Patients' conceptions of the cause of their rheumatoid arthritis: A qualitative study

Bergsten, Ulrika; Bergman, Stefan; Fridlund, Bengt; Alfredsson, Lars; Berglund, Anita; Petersson, Ingemar F; Arvidsson, Barbro

doi:10.1002/msc.156

Cited by 11 publications

(15 citation statements)

References 32 publications

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“…If the illness perception was incongruence with the healthcare providers’ view of the disease there was also a struggle for respect. This incongruence is also shown in other studies that highlight the differences between patients’ explanations and the medical explanation of the disease [7, 27, 28]. The patients with this struggling way of managing RA could be a challenge for healthcare providers, but healthcare providers should act in a professional way, focus on the patient’s needs and build a trusting relationship with the patient.…”

Section: Discussionmentioning

confidence: 75%

“Striving for a Good Life” – The Management of Rheumatoid Arthritis as Experienced by Patients

Bergsten¹,

Bergman²,

Fridlund³

et al. 2011

Open Nurs J

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AimTo generate a theoretical model how patients experience their management of rheumatoid arthritis (RA) in everyday life.MethodAn explorative design with the grounded theory approach was used by interviewing 16 informants with RA.ResultsThe generated theoretical model emerged in a core category- Striving for a good life with two categories; making use of personal resources and grasping for support from others, which formed the base of managing RA. When relating these categories together, four dimensions emerged which characterised patients’ different ways of managing RA: mastering, relying, struggling and being resigned.DiscussionThe management of RA incorporated the use of personal resources and the grasping for support from others. Both self-management strategies and patients’ need of support were highlighted as aspects that were of importance when managing RA. Patients’ experiences of their need of support to manage RA give extended knowledge that is of importance for nurses and other healthcare providers. The relationship between patients and healthcare providers is always the key to a good encounter. Interventions to increase self-management in RA have to incorporate this knowledge when trying to increase patients’ self-efficacy and with their experience of support.

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Section: Discussionmentioning

confidence: 75%

“Striving for a Good Life” – The Management of Rheumatoid Arthritis as Experienced by Patients

Bergsten¹,

Bergman²,

Fridlund³

et al. 2011

Open Nurs J

Self Cite

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“…Patients expressed pleasure in seeing their primary nurses in attendance at the RAES sessions and subsequently asked these nurses to advocate on their behalf regarding topics discussed in the presentations. Bergsten et al (2009) noted that patients with rheumatic diseases have a signifi cant need for emotional support. Patients may fi nd it easier to speak to their nurses, and some express feeling a sense of security because they are more familiar with their nurse (Arvidsson et al, 2006).…”

Section: Lessons Learnedmentioning

confidence: 98%

Rheumatoid Arthritis Educational Series

Lemon

Marichal-Williams

Blum

et al. 2012

Orthopaedic Nursing

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Nurses in the rheumatology clinic at New York University Hospital for Joint Diseases realized a need to provide patients with rheumatoid arthritis with more healthcare information than was routinely given during clinic visits. This project goal was to support patient involvement in decision making and encourage participation in treatment planning. To address these concerns, a team of staff registered nurses developed an educational program based on various arthritis-related topics. This article shares the experiences of these nurses as they developed and led a patient education project. Various elements of the project are discussed, including institutional history, program needs, project start-up, challenges, outcomes, and the lessons learned.

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“…Phenomenography can be used to identify variations in people's understanding of phenomena which they experience in the world around them (Bergsten et al, 2009;Marton and Booth, 1997;Morton., 1981;Sjostrom and Dahlgren, 2002;Wikstrom et al, 2005).…”

Section: Methodsmentioning

confidence: 99%

Swan neck deformities in rheumatoid arthritis: a qualitative study on the patients' perspectives on hand function problems and finger splints

Giesen

Nelissen

Lankveld

et al. 2010

Musculoskeletal Care

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Patients' conceptions of the cause of their rheumatoid arthritis: A qualitative study

Cited by 11 publications

References 32 publications

“Striving for a Good Life” – The Management of Rheumatoid Arthritis as Experienced by Patients

“Striving for a Good Life” – The Management of Rheumatoid Arthritis as Experienced by Patients

Rheumatoid Arthritis Educational Series

Swan neck deformities in rheumatoid arthritis: a qualitative study on the patients' perspectives on hand function problems and finger splints

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