Why quality of life measurement is important in dermatology clinical practice

Finlay, A.Y.; Salek, Sam; Abeni, Damiano; Aragonés, Lucía Tomás; Cranenburgh, O.D. van; Evers, Andrea W M; Jemec, Gregor B.E.; Linder, Dennis; Manolache, Liana; Marrón, S.E.; Prinsen, Cecilia A.C.; Susitaival, Päivikki; Chernyshov, Pavel V

doi:10.1111/jdv.13985

Cited by 69 publications

(36 citation statements)

References 35 publications

(58 reference statements)

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“…There are many reasons to use HRQoL assessment in clinical practice. Members of the EADV Task Force on Quality of Life independently listed the ways they thought that it may be advantageous to measure QoL in routine dermatological clinical practice: a total of 108 different ways of using QoL information in clinical practice were suggested [ 17 ]. The majority of these suggested advantages of measuring QoL are applicable to the routine clinical management of HS.…”

Section: Discussionmentioning

confidence: 99%

“…There is a lack of placebo-controlled clinical trials with sufficient participant numbers that assess different treatment methods and a lack of high-quality clinical trials in HS patients where HRQoL instruments have been used as outcome measures. The EADV TFs encouraged the further development, validation and use of other HS-specific, dermatology-specific and generic instruments, but such use should be based on the principles presented by the EADV TF on QoL and Patient Oriented Outcomes [ 15 , 17 , 18 , 19 , 20 , 21 , 22 , 23 , 24 , 25 , 26 , 27 ]. The aim of the present review is to present an update on recent QoL studies in HS.…”

Section: Introductionmentioning

confidence: 99%

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Quality of Life in Hidradenitis Suppurativa: An Update

Chernyshov

Finlay

Tómas-Aragonés

et al. 2021

IJERPH

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Knowledge on hidradenitis suppurativa/acne inversa (HS) is rapidly increasing. HS has a profound impact on patients and their family life. Several factors, such as comorbidities, unemployment and HS severity, make this impact even more severe. The most widely used instrument to measure this impact is the dermatology-specific DLQI. We also identified six HS-specific health-related quality of life (HRQoL) instruments. Of them, HIDRAdisk, HSIA, HiSQOL and HSQoL-24 are better validated but there is still lack of experience of its use. Several treatment methods showed positive effect on patients’ HRQoL. Surgery remains a method with a substantial positive effect on HRQoL. Several studies confirming a positive effect of adalimumab on the HRQoL of patients with HS were published during the last three years. Data on the influence of several other biologics on HRQoL of HS patients are controversial or based on studies with a small number of patients.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Quality of Life in Hidradenitis Suppurativa: An Update

Chernyshov

Finlay

Tómas-Aragonés

et al. 2021

IJERPH

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“…Although some clinicians use QoL instruments in their routine clinical work, there is very little published about such usage [68]. Van Cranenburgh et al [69] discussed why QoL assessment is relevant for dermatological practice, which patients would benefit most from routine HRQoL assessment and how QoL assessment can be applied in clinical practice.…”

Section: Hrqol Assessment In Routine Dermatology Practicementioning

confidence: 99%

“…These were sorted into the following five categories: inform clinical decisions, clinician-patient communication, awareness of skin disease burden, informing the consultation and clinical service administration. The wide range of potential benefits identified may not only encourage clinicians to use these measures, but also highlights many areas requiring evidence to establish the true value of routine use of QoL measures [68]. …”

Section: Hrqol Assessment In Routine Dermatology Practicementioning

confidence: 99%

The Evolution of Quality of Life Assessment and Use in Dermatology

Chernyshov¹

2019

Dermatology

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The creation of the Dermatology Life Quality Index (DLQI) questionnaire facilitated many studies on the impact of skin diseases on patients’ quality of life (QoL). Many national and international guidelines recommend QoL assessment in dermatology, and some of them contain detailed recommendations on treatment goals and changes of treatment approaches based on DLQI score banding and minimal clinically important difference. The methodology of QoL in strument development and validation is constantly becoming more rigorous. Initiatives on selection of core outcome sets for skin diseases are focused on clinical trials but may also be beneficial for clinicians. There are various benefits of using QoL information in clinical practice, but experience of this is very limited at the moment. QoL assessment in dermatology is a rapidly developing field with a gradual shift from theory to practice.

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“…The British Association of Dermatologists (BAD) outlines the approaches necessary for achieving 'high-quality care' (11), stressing the value of 'patient experience' in addition to safe and effective care. The European Academy of Dermatology and Venereology (EADV) also highlights the importance of QoL measurement in dermatology clinical practice, emphasizing various benefits of routine "DLQI Seems to be 'Action', and Skindex-29 Seems to be 'Emotion'": Qualitative Study of the Perceptions of Patients with Psoriasis or Eczema on Two Common Dermatology-specific Quality of Life Measures use of HRQoL measures in routine practice (12). Two frequently used measures are the Dermatological Life Quality Index (DLQI) (13) and the Skindex-29 (14), with others, such as the Dermatology Quality of Life Scales (15), the Dermatology-specific Quality of Life instrument (16), used less often.…”

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confidence: 99%

“DLQI Seems to be ‘Action’, and Skindex-29 Seems to be ‘Emotion’”: Qualitative Study of the Perceptions of Patients with Psoriasis or Eczema on Two Common Dermatology-specific Quality of Life Measures

Paudyal¹,

Apfelbacher²,

Jones³

et al. 2020

Acta Derm Venerol

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People with chronic skin conditions often experience impairments in their quality of life. Several questionnaires exist for measuring quality of life in skin disease, e.g. the Dermatology Life Quality Index (DLQI) and Skindex-29. In this study we asked 28 patients with eczema or psoriasis to what degree these two measures capture what matters to them. Overall, the patients felt that Skindex-29 better captured their lived experience due to its items on emotions, a longer recall period of 4 weeks and greater ease of understanding. However, both DLQI and Skindex-29 lack important content such as impact of disease on professional relationships. Little is known about which quality of life measure best captures the lived experience of people with a chronic skin condition. The purpose of this study was to explore patients' views on the Dermatology Life Quality Index (DLQI) and Skindex-29. Participants were adults (n = 28) with a diagnosis of eczema or psoriasis who completed the DLQI and the Skindex-29 before being interviewed about the content and format of these questionnaires. Interviews were analysed using content analysis. Participants were generally satisfied with length and layout of both questionnaires. However, the majority preferred the Skindex-29 for its ease of understanding, use of a longer recall period and incorporation of items on a variety of emotions. Participants reported both questionnaires failing to incorporate important aspects of their lives, for instance impact on professional relationships. Participants voiced limitations in both measures but overall felt Skindex-29 better captured their lived experience.

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Why quality of life measurement is important in dermatology clinical practice

Cited by 69 publications

References 35 publications

Quality of Life in Hidradenitis Suppurativa: An Update

Quality of Life in Hidradenitis Suppurativa: An Update

The Evolution of Quality of Life Assessment and Use in Dermatology

“DLQI Seems to be ‘Action’, and Skindex-29 Seems to be ‘Emotion’”: Qualitative Study of the Perceptions of Patients with Psoriasis or Eczema on Two Common Dermatology-specific Quality of Life Measures

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