The impact of arthritis on daily life with the patient perspective in focus

Lütze, Ulla; Archenholtz, Birgitha

doi:10.1111/j.1471-6712.2007.00443.x

Cited by 58 publications

(90 citation statements)

References 27 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…These studies found that illness uncertainty was a salient experience for all of these pain conditions. Uncertainty was associated with diffi culties in adaptation to these conditions and led to more anger and depression [50]. A study of patients with low back pain found that those who experienced uncertainty were driven to reduce the distress of uncertainty by utilizing a multitude of coping strategies, changing attitudes about pain, and continuing to search for medical certainty despite feeling stigmatized by their health care providers [49].…”

Section: Other Chronic Illnessesmentioning

confidence: 99%

“…Qualitative studies A number of qualitative studies also have examined the concept of illness uncertainty in the context of chronic pain conditions, including low back pain, RA, and unexplained chest pain [46][47][48][49][50][51] (Table 1). These studies found that illness uncertainty was a salient experience for all of these pain conditions.…”

Section: Other Chronic Illnessesmentioning

confidence: 99%

See 1 more Smart Citation

The illness uncertainty concept: A review

Wright

Afari²,

Zautra³

2009

Current Science Inc

107

View full text Add to dashboard Cite

Illness uncertainty is present for both acute and chronic illnesses and has been described in the literature as a cognitive stressor, a sense of loss of control, and a perceptual state of doubt that changes over time. Illness uncertainty is associated with poor adjustment, but often needs to be appraised as a threat to have its deleterious effect. In pain populations, illness uncertainty is related to heightened sensitivity to pain and reduced tolerance of painful stimuli. Illness uncertainty also has been related to maladaptive coping, higher psychological distress, and reduced quality of life. The illness uncertainty literature in relation to pain is somewhat limited but clearly suggests the potential negative impact on the perception of and adjustment to pain. Future research should examine specific predictors of illness uncertainty, how this construct changes over time, and what interventions may be effective in reducing illness uncertainty for individuals who experience pain conditions.

show abstract

Section: Other Chronic Illnessesmentioning

confidence: 99%

Section: Other Chronic Illnessesmentioning

confidence: 99%

The illness uncertainty concept: A review

Wright

Afari²,

Zautra³

2009

Current Science Inc

107

View full text Add to dashboard Cite

show abstract

“…[14][15][16][17] Kleinman 18 differentiated between the notions of disease as described from a medical perspective and illness as a daily life experience. The daily life experience of chronic illness might be explored through several themes, such as loss, threat to identity, 19 and physical changes to the body.…”

Section: Older and Chronically Ill Personsmentioning

confidence: 99%

Daily life for chronically ill oldest old persons

Moe

Enmarker²

2012

Nurs Rep

View full text Add to dashboard Cite

In the past, the study of old age often focused on the losses and problems associated with ageing. In recent times, the focus has been on the positive aspects, such as quality of life, inner strength, and enjoying life. The aims of this study were to highlight the ways in which chronically ill older persons experience the meaning of daily life and to understand what it means to live at home with chronic disease. In-depth interviews were used to illustrate individual experiences. The sample consisted of 13 chronically ill persons, aged 80 to 94 years, living at home and receiving assistance in the form of home nursing care. Data were analyzed using the phenomenological hermeneutical method. After a naïve reading and a structural analysis of the text, we identified three themes: being insufficient, becoming dependent, and enjoying life. The comprehensive understanding suggested that daily life involved bad days, described as illness with dysfunctions, limited energy, and dependency on others. Daily life also had its positive aspects, described as enjoying life. Dignity was threatened by feelings of being a burden to others and was affirmed by experiencing a will to live. It was concluded that bad days with experiences of suffering and good days that provided the older with experiences of enjoying life could help them meet adversity through qualities of resilience that gave meaning to daily life and helped them to think positively in times of greater difficulty.

show abstract

“…Strategies to ensure optimal RA care include allowing the patient to play a more active role in their disease management (Berry et al, 2003;Lutze and Archenholtz, 2007), and an overall trend towards enhancing the role of the patient in the rehabilitation of chronic diseases have been described (Iversen and Petersson, 2006;Kjeken et al, 2006;Lempp et al, 2006). The healthcare system needs to adapt more fully to the patient perspective (Arvidsson et al, 2006;Kjeken et al, 2006).…”

Section: Introductionmentioning

confidence: 98%

Patients' conceptions of the cause of their rheumatoid arthritis: A qualitative study

Bergsten

Bergman

Fridlund

et al. 2009

Musculoskeletal Care

View full text Add to dashboard Cite

The patient's perspective of the cause of their RA includes aspects that complement the current pathogenetic models and should therefore be considered in the management of the disease. When dealing with rheumatic diseases, it is necessary to be aware of the patient's perspectives in order to new management strategies. In addition to epidemiological studies, further studies of patients' own experience are needed in order to achieve a more tailored care model.

show abstract

The impact of arthritis on daily life with the patient perspective in focus

Abstract: The results of this study support the view that more psychosocial support is required to encourage the recently diagnosed RA patient in the new situation of having a chronic disease.

Cited by 58 publications

References 27 publications

The illness uncertainty concept: A review

The illness uncertainty concept: A review

Daily life for chronically ill oldest old persons

Patients' conceptions of the cause of their rheumatoid arthritis: A qualitative study

Contact Info

Product

Resources

About