvantage is the fragmentation of services [1,[10][11][12].The fragmentation of services is a result of AYAs being cared for in two systems of care, the paediatric and the adult [13] with different goals and philosophies of care.The paediatric system has been described as mainly family focused and the adult system disease focused [14].This has implications not only for medical treatment of AYAs with cancer, but also presents problems in providing targeted support services. O'Brien, et al.,[15] identified the following issues that account for the lack of support services.Support services vary across adult hospitals and are fewer than those provided by specialist paediatric hospitals; support services provided both in paediatric or adult hospitals are not designed for the AYA age group, and the lack of critical mass in either system prevents optimal support service. These issues are amplified during the dying stage of the cancer journey.There is limited research on AYAs dying with cancer and their families. A review of literature found only four authors [16][17][18][19]. Wein, Pery and Zer [19] provided information specific to this group and their specific psychosocial needs whilst dying.Bisset et al. [16] identified the following needs for AYAs, their parents and siblings for palliative care services: "involvement in dec...

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The management of cancer in the older adolescent

Cited by 170 publications

References 64 publications

Psychosocial Barriers and Facilitators to Clinical Trial Enrollment and Adherence for Adolescents With Cancer

Psychosocial Barriers and Facilitators to Clinical Trial Enrollment and Adherence for Adolescents With Cancer

Single institution experience on cancer among adolescents 15-19 years of age

Stories of Dying and Death as told by Family Members’ of Adolescents and Young Adults (AYAs) who have Died from Cancer

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