The Law as a ‘Catalyst and Facilitator’ for Trust in E-Health: Challenges and Opportunities

Vedder, Anton; Cuijpers, C.M.K.C.; Vantsiouri, Petroula; Ferrari, Mariana Zuleta

doi:10.5235/17579961.6.2.305

Cited by 12 publications

(14 citation statements)

References 15 publications

(6 reference statements)

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“…Remote services could attract multiple physicians and other care providers with multiple specialties depending on the cases. There is also likelihood that the exchange and access to information are possibly taken place in the absence of the patient and outside his control (Vedder et al, 2014). In using electronic health record, e-health database or body sensor networks, patients are concerned about the unauthorized access to that information for target marketing or illegal use (Yee et al, 2006).…”

Section: Methodsmentioning

confidence: 99%

“…A survey conducted among US physicians revealed that 75 percent of the respondents agreed that errors in e-health system could have been avoided to increase productivity and confidence (Mohamed, 2012;Anderson and Balas, 2006). The adaptation of e-health is not promising in many nations including developed countries as the concerns of privacy and security are not adequately addressed by the regulators (Vedder et al, 2014;Mohamed, 2012;Sarabdeen and Mohamed Ishak, 2008;Anderson and Balas, 2006). The WHO's third Global Survey on e-Health on the protection of patients' privacy in the use of electronic health care applications showed that most member countries lacks on specific e-health-related privacy protection legislation and legal safeguards.…”

Section: Introductionmentioning

confidence: 99%

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Privacy protection laws and public perception of data privacy

Sarabdeen

Moonesar

2018

BIJ

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Purpose The move toward e-health care in various countries is envisaged to reduce the cost of provision of health care, improve the quality of care and reduce medical errors. The most significant problem is the protection of patients’ data privacy. If the patients are reluctant or refuse to participate in health care system due to lack of privacy laws and regulations, the benefit of the full-fledged e-health care system cannot be materialized. The purpose of this paper is to investigate the available e-health data privacy protection laws and the perception of the people using the e-health care facilities. Design/methodology/approach The researchers used content analysis to analyze the availability and comprehensive nature of the laws and regulations. The researchers also used survey method. Participants in the study comprised of health care professionals (n=46) and health care users (n=187) who are based in the Dubai, United Arab Emirates. The researchers applied descriptive statistics mechanisms and correlational analysis to analyze the data in the survey. Findings The content analysis revealed that the available health data protection laws are limited in scope. The survey results, however, showed that the respondents felt that they could trust the e-health services systems offered in the UAE as the data collected is protected, the rights are not violated. The research also revealed that there was no significance difference between the nationality and the privacy data statements. All the nationality agreed that there is protection in place for the protection of e-health data. There was no significance difference between the demographic data sets and the many data protection principles. Originality/value The findings on the users’ perception could help to evaluate the success in realizing current strategies and an action plan of benchmarking could be introduced.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Privacy protection laws and public perception of data privacy

Sarabdeen

Moonesar

2018

BIJ

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“…1 The growth of web-based resources and software in healthcare has made major leaps forward since the advent of Web 2.0 with the expectation that traditional methods of accessing and delivering health services will irrevocably change. 2 E-health encompasses technologies such as clinical decision support systems (CDSS), decision dashboards, management systems, feedback systems, tele-health, information or web-based resources such as electronic patient reported outcomes and educational packages. 3 Technology driven clinical encounters are becoming accepted as a common experience within a healthcare setting but satisfactory patient engagement in the process may be lacking.…”

Section: Introductionmentioning

confidence: 99%

What Is the Proportion of Studies Reporting Patient and Practitioner Satisfaction with Software Support Tools Used in the Management of Knee Pain and Is This Related to Sample Size, Effect Size, and Journal Impact Factor?

Bright

Hambly

2018

Telemedicine and e-Health

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The proportion of reporting of patient satisfaction was low; practitioner satisfaction was poorly represented. There may be implications for the suitability of administering e-health, a medium for capturing further meta-evidence needs to be established and used as best practice for implicated studies in future. This is the first review of its kind to address patient and practitioner satisfaction with knee e-health.

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“…The cost of developing and delivering eHealth resources is considered to be offset by the ease of patient accessibility [ 9 ]. The lack of quality studies and the heterogeneous nature of conditions supported by eHealth prevent full unequivocal endorsement of the cost-effectiveness of technology-driven approaches [ 10 , 11 ].…”

Section: Introductionmentioning

confidence: 99%

Patients Using an Online Forum for Reporting Progress When Engaging With a Six-Week Exercise Program for Knee Conditioning: Feasibility Study

Bright

Hambly

2018

JMIR Rehabil Assist Technol

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BackgroundThe use of electronic health (eHealth) and Web-based resources for patients with knee pain is expanding. Padlet is an online noticeboard that can facilitate patient interaction by posting virtual “sticky notes.”ObjectiveThe primary aim of this study was to determine feasibility of patients in a 6-week knee exercise program using Padlet as an online forum for self-reporting on outcome progression.MethodsUndergraduate manual therapy students were recruited as part of a 6-week study into knee conditioning. Participants were encouraged to post maximum effort readings from quadriceps and gluteal home exercises captured from standard bathroom scales on a bespoke Padlet. Experience and progression reporting were encouraged. Posted data were analyzed for association between engagement, entry frequency, and participant characteristics. Individual data facilitated single-subject, multiple-baseline analysis using statistical process control. Experiential narrative was analyzed thematically.ResultsNineteen participants were recruited (47%, 9/19 female); ages ranged from 19 to 53 years. Twelve individuals (63%) opted to engage with the forum (range 4-40 entries), with five (42%) reporting across all 6 weeks. Gender did not influence reporting (odds ratio [OR] 0.76, 95% CI 0.06-6.93). No significant difference manifested between body mass index and engagement P=.46); age and entry frequency did not correlate (R2=.054, 95% CI –0.42 to 0.51, P=.83). Statistically significant conditioning profiles arose in single participants. Themes of pain, mitigation, and response were inducted from the experiences posted.ConclusionsPatients will engage with an online forum for reporting progress when undertaking exercise programs. In contrast to related literature, no significant association was found with reporting and gender, age, or body mass index. Individual posted data allowed multiple-baseline analysis and experiential induction from participants. Conditioning responses were evident on visual inspection. The importance of individualized visual data to patients and the role of forums in monitoring patients’ progress in symptomatic knee pain populations need further consideration.

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The Law as a ‘Catalyst and Facilitator’ for Trust in E-Health: Challenges and Opportunities

Cited by 12 publications

References 15 publications

Privacy protection laws and public perception of data privacy

Privacy protection laws and public perception of data privacy

What Is the Proportion of Studies Reporting Patient and Practitioner Satisfaction with Software Support Tools Used in the Management of Knee Pain and Is This Related to Sample Size, Effect Size, and Journal Impact Factor?

Patients Using an Online Forum for Reporting Progress When Engaging With a Six-Week Exercise Program for Knee Conditioning: Feasibility Study

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