The Kennedy Krieger Independence Scales-Sickle Cell Disease: Executive components of transition readiness.

Jones, Kelly; Jacobson, Lisa A.; Tarazi, Reem A.

doi:10.1037/rep0000158

Cited by 9 publications

(4 citation statements)

References 30 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Alternatively, it is possible that parents of medically complex children are more likely to overlook or underreport symptoms. Research with other medical populations (i.e., sickle cell disease, traumatic brain injury) has shown that parent ratings are often not as elevated as would be expected based on performance‐based measures 39–41 . Within the neuro‐oncology population, this may be due to a number of factors.…”

Section: Discussionmentioning

confidence: 97%

See 1 more Smart Citation

Changes in executive function in pediatric brain tumor survivors

Peterson

Jacobson

2021

Pediatric Blood & Cancer

Self Cite

View full text Add to dashboard Cite

Objective: Pediatric oncology survivors are at risk for executive function (EF) and working memory (WM) deficits, which can be measured via performance-based measures or rating scales. Previous studies have shown these measurement methods to be weakly correlated. This study aimed to describe parent-rated EF and performancebased WM (PBWM) in pediatric brain tumor (BT) survivors, examine change in EF and PBWM across time, and investigate the relationship between parent-rated WM and PBWM. Method: The sample included 56 patients diagnosed with a BT in childhood (M age = 6.94 years; SD = 4.05) seen twice for clinical neuropsychological evaluation. PBWM was examined via the auditory WM scale from a Wechsler intelligence measure or Differential Ability Scales-II. Parents completed the Behavior Rating Inventory of Executive Function (BRIEF)/BRIEF-P/BRIEF-2 as a measure of global EF (Global Executive Composite [GEC]), metacognitive skills (Metacognitive Index/Cognitive Regulation Index [MI/CRI]), behavioral regulation (Behavior Regulation Index [BRI]), and emotional regulation (Emotion Regulation Index [ERI]).Results: GEC, MI/CRI, and ERI at Time 1 were significantly above the mean (p < .01); BRI and PBWM did not differ from the normative mean. All measures were significantly higher than the normative mean at Time 2 (p < .05). PBWM was both clinically and statistically elevated (p < .001). There was a significant change across time in PBWM (p < .05), but not GEC, MI/CRI, ERI, or BRI. PBWM was weakly correlated with the BRIEF WM subscale at Time 1 and Time 2 (all p > .05). Conclusions:Multiple measures of EF should be considered when providing diagnoses and recommendations for pediatric BT survivors. Furthermore, given declines across time, findings document need for continued monitoring and reassessment of survivors as they get further out from treatment.

show abstract

Section: Discussionmentioning

confidence: 97%

“…Research with other medical populations (i.e., sickle cell disease, traumatic brain injury) has shown that parent ratings are often not as elevated as would be expected based on performance-based measures. [39][40][41] Within the neuro-oncology population, this may be due to a number of factors.…”

Section: Discussionmentioning

confidence: 99%

Changes in executive function in pediatric brain tumor survivors

Peterson

Jacobson

2021

Pediatric Blood & Cancer

Self Cite

View full text Add to dashboard Cite

show abstract

“…There are several manuscripts that target assessment and understanding of transition issues. Four manuscripts explore the topic of transition planning and the importance of managing key developmental transition points for individuals with congenital or acquired childhood disabilities (Jones, Jacobson, & Tarezi, 2017; Sung & Connor, 2017; Warschausky, Kaufman, Evitts, Schutt, & Hurvitz, 2017a, 2017b). Jones and colleagues utilize an existing measure for exploring adaptive behavior and transition readiness for individuals with spina bifida and explore the use of this measure in individuals with sickle cell disease.…”

Section: Pediatric Rehabilitation Psychology—research In Contextmentioning

confidence: 99%

Pediatric rehabilitation psychology: Rehabilitating a moving target.

