The Impacts of COVID-19 on Unpaid Carers of Adults with Long-Term Care Needs and Measures to Address these Impacts: A Rapid Review of Evidence up to November 2020

Lorenz-Dant, Klara; Comas-Herrera, Adelina

doi:10.31389/jltc.76

Cited by 45 publications

(59 citation statements)

References 19 publications

(30 reference statements)

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“…This adverse trend, according to the observations conducted thus far, has become a common experience of informal carers around the world, regardless of the care system operating in a given country [ 1 , 19 , 22 , 35 , 47 , 54 ]. Pandemic-related changes in the caring responsibilities have lowered informal carers’ overall well-being, both mental and physical [ 33 ], causing symptoms such as sleep disturbances, anxiety or depression [ 55 ]. Moreover, it has increased the risk of carer burnout [ 47 ].…”

Section: Discussionmentioning

confidence: 99%

The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study

et al. 2021

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Older people with dementia are particularly at risk of COVID-19; however, relatively little is known about the indirect impact of the pandemic on the lives of those living with, and/or caring for someone with, dementia. The aim of this study was to investigate the experiences of people with dementia and informal carers during the closure of available social and medical services in Poland during the COVID-19 pandemic. A qualitative thematic analysis of semi-structured interviews with people with dementia (n = 5) and informal carers (n = 21) was performed between June and August 2020 after the first wave of COVID-19 in Poland. Three overarching themes were identified: (1) care re-organization; (2) psychological responses; (3) emerging needs. The factor underlying all these elements was reliance on other people. Social support and engagement are vital to the ongoing health and well-being of people living with dementia and their informal carers. Services need to be strengthened to provide ongoing provision to those living with dementia to reach pre-pandemic levels, if not better. Within the post-pandemic environment, people with dementia and their informal carers need reassurance that they can rely on external institutional and social support able to meet their needs.

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Section: Discussionmentioning

confidence: 99%

The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study

et al. 2021

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“…Many reported lower wellbeing, financial difficulties such as greater reliance on foodbanks, and lack of respite opportunities. 124,125,126,127,128 Carers are more likely to have poor health with over 60% of people providing over 20 hours of care a week having two or more long-term conditions. During the pandemic, over 20% have been waiting for NHS treatment.…”

Section: Unpaid Carersmentioning

confidence: 99%

Unequal pandemic, fairer recovery: The COVID-19 impact inquiry report

Suleman¹,

Sonthalia²,

Webb³

et al. 2021

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Unequal pandemic, fairer recovery: The COVID-19 impact inquiry report 2 48 5. The experiences of some groups disproportionately affected by the pandemic Some groups have faced disproportionate hardship and poorer health outcomes than others. This section looks at how the pandemic has affected the lives of four groups: care home residents, disabled people, ethnic minority communities and young people. 6. Public perceptions of COVID-19 and health inequalitiesTo inform this inquiry, the Health Foundation worked with consulting company Kantar Public to explore public attitudes to, and experiences of, health inequalities and the pandemic. 7. Recovery: risks and opportunitiesThe pandemic risks casting a long shadow over the nation's future health. This section highlights the main risks and how these might be mitigated. 8. ConclusionsThe conclusions of the inquiry point to the need for action in two main areas. First, immediate action to address the harm caused by the pandemic. Second, supporting longer term change to prevent future deterioration of health. References 79Acknowledgements 91 * Excess deaths measure additional deaths over a time period compared with the number of deaths usually expected. We measure the deaths caused by the pandemic in excess deaths instead of registered COVID-19 deaths due to discrepancies in the way COVID-19 deaths are recorded.Unequal pandemic, fairer recovery: The COVID-19 impact inquiry report 5 Changes to the determinants of health 4 * This information was provided by Nadine Smith who conducted interviews with workers at Changing Lives charity as part of research commissioned by the Health Foundation.

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“…The pandemic is also having a negative impact on the mental and physical wellbeing of family carers (see Preventing Well, Table 2), many of whom are unpaid and have experienced changes in care responsibilities (increased care hours) with financial implications, suggesting that financial assistance is a potential source of support. 49 Studies and reports of home care services found that increased levels of carer stress could be mitigated by visiting care workers 112,110 although family carers were often concerned about staff availability and potential risk of infection, so sometimes did not continue with such services. 142,113,17 Other family carers also worried whether home care services would be available in future if they refused them, 142 Studies that explored the use of remote communication technologies at home found that a substantial proportion of people living with dementia were unable to access remote consultations, possibly related to lack of access, knowledge or confidence to use the technology.…”

Section: T a B L Ementioning

confidence: 99%

Dementia wellbeing and COVID-19: review and expert consensus on current research and knowledge gaps

Liu¹,

Howard²,

Banerjee³

et al. 2021

Preprint

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Objectives: In response to an NHS England enquiry, a UK-based working group, comprising dementia researchers from a range of fields and disciplines, aimed to describe the impact of the COVID-19 pandemic on dementia wellbeing and identify priorities for future research. Methods: We supplemented a rapid literature search (including unpublished, non-peer reviewed and ongoing studies/reports) on dementia wellbeing in the context of COVID-19 with expert group members’ consensus about future research needs. From this we generated potential research questions the expert group judged to be relevant that were not covered by the existing literature. Results: Themes emerged from 141 studies within the six domains of the NHS England COVID-19 Dementia Wellbeing Pathway: Preventing Well, Diagnosing Well, Treating Well, Supporting Well, Living Well and Dying Well. We describe current research findings and knowledge gaps relating to the impact on people affected by dementia (individuals with a diagnosis, their carers and social contacts, health and social care practitioners and volunteers), services, research activities and organisations. Broad themes included the potential benefits and risks of new models of working including remote healthcare, the need for population-representative longitudinal studies to monitor longer-term impacts, and the importance of reporting dementia-related findings within broader healthcare studies. Conclusions: The COVID-19 pandemic has had a disproportionately negative impact on people affected by dementia. Researchers and funding organisations have responded rapidly to try to understand the impacts. Future research should highlight and resolve outstanding issues to develop evidence-based measures to improve the quality of life of people affected by dementia.

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The Impacts of COVID-19 on Unpaid Carers of Adults with Long-Term Care Needs and Measures to Address these Impacts: A Rapid Review of Evidence up to November 2020

Cited by 45 publications

References 19 publications

The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study

The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study

Unequal pandemic, fairer recovery: The COVID-19 impact inquiry report

Dementia wellbeing and COVID-19: review and expert consensus on current research and knowledge gaps

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