The impact of measuring patient-reported outcomes in clinical practice: a systematic review of the literature

Abstract

Methodological concerns limit the strength of inference regarding the impact of providing PRO information to clinicians. Results suggest great heterogeneity of impact; contexts and interventions that will yield important benefits remain to be clearly defined.

Establishing a Common Metric for Physical Function: Linking the HAQ-DI and SF-36 PF Subscale to PROMIS® Physical Function

“…Measures of physical function can quantify the impact of chronic health conditions, and in so doing, they can help evaluate whether and how well patients are recovering from disease, trauma or restorative surgery. [2][3][4] Across these applications, people use different measures of PF. Three of the more common choices include the Health Assessment Questionnaire (HAQ), the SF-36® ten-item PF scale derived from the Medical Outcomes Study, and the Patient Reported Outcomes Measurement System (PROMIS®) PF item bank, including its various short form and computerized adaptive testing (CAT) options.…”

Why quality of life measurement is important in dermatology clinical practice

“…Description of the 20 items suggested by the 13 participants Appendix 1 Quotes from participants illustrating each concept Table 1. The 20 descriptors, given in five categories, of the 108 items mentioned by the 13 participants (median number of items mentioned per participant = 8, range [4][5][6][7][8][9][10][11][12][13][14][15].…”

Implementing Outcome Measures Within an Enhanced Palliative Care Day Care Model

“…PROM assessments in clinical practice enable monitoring patient's clinical state and can potentially detect symptoms, functional changes or psychological issues that might otherwise be missed. [20] Fewer than a quarter of all new patients who accessed the SPDC unit completed one cycle and had both initial and 8-week assessment data collected. We hypothesise that the major reason for this low completion rate of all patients referred was due to patients being referred too late in their illness trajectory to be able to complete 8 weeks of ambulatory day-care attendance.…”