The Impact of Autism Spectrum Disorders on the Family: A Qualitative Study of Mothers’ Perspectives

Nealy, Christopher E.; O’Hare, Lindsey; Powers, Joelle D.; Swick, Danielle C.

doi:10.1080/10522158.2012.675624

Cited by 99 publications

(87 citation statements)

References 14 publications

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“…Families of children with ASD tend to assume traditional family roles where mothers commonly hold the primary caregiver's role (Nealy, O'Hare, Powers, & Swick, 2012;Pepperell, Paynter, & Gilmore, 2016). As primary caregivers, mothers are more likely to experience parenting related difficulties.…”

Section: Mothers' Experiences When There Is a Child With Asd In Theirmentioning

confidence: 99%

“…There is emerging evidence to show that families of children with ASD are resilient (Bayat, 2007;Bekhet, Johnson, & Zauszniewski, 2012;Tunali & Power, 2002). Despite the unique daily challenges, such as lack of public or family understanding towards ASD (Higgins et al, 2005;Nealy et al, 2012) and challenging behaviour of the child (Bromley et al, 2004), mothers of children with ASD show extreme commitments in caring for their children (van Tongerloo, van Wijngaarden, van der Gaag, & Lagro-Janssen, 2015). One study that explored the experiences of mothers of preschool children with ASD found that mothers developed hope and positive optimism over the years and their positive perspectives contributed towards their resilience (Bultas & Pohlman, 2014).…”

Section: Acceptance Coping Stylementioning

confidence: 99%

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Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households

McAuliffe

Cordier

Vaz

et al. 2017

J Autism Dev Disord

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This study aimed to examine the influence of differences in household status on the parental stress, coping, time use and quality of life (QoL) among mothers of children with autism spectrum disorders. Forty-three single and 164 coupled mothers completed the survey. Data were analysed using multivariate logistic regression. We found that single mothers were 1.05 times more likely to report lower levels of environmental QoL. Whilst they were 1.73 times more likely to use acceptance coping style, this association did not persist after adjusting for total number of children, household income and employment status. There was no difference in time use and stress between these mothers. Possible environmental issues for single mothers and implications for future research are discussed.

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Section: Mothers' Experiences When There Is a Child With Asd In Theirmentioning

confidence: 99%

Section: Acceptance Coping Stylementioning

confidence: 99%

Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households

McAuliffe

Cordier

Vaz

et al. 2017

J Autism Dev Disord

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“…Mothers and child welfare workers got lesser information about duration of the visit compared to other adult group. Most of the visitors were women, according previous studies, are especially mothers forced to arrange their daily life and work to fit their child′s rehabilitation and suffer great burden of the child condition . Mothers might estimate information about the duration of the visit more specifically than other adults, possible cause of greater daily arrangements and burden.…”

Section: Discussionmentioning

confidence: 99%

Parents’ satisfaction with child psychiatry

Räty

Haaranen

Rissanen

2019

Scandinavian Caring Sciences

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Aims Effective social and healthcare services are important for recipient point of view. Reforms in field of social and health care affect straight to the lives of children, adolescents and families. Voice of the parents’ of the child psychiatric patient must be heard during reforms. The purpose of this study was to explore the parents’ satisfaction with the child psychiatric clinic in southern Finland in the autumn 2017. Methods The questionnaire for parents’ included 12 questions related to a single visit experience in clinic. In total, 168 responses were collected at the end of the visits. Likert scale responses were analysed statistically with nonparametric methods for the relationship between variables such as the respondent relationship to the child and the type of visit. The open‐ended questions were analysed by qualitative content analysis. Results The relationship with the child was multifaceted: 54% were mothers and 18% fathers, 13% other adults and 3% child welfare workers. The respondents’ age distribution was 18–62 years, and the average age was 39 years. The respondents were satisfied with their visit at the clinic. The respondents’ relationship with the child was determined how successful the visit was in the point of view of respondent in some cases. There was no difference in the experience for the first‐time visitors and returning visitors or the parents′ who had visited the clinic at the same time. Conclusions Even there was significant difference experiencing the visit in some cases, the respondents were satisfied and visits deemed to have benefit. The speed and availability of care and the skills and competence of the staff were appreciated. Atmosphere in the clinic was warm and positive. Development point of view, lack of information about the duration of the visit was raised to parents at the beginning of the visit.

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“…Any links to their childhood traumas can only be surmised. Other studies have reported mothers' descriptions of the negative effects on their other children in terms of the resultant pressure on these children to grow up too quickly, their lesser opportunities to socialise and their reduced attention from parents (Nealy, O'Hare, Powers, & Swick, 2012). In contrast, in families with a child with Down or Rett syndrome, parents attributed increased tolerance, compassion and appreciation of their own health (Mulroy, Robertson, Aiberti, Leonard, & Bower, 2008).…”

Section: Employmentmentioning

confidence: 99%

Experiences Impacting the Quality of Life of Mothers of Children With Autism and Intellectual Disability

Fairthorne¹,

Fisher²,

Bourke³

et al. 2014

JPR

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In order to identify factors affecting the quality of life of mothers of children with both autism and intellectual disability, the first author interviewed 16 mothers of affected 11-24 year olds and transcribed audio recordings of the interviews. The first two authors analysed the resulting texts using a hermeneutical phenomenological approach.Mothers described living with their child's challenging behaviours, adapting to the increased demands and resultant isolation as lowering their quality of life. They described how surviving had strong negative impacts on their health and relationships. A majority of mothers described rewards associated with their children.

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The Impact of Autism Spectrum Disorders on the Family: A Qualitative Study of Mothers’ Perspectives

Cited by 99 publications

References 14 publications

Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households

Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households

Parents’ satisfaction with child psychiatry

Experiences Impacting the Quality of Life of Mothers of Children With Autism and Intellectual Disability

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