The informed consent in the mature minor: Understanding and decision-making capacity

Boceta, Reyes; Martínez-Casares, Olga; Albert, Marta

doi:10.1016/j.anpede.2020.10.011

Cited by 6 publications

(4 citation statements)

References 14 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…23,24 Tıbbi müdahaleler söz konusu olduğunda çocuk özerkliği önemli olmakla birlikte çocuğun, ebeveyn veya yasal temsilcilerinin onamı gerekmektedir. 25 Tıbbi müdahalelerde çocuklardan onam alınmasında yaş sınırı, ülkeden ülkeye değişiklik göstermekte, bazı ülkelerde özerk karar alma yaşı 18 iken Hollanda'da 12, Danimarka'da 15'tir. Kanada ve İsviçre gibi ülkelerde onam verebilen herkesin duruma göre değerlendirildiği esnek bir sistem uygulanmaktadır.…”

Section: Discussionunclassified

The Effect of the Film-Showing Method Used in Ethics Education on Detecting Ethical Issues: A Qualitative Study

BİRDEN

2024

Turkiye Klinikleri J Med Ethics

View full text Add to dashboard Cite

ÖZET Bu araştırma, sağlık programlarında ön lisans düzeyinde öğrenim gören öğrencilere verilen Meslek Etiği dersi kapsamında kullanılan film izletme yönteminin, etik sorunların tespiti üzerine etkisini belirleyebilmek amacıyla yapılmıştır. Alan yazında etik eğitiminde kullanılan film izletme yönteminin etik değerlendirme basamaklarından biri olan etik sorunların saptanabilmesi üzerine etkisini konu alan çalışmaların sınırlı olduğu tespit edilmiştir. Araştırma retrospektif olarak tasarlanmıştır. Araştırmaya Başkent Üniversitesi Sağlık Hizmetleri Meslek Yüksekokulu'nun çeşitli programlarında, 2020-2021 öğretim yılı güz döneminde uzaktan öğrenim gören, Meslek Etiği dersini alan, 250 öğrencinin yazılı metinleri dâhil edilmiştir. Öğrencilerden My Sister's Keeper filmini izleyerek yazılı olarak film hakkında etik açıdan bir değerlendirme yapmaları ve sorun alanlarını belirlemeleri istenmiştir. Verilerin analizi ve raporlaması çalışmanın yazarı tarafından gerçekleştirilmiştir. Filmde yer alan etik sorunların çoğu öğrenciler tarafından ifade edilmiştir. Öğrencilerin belirlediği etik sorun alanları; temel etik ilkelerin (yarar sağlama, zarar vermeme, özerkliğe saygı, adalet, dürüstlük, yaşama saygı) ihlali, ötanazi, hasta hakları, genetik, yardımcı üreme teknikleri, kurtarıcı kardeş, organ bağışı, kanser hastalığı ile mücadele, ödev etiği, özen etiği, erdem etiği ve sonuçsalcılık konularıdır. Bu araştırmadan elde edilen veriler, etik eğitiminde kullanılan film izletme yönteminin, öğrencilerin etik sorun alanlarını tespit edebilmelerine katkı sunduğunu göstermektedir. Bunun yanı sıra bu araştırma, güncel yaklaşımlar çerçevesinde öğrenci tutumlarının belirlenebilmesi açısından farklı niteliksel ve niceliksel araştırmalara gereksinim olduğunu ortaya koymaktadır. Anah tarKe li me ler: My Sister's Keeper; etik eğitimi; etik ikilem; etik sorunlar; film izletme yöntemi ABS TRACT This research was conducted with the aim of determining the effect of the film showing method used in the Professional Ethics course given to associate degree students in health programs on the detection of ethical issues. It has been determined that there are limited studies in the literature on the effect of the film showing method used in ethics education on the detection of ethical problems, which is one of the ethical evaluation steps. The research was designed retrospectively. Written texts of 250 students who took the Professional Ethics course remotely in the fall semester of the 2020-2021 academic year in various programs of Başkent University Health Services Vocational School were included in the research. The students were asked to watch the movie My Sister's Keeper and make an ethical evaluation about the movie in writing and to identify their problem areas. Data analysis and reporting was carried out by the author of the study. Most of the ethical issues in the film were expressed by the students. The ethical problem areas identified by the students are as follows. Violation of basic ethical principles, (beneficence, non maleficence, respect...

show abstract

Section: Discussionunclassified

The Effect of the Film-Showing Method Used in Ethics Education on Detecting Ethical Issues: A Qualitative Study

BİRDEN

2024

Turkiye Klinikleri J Med Ethics

View full text Add to dashboard Cite

show abstract

“…We also found that the participant’s age could influence their views about their ability to participate in HIV research, with adolescents 16 years of age and older feeling more empowered to decide independently. There is no international consensus on the age at which an individual can decide to participate in research without parental involvement 49. There are many exceptions to the general rule that minors cannot consent for themselves, including the concept of a mature minor—an adolescent below the age of majority who demonstrates the capacity to understand and make reasonable independent decisions about their well-being.…”