Kaufman

Lahey

Slomine

2017

Rehabilitation Psychology

View full text Add to dashboard Cite

The current special section includes manuscripts focusing on four aspects of pediatric rehabilitation psychology that are unique to this practice area. The first domain addressed is natural developmental progression in the context of a disability (i.e., habilitation). The next domain addressed in this special section is pediatric rehabilitation; pediatric rehabilitation psychology addresses the reacquisition of previously attained skills and abilities within the context of the natural developmental milieu. This special section also highlights the inherently interdisciplinary and transdisciplinary nature of pediatric rehabilitation psychology given the complex environment in which children exist. Finally, the special section includes illustrations of the crucial role pediatric rehabilitation psychologists play in facilitating transitions through major milestones, particularly from pediatrics to adulthood when living with a disability. (PsycINFO Database Record

show abstract

“…Já no ambiente escolar, estão sujeitos a ausências constantes, constrangimentos devido a sintomas como incontinência urinária e icterícia, crises álgicas, incapacidade de participar de determinadas atividades esportivas, distúrbios sociais e emocionais (8)(9)(10)(11) . Na adolescência, diante das diversas mudanças psicológicas e somáticas, características do processo de crescimento, reagem melhor aos sintomas da DF, pois realizam atividades para melhorar sua saúde e bem-estar e costumam seguir as orientações médicas específicas (12,13) . É importante que os familiares busquem compreender a patologia e as corretas orientações de saúde, com vista a minimizar a dor e reduzir os riscos de internações hospitalares secundárias, pois a periodicidade de crises acontece constantemente ao decorrer da vida, com intensidade variável.…”

Section: Introductionunclassified

Busca pelo tratamento da crise álgica na doença falciforme:concepções das genitoras

Silva

Sousa

Oliveira

et al. 2021

RBPS

View full text Add to dashboard Cite

Objetivo: Conhecer os aspectos envolvidos na busca por tratamento da crise álgica na doença falciforme, a partir das concepções das genitoras/responsáveis. Métodos: Pesquisa descritiva, de abordagem qualitativa, realizada entre os meses de julho a novembro de 2017, no Centro de Atendimento à Pessoa com Doença Falciforme em Feira de Santana, Bahia, Brasil, com seis mães/responsáveis de crianças e adolescente entre 6 a 18 anos. A coleta de dados se deu por meio de entrevistas semiestruturadas. Os dados foram analisados pelos critérios da análise de conteúdo temática e apresentados em quatro categorias: “Motivos que levaram à procura de unidades especializadas”, “Dificuldades encontradas no trajeto à unidade de saúde/logística”, “Infraestrutura/falta de sensibilização profissional para o atendimento de urgência” e “Condições para alta/sentimentos na alta hospitalar”. Resultados: Os principais motivos para procura de uma unidade especializada foram as crises álgicas, bem como febre e infecções pregressas. As dificuldades encontradas no trajeto/logística referem-se ao longo percurso entre o domicílio e o hospital, falta de veículo próprio e a demora no atendimento. A infraestrutura hospitalar foi considerada confortável, porém casos de subjugação da dor e falta de atendimento integral foi associada à falta de conscientização profissional para o problema. As condições de alta foram relacionadas ao alívio da dor, trazendo sentimentos de alegria na alta hospitalar. Conclusão: Os achados revelam fatores relacionados à dificuldade de acesso aos serviços de saúde devido a vulnerabilidade social, havendo necessidade de estratégias efetivas de educação em saúde para capacitar os pais/responsáveis no cuidado domiciliar, visando a prevenção das crises, além de criação de novas unidades especializadas para facilitar atendimento humanizado ao paciente e familiar.

show abstract

The Kennedy Krieger Independence Scales-Sickle Cell Disease: Executive components of transition readiness.

Cited by 9 publications

References 30 publications

Changes in executive function in pediatric brain tumor survivors

Changes in executive function in pediatric brain tumor survivors

Pediatric rehabilitation psychology: Rehabilitating a moving target.

Busca pelo tratamento da crise álgica na doença falciforme:concepções das genitoras

Contact Info

Product

Resources

About