The impact of psoriasis on quality of life

Arruda, Lúcia Valéria Ramos de; Moraes, A.P.F. de

doi:10.1046/j.1365-2133.2001.00034.x

Cited by 68 publications

(77 citation statements)

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“…Bazen psoriasisin yaflam kalitesi üzerine etkileri, yaflam› tehdit eden kronik sistemik hastal›klar kadar fazla olabilir 8 . Bu nedenle, hastal›k fliddetinin belirlenmesinde dermatolojik bulgularla birlikte psikososyal durumun ve yaflam kalitesinin de¤erlendirilmesi önerilmektedir 9,10 . Psoriasis ‹fllev Kayb› ‹ndeksi (P‹K‹), psoriasise özgü 1987 y›l›nda Finlay ve ark.…”

Section: Giriflunclassified

The Turkish Version of the Psoriasis Disability Index: A Validation and Reliability Study

Fisek¹,

Gökdemir²,

Köşlü³

et al. 2011

TURKDERM

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ÖzetAmaç: Psoriasis vulgaris, hastalar›n yaflam kalitesini önemli ölçüde etkileyen kronik bir hastal›kt›r. Hastal›¤a özgü gelifltirilen ilk ölçek olan "Psoriasis ‹fllev Kayb› ‹ndeksi" (P‹K‹), pek çok dilde geçerlilik ve güvenilirli¤ini kan›tlam›fl ve klinik çal›flmalarda kullan›lm›flt›r. Bu çal›flmada amac›m›z, P‹K‹'ni Türkçeye çevirerek, dilimizde geçerlili¤ini ve güvenilirli¤ini araflt›rmakt›. Gereç ve Yöntem: Ölçek, uluslararas› çeviri basamaklar› izlenerek Türkçeye çevrildi. Hastalar›n Psoriasis alan fliddet indeksi (PAfi‹) skorlar›, demografik ve klinik bulgular› kaydedildi. Güvenilirlik analizi için "iç yap› tutarl›l›¤›" ve "test-tekrar test" metotlar› kullan›ld›. Ölçekteki her bir soru ve alt gruplar için Cronbach alfa katsay›s› ve madde-toplam puan korelasyonlar› hesapland›. Geçerlilik analizi için, "Dermatoloji Yaflam Kalite ölçe¤i"(DYKÖ) ile karfl›laflt›rma yöntemi kullan›ld›. Elde edilen P‹K‹ skorlar›, hastalar›n demografik bulgular› ve klinik özellikleri ile karfl›laflt›r›ld›. Bulgular: Çal›flmaya 161 psoriasis hastas› al›nd›. ‹çyap› tutarl›l›k ölçümünde tüm alt ölçeklerin Cronbach alfa katsay›s› 0,61-0,79 aras›nda de¤iflmekte olup, tüm anket için 0,88 olarak hesapland›. Test-tekrar test güvenilirli¤inde, her bir soru için korelasyon katsay›s› 0,366-0,775 aras›nda de¤iflmekte olup, toplam P‹K‹ skoru için korelasyon katsay›s› r=0,854 olarak hesapland› (p<0,001). Geçerlilik analizleri için, ortalama P‹K‹ ve DYKÖ skorlar› aras›ndaki iliflki araflt›r›ld› ve her iki ölçek aras›nda korelasyon katsay›s› r= 0,674 bulundu (p<0,05). Sonuç: Çal›flmam›z, yap›lan güvenilirlik ve geçerlilik ölçümleri sonucunda P‹K‹'nin Türk psoriasis hastalar› için uygun bir ölçek oldu¤unu göstermektedir. (Türkderm 2011; 45: 24-8) Anahtar Kelimeler: Dermatoloji yaflam kalite ölçe¤i, psoriasis, psoriasis ifllev kayb› indeksi, yaflam kalitesi, türkçe versiyon Summary Background and Design: Several instruments are available for assessing impairment and disability associated with psoriasis. The first psoriasis-specific quality of life questionnaire, Psoriasis Disability Index (PDI), has been translated to many different languages and used in studies all around the world. The aim of this study was to translate the PDI into Turkish and to validate the Turkish version of the PDI and its use for Turkish psoriasis patients, as well as to examine the specific contribution of demographic and clinical features to the PDI. Material and Method: The questionnaire was translated into Turkish by using appropriate translation steps. The socio-demographic data and the Psoriasis Area and Severity Index (PASI) scores of the patients were recorded. For reliability analysis, internal consistency and test-retest method were used. The Cronbach's alpha coefficient and item-total statistics were calculated for each question and subscales. For validation, the questionnaire was compared with the Dermatology Life Quality Index (DLQI). Results: A total of 161 psoriasis patients were included in the study. For internal consistency, Cronbach's alpha coefficient...

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Section: Giriflunclassified

The Turkish Version of the Psoriasis Disability Index: A Validation and Reliability Study

Fisek¹,

Gökdemir²,

Köşlü³

et al. 2011

TURKDERM

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“…Feelings of shame and embarrassment about physical appearance and reduced sexual desire might play a major role in high distress and dysfunction scores in specific sexual indexes [84]. Impairment of sexual activity is more profound in patients with more severe psoriatic symptoms [85], and appears to be more prevalent in women [1]. The patients who believe psoriasis has a negative effect on their sexual lives have more symptoms of depression [81].…”

Section: Sexual Healthmentioning

confidence: 99%

“…The burden of the disease extends beyond physical manifestations and includes significant physical, social and psychological impairment. Numerous studies have demonstrated the significant negative impact of psoriasis on quality of life (QoL) [1][2][3][4][5]. Furthermore, as a chronic disease, psoriasis affects the QoL of both patients and their close relatives in a cumulative way [6].…”

Section: Introductionmentioning

confidence: 99%

Quality of Life in Psoriasis

Colombo¹,

Perego²

2013

Psoriasis - Types, Causes and Medication

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“…It affects most often people between the ages of 15 and 35 years. The total annual costs for patients is estimated at $11.25 billion, with almost half of that coming from missed work due to their condition (De Arruda & De Moraes, 2001). Besides the medical and economic cost, there is a very high emotional cost including stigmatization, psychological distress, pain, discomfort, and physical disability (Fortune, Richards, & Griffiths, 2005;Bhosle, Kulkarni, Feldman, & Balkrishnan, 2006).…”

Section: Introductionmentioning

confidence: 99%

There Is Hope: Autogenic Biofeedback Training for the Treatment of Psoriasis

Klein

Peper

2013

Biofeedback

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Many college students experience stress-related illness, and in one study, 82% of students reported significant improvement in health when they participated in a semester-long stress management program. The factors that contribute to symptom reduction are illustrated by the case report of a 23-year-old male student who had been suffering from psoriasis for the past 5 years, which was not alleviated with medication and traditional medical treatment. He participated in an integrated selfregulation program consisting of daily self-healing home practice for 3 weeks, a desensitization strategy, autogenic training, and biofeedback training, coupled with pre-and posttreatment biofeedback assessments. Results showed a significant improvement in the clearing of the skin, more positive self-talk, and improved posture. The benefits have been maintained at the 4-month follow-up. Discussed are the training components and procedures along with factors that contributed to the clinical success and that can be applied to numerous other stress-related disorders.

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The impact of psoriasis on quality of life

Cited by 68 publications

References 0 publications

The Turkish Version of the Psoriasis Disability Index: A Validation and Reliability Study

The Turkish Version of the Psoriasis Disability Index: A Validation and Reliability Study

Quality of Life in Psoriasis

There Is Hope: Autogenic Biofeedback Training for the Treatment of Psoriasis

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