‘I feel that I should decide on my own….’: who should be involved in the decision-making process for adolescent involvement in HIV research?
Ferdinand C Mukumbang,
Kristen Beima-Sofie,
Jillian Neary
et al.
Abstract:IntroductionEfforts to improve health outcomes among adolescents and young adults living with HIV (ALHs) are hampered by limited adolescent engagement in HIV-related research. We sought to understand the views of adolescents, caregivers and healthcare workers (HCWs) about who should make decisions regarding ALHs’ research participation.MethodsWe conducted focus group discussions (FGDs) and in-depth interviews (IDIs) with ALHs (aged 14–24 years), caregivers of ALHs and HCWs from six HIV care clinics in Western … Show more
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