Section: Discussionmentioning

confidence: 99%

“…49 There are many exceptions to the general rule that minors cannot consent for themselves, including the concept of a mature minor-an adolescent below the age of majority who demonstrates the capacity to understand and make reasonable independent decisions about their well-being. Adolescents develop greater capacity and autonomy over time and potentially in different contexts, 49 necessitating flexible requirements for protection, participation and opportunity for autonomous decision-making among children and adolescents, particularly those who are older and/or of greater maturity, to provide valid informed consent. 27 Our findings also corroborate that confidentiality concerns and stigma remain essential barriers to research participation.…”

Section: Bmj Global Healthmentioning

confidence: 99%

‘I feel that I should decide on my own….’: who should be involved in the decision-making process for adolescent involvement in HIV research?

Mukumbang,

Beima-Sofie,

Neary

et al. 2023

BMJ Glob Health

View full text Add to dashboard Cite

IntroductionEfforts to improve health outcomes among adolescents and young adults living with HIV (ALHs) are hampered by limited adolescent engagement in HIV-related research. We sought to understand the views of adolescents, caregivers and healthcare workers (HCWs) about who should make decisions regarding ALHs’ research participation.MethodsWe conducted focus group discussions (FGDs) and in-depth interviews (IDIs) with ALHs (aged 14–24 years), caregivers of ALHs and HCWs from six HIV care clinics in Western Kenya. We used semi-structured guides to explore ALHs’ involvement in research decisions. Transcripts were analysed using thematic analysis; perspectives were triangulated between groups.ResultsWe conducted 24 FGDs and 44 IDIs: 12 FGDs with ALHs, 12 with caregivers, and 44 IDIs with HCWs, involving 216 participants. HCWs often suggested that HIV research decision-making should involve caregivers and ALHs deciding together. In contrast, ALHs and parents generally thought decisions should be made individually, whether by HCWs/research teams (although this is likely ethically problematic), adolescents or caregivers. Caregiver and ALH preferences depended on ALHs’ age, with younger ALHs requiring more support. A few caregivers felt that ALHs should consult with the research team/HCWs due to their greater knowledge of clinical care. ALHs emphasised that they should independently decide because they thought they had the right to do so and the capacity to consent. Poor communication and parental non-disclosure of HIV status influenced ALHs’ views to exclude caregivers from decision-making. Regarding influences on research decision-making, ALHs were more willing to participate based on perceived contribution to science and less interested in participating in studies with potential risks, including loss of confidentiality.DiscussionWhile research teams and HCWs felt that adolescents and caregivers should jointly make research decisions, ALHs and caregivers generally felt individuals should make decisions. As ALHs sometimes find caregiver support lacking, improving family dynamics might enhance research engagement.

show abstract

“…Competence has often been associated with age, cognitive ability, and rationality [9]. However, there is a lack of harmonisation as regards the age of the mature minor to consent, and there are no systematic tools available to assess competence in decision-making capacity [10]. In some countries, minors are allowed to make healthcare decisions from a fixed age below the legal majority.…”

Section: Introductionmentioning

confidence: 99%

Involvement and Autonomy of Minors in Medical Settings: Perceptions of Children Undergoing Surgery and Parents

Rodríguez-Domínguez,

Osuna-García,

Guillén

et al. 2023

Children

View full text Add to dashboard Cite

Informed consent presupposes competence and represents a formal decision by an informed person who has the legal capacity to accept medical action or participate in research. Our aim was to analyze the perceptions of minors and their parents about the age at which they consider that a minor is competent for making health decisions. A descriptive observational study was carried out in 302 minors between 12 and 17 years of age undergoing elective surgery, and 302 parents (range 30 to 62 years). Two semistructured questionnaires were designed, one for the minors and the other, for the parents. A total of 20.1% of minors and 31.1% of parents believe that patients should not make decisions related to their health until they are 18 years old. A total of 74.9% of the minors surveyed consider that from 16 years of age, the minor is empowered to make decisions. In parents, this percentage is 60%. In the pediatric setting, each case and situation must be examined individually to determine if the minor meets the condition of maturity to decide. The ideal is to promote the minor’s participation in decision-making, giving them the opportunity to participate in the process in a manner appropriate to their capacity.

show abstract

The informed consent in the mature minor: Understanding and decision-making capacity

Cited by 6 publications

References 14 publications

The Effect of the Film-Showing Method Used in Ethics Education on Detecting Ethical Issues: A Qualitative Study

The Effect of the Film-Showing Method Used in Ethics Education on Detecting Ethical Issues: A Qualitative Study

‘I feel that I should decide on my own….’: who should be involved in the decision-making process for adolescent involvement in HIV research?

Involvement and Autonomy of Minors in Medical Settings: Perceptions of Children Undergoing Surgery and Parents

Contact Info

Product

Resources

About